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A day in the life...

Entries in this blog

 

Zoo and MRI

No, no - I am not saying the hospital is a zoo...although sometimes feels like it...LOL! Harry and I went off to the zoo in the morning yesterday and spent a great day in the sunshine..and boy, was it hot - we saw loads of different animals. The zoo is a rescue centre too so many of the animals we saw were on the verge of extinction. Harry touched a python and got up close with a barn owl, a lizard and a guinea pig - OK not scary, but very cute. He had a good old time on the bouncy castle and pl

diane177432

diane177432

 

What's been happening...

Well, been a while since I blogged. Tons has happened. Was diagnosed with reccurance, saw a registrar in the neurosurgery team, saw my endo, had a confirmed surgery date, had a cancelled surgery due to a cold, waiting for a new surgery date. Tumour has grown, cushings no where near as bad as last time - hoping this 2nd op will be my final...!!Started Uni, having great fun, learning so much in such a short time, made great friends already and feeling like this was the right move - had a couple of

Guest

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Voldemort is back...!

Its been a relaxing day today. I went and saw Harry Potter and the Goblet of Fire, which was a great escape for a couple of hours...thoroughly recommend it for the big kids in all of us. Can't wait for the next film now!! Oh, well, will have to be satisfied with Chronicles of Narnia when it comes out in December.Started on the Christmas cards today...got a third of the way through and give up...got writers cramp I think!Having a nice relaxng evening with a large glass of port and lemon, watching

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Ups and downs yet again...

I have been feeling off sorts for a couple of weeks now. It was all going swimmingly for a while after starting the HRT. I had more energy and enthusiasm for life and then it all started to ebb off. I am having to take naps every day now. Granted I am up early in the morning but I am still getting very tired. I have lost all motivation and enthusiasm too. Maybe its the change of season, who knows? The HRT finally worked anyway and I had my first period in a very long time and am once again a wom

diane177432

diane177432

 

Ups and downs

I've been getting very tired alot lately - the weight is still creeping up and its quite worrying. I am past my maximum ever weight. I start a diet and exercise class tomorrow - bought myself some new trainers at the weekend in preparation. I desperately want the appointment on Thursday to be positive - no sign of a Cushings return, but I am not holding my breath as I do believe it is back. It makes me incredibly sad. I just so wat a normal life again - I had it for a brief time recently and it

diane177432

diane177432

 

Update: September 2007

It's been a bit of a rollercoaster the past few months...getting to grips with juggling everything and the prospect of facing more testing. Work has been great and I am working with a very supportive group of people who have become good friends and have brought some much needed laughter and light relief back into my life. Despite still having loss of vision in my left eye and not feeling 100% I have managed to do the work and got a good appraisal.   I was a bit shocked when I was told my corti

diane177432

diane177432

 

Update - June 2008

Its been a rough few weeks. Everything has gone out of whack and on a daily basis I am not sure what is going on - its very worrying. My diabetes is uncontrolled and my blood sugars are exceeding 10, not good for me. My weight just keeps going up - its so frustrating. The other day I put on half a stone over night!! My cheeks are still bright red and I just feel so tired all the time. Last week I had to take some time off of work because I felt like a truck had hit me and what caused me the most

diane177432

diane177432

 

Update - 1st post-op endo appointment

Came away feeling deflated. Numbers are looking OK. Thyroid is now borderline within range. Oestrogeon is still on the low side. The plan is for me to reduce my hydro to 25mg and if I am OK try to get down to 20mg. I am increasing my thyroxine to 125mcg - see if that helps with weight loss. Need to combat one thing at a time in order to eliminate what is happening, so will have to continue to be patient. If a reccurance occurs then radiotherapy is looking likely. Need to also get used to Novotra

diane177432

diane177432

 

Ugghh....

I've woken up with such a bad headache, I feel so rough. It hurts across my forehead and behind my eyes. I'm trying to reduce my hydro by 5mg today as I was on 25mg around this time last time I was in recovery and personally I just feel I am on too much being on 30mg. My endo appointment was supposed to be at 6wks post-op but I am seeing my endo at 9-10weeks post-op. I can't wait that long....   Feeling very disheartened right now and need some serious cheering up. An old friend is visiting t

diane177432

diane177432

 

Tuesday 27th September 2005

It was a great start to today - I read Linda's post about Allison finally getting her diagnosis and heading for surgery. I love reading when things finally go right!I've been a busy bee today, still packing...never ending and Harry has been helping today which was quite funny to watch! Getting through tons of washing and housework in preparation. Started to get the jitters a bit though - guess its the thought of going back to Mum's, will it be OK, will we get on, will my marriage survive it...lo

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Tuesday 14th Feb

Happy Valentines Day everyone! Steve sent me some beautiful flowers, roses, carnations, chrysanth's, lillies - I love gerba's but he couldn't get them - but they are beautiful.Still got a bit of cold left, seeing my GP later today to talk through everything with him. I saw him yesterday as Harry is still unwell and he asked me if anyone else had Cushings in the family. I mentioned I suspected my Mum may have it but she won't go for testing. It was nice, he asked how my nursing course was going.

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Times'a'changing

Oh what a funny old start to the day its been. Its 1:30pm, we've just been to the local park and kicked a ball around, shot some hoops and walked through the woods, it was nice to get some fresh air although Harry got a bit grumpy towards the end, tiredness I guess. Day started off with a funny start. I decided I didn't want to go to the job, I know, I know, I should have gone but 8 hours a week is hardly going to solve any major problems. Steve and I had a good talk and we have decided to file

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Thursday 18th August

7:25amSlept well last night, grogginess went in the evening so I felt better by the time Steve got home. His train was delayed big time so he got home over an hour late and he was so tired. I spoke to my Mum last night and we had a good chat which made me feel so much better about our financial connection. She is really living beyond her means and I think she was in denial with it but didn't let anyone else know, so there she was lending me money and lavishing us with gifts and spending money sh

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Guest

 

Things are looking up...

