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About this blog

My search for answers

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First test results

Well, not the first urine test I turned in, but the first results I have received. My PCP doc mailed me a copy of the second UFC I turned in. I only got results for the cortisol and creatinine, not the 17-hydroxysteroid? I have no clue about these tests, obviously. It was a normal result. 5.4mg I'll be really embarrassed if all of my tests come back not just normal but low normal. The creatinine test came back as low, but that stands to reason since I have some kidney damage (no idea why) and I'm taking ACE inhibitors for them. Guess they aren't better.I guess I'll just hang in there and wait for some saliva results. And of course, just 44 days until I see Dr. F.I actually had a headache-free night the other day. I was so scared of jinxing it I didn't mention it to my husband until last night when the headache came back. So far not excrutiating today so I'm keeping my fingers crossed.Ava is teething. Oy. She has two bottom teeth (they came through on Mother's Day ) and now her two top teeth are trying to pop through. I've had barely any sleep and I'm looking forward to my evening 'second wind' just so I can try to keep up on the house. Please, please let it be naptime soon. Will (my husband) is taking our older daughter to a BBQ in a bit and I am more than ready for some PEACE AND QUIET. LOL

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Battling the headaches

I broke down and went to the ER on Monday. All I could do was lay down and cry. It was the third day of it and much worse than my normal daily headache. I didn't realize they would only give me morphine and dilaudid (sp?), I thought they could give me a shot of something that would make it go away. Neither shot they gave me did much good, oh the morphine looped me - but I was still in a great deal of pain. The ER doc wanted to admit me for pain management, but I hate that 'high' feeling so I opted to go home. I have plenty of pain medication of my own, I don't need theirs. :(I woke up at 2am and *poof* the headache was gone! Then I woke up again at 7am and it was back. Two days later and I'm just starting to pull through. Ugh.I called my GP for my test results from my 1st UFC, I haven't heard back yet but I hope they call tomorrow.

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I'm Sorry

I have ups and downs, and if my previous blog entry shows anything - it's my hyper-sensitive irritability. No wonder I am headed towards a divorce. I'm sorry for misinterpreting Christy's comments and wanted to publicly apologize for how I reacted. Me ---->

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Last Entry

There's nothing I dislike more than a weepy, dramatic good-bye post but I'll indulge myself for once. Christy quite obviously doesn't think I have Cushing's, no one knows what a 10 hour UFC is, doesn't look like a hump maybe just a small one. I have learned tons here and I am very thankful to MaryO for this website and boards - I think she should be officially commended. I don't feel very welcome or accepted here. Maybe it's because I shared my soon-to-be-ex-husband's thoughts on Munchausen maybe I jumped in too fast, maybe I am too aggressive seeking treatment since I only have a short while that I will be insured, maybe I shouldn't have shared a few things in my bio, maybe it's something else. All I know is that something is desperately wrong with me and has been since I was a teenager. I was hoping I had found the one area in my life that might be supportive of my problems. I don't think that I incidentally have headaches, sweating, severe panic attacks, depression, PCOS, diabetes, weight gain, edema, etc. ~ If I was an electrician and every outlet that one central panel controlled didn't function properly... I'd suspect there was something wrong with the panel - I wouldn't replace or patch all of the outlets. I'll stop by and search the boards for answers when I have questions, there's so much information here I'm sure my needs will be met that way.

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The Lab Slips Are Ready

I just have to go pick them up tomorrow. My GP is such a good guy. Thankfully he isn't in the Munchausen camp with my DH. I have an extra jug on hand, so since I am feeling 'high' I'll start a 24 hour urine in the morning. All of my 24h protein tests have trained me already. My oldest daughter broke a bone in her foot today and is supposed to stay off her feet and keep it elevated. In what world can you get an active 3-1/2 year old laying down like that? Goodness, I need strength. Tomorrow should be interesting and exhausting.

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Trying To Get My Gp On Board

I just faxed a letter to my general practitioner asking him to assist me with the lab work Dr. F will want. I might be wasting time, but I have nothing to lose. I asked him to order measure 3 UFCs and 17hydroxysteroids and 3 night time salivary cortisols. My GP has always been helpful so I am hoping he'll be of assistance again.I am currently covered by COBRA, since I am on unemployment, and I only have 15 more months of coverage so I am trying to get this show on the road. I would like to walk in with some of the labs, and also see them beforehand so I can get some reassurance that I'm not just imagining things. I hope he calls me back and lets me know to pick up the lab slips. I'm used to doing 24 hour urines (I spill protein), so at least I won't be shocked at the jugs.

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Oh Thank Heavns!

Dr. F's office just called and scheduled an appointment for August 16th! My head still hurts, but my heart is happy.

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I Feel Horrible Today

I cannot imagine the pain and suffering others have experienced with Cushing's. If it is anything like the past two days I extend my dearest and deepest sympathies to anyone who has been in these shoes.My headache is in full swing and despite every pain medication I have available to me I am struggling to make it through these days. I had these migraines when I was pregnant last year and every day seemed like an eternity. I was on bedrest, but who can rest with a small child? I feel terribly for how my children's lives are affected by my chronic illness.I'm trying desperately to make an appointment with Dr. F - just having a light at the end of the tunnel might help me find some strength. I am not complaining about him or his staff in the least, mind you. Today I emailed and said that there is nothing more important to me in the world and that I will take any appointment they have available nomatter when it is I will be there, and if they find themselves with a cancellation within two hours notice I can attend. Thank goodness I live so close by.I suffer with migraines so intense that when I delivered my youngest daughter I had a spinal leak from the epidural and didn't realize it for two weeks because the headache wasn't as bad as the ones I had previously. The only thing that tipped me off was that when I would stand or walk for a bit of time I would lose my gait and my vision would 'chatter'. I told my doctors this and they looked like a train hit them.My DH doesn't seem to grasp how badly I feel, but I have let him know that I can NOT continue to feel like this. I won't. I don't know what I can do, but there has to be something.Well, that's enough whining for one day. I'm off to be a mother and try my best to hold it together.

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If I could just get going

Well, here it is: another day.It's 10am and the girls are sleeping. The baby is down for a nap and Anna is still sleeping from last night. I am resisting the mother's urge to go check on her. She needs the sleep and if I wake her I know I will be sorry. I wish I could remember how it feels to have energy during the day. I just want to sleep, sleep, sleep. My face is broken out, beyond the normal breakouts in my hairline behind my ears. Lovely. My headache is starting, just like every other day it is behind my eyes and nose. I saw my endocrinologist yesterday: so today I am starting to wean off of zoloft, down to 100 mg from 150mg and increasing my Effexor from 75mg to 150. I hope the Zoloft withdrawal isn't bad. In the past when I have increased my dose of Zoloft it has made me dizzy and I'm hoping to decrease won't do the same. You would think with the sheer amount of anti-depressant meds I am on that I would be happy go lucky and jumping for joy. Ugh. I only wish it were true.

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An official hypochondriac

My husband thinks I am a hypochondriac, his friends, some of my friends and a few of my doctors. The other day my husband, who was having lunch with a doctor friend, asked me to ask my psychologist about Muenchausen [sp] syndrome. :rolleyes:That must mean I am getting close to something. But fortunately I do have some friends that believe in me and my psychologist believes me too. Ironically I started seeing the psychologist to help me deal with my panic attacks. We don't really talk about my panic attacks anymore, as we have decided that they are definitely a symptom of some greater wrong in my body. I've contacted Dr. F's office several times, this week I tried to make an appointment but the 'appointment-maker' is on vacation until next week. I was advised that I probably won't get in until August, but I'm hoping that I can get in if there is a cancellation. I am lucky to live 50 miles from his office and can go anytime he can see me. I read so many stories of people traveling long distances to see him, I do feel blessed.I saw my endocrinologist today. He specializes in diabetes. I gave him all of my symptoms: the excessive sweating, night-time insomnia, bruising, headaches, PCOS, diabetes (a given), anxiety attacks, depression, inability to lose weight... he got fed up with me (I could tell) and said maybe I am taking too many pills. I didn't push things with him, I was just testing the waters. I'm holding out hope for Dr. F to help me figure out what is so terribly wrong with me.

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