I am feeling good...actually went out on my bike yesterday and Steve and I have promised to try and go out each evening. I can tell you, I hurt...soooooo much....my legs were burning and so was my chest and I ache today but boy was it worth it - I felt so good !! I would never have thought I could have ridden a bike a year and a half ago.   Steve and I are also planning a camping trip - never been camping in my life! but we have gone and got us a tent and are heading for the Norfolk coast fo

diane177432

diane177432

 

Testing, Testing...1,2,3...!

Well, just come back from all of my 3 appointments and I am shattered. Dietician couldn't tell me much more than I already know. She thinks the steroids are what is suppressing my weight...contradicts what the endo said...other than that she said I am eating OK, diabetes is under control, could only suggest smaller portion sizes and adding fruit...next appointment with the GP, he wants me to stay off the statin for lowering my cholestoral, it probably doesn't agree with me and he agrees that my

Guest

Guest

 

Testing time

Currently doing a 4-day Dex test. Started on Friday and will have a blood draw tomorrow (Tuesday) at 9am. Also doing 2 days of 24hr UFC collections. Felt really awful on the 1st day - awoke during the night shaking, couldn't regulate my body temperature, hot and cold extremes, sharp pains in a centralised area of the back of my head, feeling nauseous. Today I am feeling quite energised. I never know how to look at it, is this good, or is this a bad sign. Cushings can be so confusing whether you

diane177432

diane177432

 

Testing over - now feeling rough

Well, I went in for the blood draw on Tuesday and it took 5 attempts to find a vein that would co-operate - came away with all my arm swollen and bruised. It's very sore. yesterday, I was feeling so rough. I think its a combination of starting back on the hydrocortisone and changing insulin. Actrapid ceased production at the end of December and I had enough to see me through to now. I have been switched to Novotrapid which is a shorter acting insulin. I feel very rough. I was incredibly emotiona

diane177432

diane177432

 

Sunday markets again!

Well, my last ever boot sale today...phew!! Did it on my own, 6:30am down with the car loaded to bursting point. Smashed our selling record - got chatted up by a 71yr old and made lots of friends in the process - very fun day. Stress free without the clan with me and ended up making twice the money I would if they were with me - typical!! Must be the gemini gift of the gab...glad to see its returning again after all these months of living like a hermit! Sold lots of Harry's baby bits - it was lo

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Still on the dex...

Went into the hospital this morning to have bloods taken and hand in the 24hr UFC's - Carol, my nurse said I bet I was sick of doing tests again...yes, I am...its just a pain in the you know what and I just didn't expect to be doing them again a year after surgery. We also shook our heads that they didn't call me in for a blood draw on day one as a baseline. Probably another set of tests to be done in the future I guess. So I am now on the 4 a day dex...9am, 3pm, 9pm, 3am - will be sleeping on t

Guest

Guest

 

Still no news...

I know - 2 weeks they said - but I wish I could get an answer. tearing my hair out trying to sort out our old house, the bankruptcy, Harry's childcare, Mum's problems, Steves concerns - I desperately need my own space and I just want to scream....!!! It was breaking point on Sunday and I just wanted to climb into bed and be on my own, but no chance. Monday went by like a flash - Steve did some home cooking with Harry, making the mincemeat for our mince pies and then he is trying to get back into

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Guest

 

Still haven't got a clue...

Well no reply from the hospital, so I don't think I got the job...nevermind...next one on Tuesday - all practice I guess - but I really do hate interviews, then again who does?!!Still wish I could decide on what I want to do though. I am just torn between making my family more secure with more money coming in to following my dream. I just know that if I don't do it now, I probably never will and the one thing I said when I was ill was that if I ever got better, I would do things that I want to,

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Guest

 

Still feeling low...

I am getting fed up with all this now...still feeling depressed...trying to cheer myself up with reading posts and trying to reply but still feeling very down. I think its just the not knowing with things, lack of money driving me mad, lack of progression in anything right now, and I just seem to be touchy to everyones words, ultra-sensitive...I really hate being like this...I vowed at the start of the year to start changing my ways but I have fallen back into bad habits again. The only problem

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Starting to get worried

As the days go on right now, I am getting more and more worried that cushings is making a comeback. Little things are happening that ultimately get me thinking...I am getting more and more exhausted and just want to sleep, dark hairs have started to appear in places that I had dark hairs grow with cushings...I have been getting more headaces and the facial plethora is having a field day...my knee keeps giving way and I can't walk that far without getting pain and feelign tired...I seem to have s

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Guest

 

Starting over...

Haven't posted here for a few days, quite a few things going on. Mum has stayed over for a few days and we have been discussing the move. Will be getting the ball rolling shortly. Just need to start packing and writing to a few people. Need to register with new Docs etc when we move too. Mums house a smaller than ours but I thinks we'll do OK. There is so much to do in the local vicinity and lots of well paid jobs too, so we are seeing this as a very positive step now. I just need to do some ext

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Started out fine..ended up feeling down

I had a good morning...took a tour of a prospective nursery for Harry which was absolutely lovely and I am registering him on Thursday. I was so pleased that I had found one so quickly that had spaces and had an outstanding record from OFSTED. Harry and I went and got a few more Christmas bits. Came home, looked at Steves assignment and corrected it - his tutor said he should get someone to hel him out on this, he is doing fantastic and I can see his writing is growing. His last mark was 98% - f

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