Just an update.
Since I last posted a LOT has happened. I have had my throat surgery, and my foot surgery.
We moved to Canada in 2007 of March. I still have some pain in my lower abdomen and don't have any bleeding at the time. I am scheduled for a endromitrial (spelling) ablation on Jan 30th.
My neck is still sore, but I manage it. I don't have any more of the wired symptoms to speak of, once a a blue moon I feel it. It has been a long journey to get this far. It has been 4 years and 2 1/2 months since my adrenalectomy but things are a WHOLE lot better. My weight is still an issue, but I am now working on that daily. Starting working out again on Jan 5th of this year. Seeing if I can drop a few lbs. I hope this ablation will help get rid of some of my menstrual problems. I did quit smoking twice in 2008 in the spring ... each time for about 3-4 weeks, then started up again. I must tackle that once more and put this filthy habit behind me, but ONE thing at a time eh?
I just wanted to come by and visit to check out the boards and while surfing I found my old blog. I hope all of you are managing and getting the help you need. Remember to be your own advocate when it comes to your health. Do what you think is right and not what the doctors are telling you. If you get a doctor that is unfamiliar or uncooperative with cushings, move on and find one that will help you! You deserve the best.
BEST to you all in 2009.
My symptoms seem to be lessoning since my last post. I still get a bit of a wired feeling. I felt it the most when I was tired and we were driving back from Canada. I find that if I get tired I feel sick to my stomach, and basically just weak and no ambition to do anything.My right hand will still swell some, and my left foot, but not that much, maybe once or twice a week. I took grapefruit seed extract to see if I could combat the giardia, if I still have it even? I didn't go back for a follow up after taking the anti infectious drug. My stomach still gets sore and I take a no-name brand zantac (spelling).. Basically an acid reducer. I seems to help sometimes but not all the time. I should probably follow up on that since there was a "bullseye" target in my upper small bowel found on an CT scan in May 2003. I did do some xray (barium swallow) and everything looked clear so I dropped any further investigation.I still have to follow up on my cramps. I get menstral cramps even when I am not on my cycle. Still have to deal with my toe spurs but don't want to have another operation at this time, as well the nasopharynx thing and my sore shoulder.My neck always is sore, I don't know if that will ever go completely away. I haven't checked my weight since my last post but I think I have stopped loosing. I guess it is time to start working out again and I can do that!Until next time, bye for now,Canasa
Got back from our vacation to Canada. We left this year on July 18th, My mother-in-law and I drove up and John flew up on Sat/23rd. Marlene and I picked him up at the Wpg Airport. We had a pretty good time. Our last couple years were not that good with me being sickly all the time. This year was a glimpse of better years there!I didn't get to spend time in town with family and friends. We stayed out at Joe's in a small community about 25 KM out of town so it was hard getting in when my truck was needed to haul the boat for fishing. I didn't want to make people come out and get me either. We are looking at possibly buying a small place closer to town or in town so that we can flop when we want and have ALL the company we desire without feeling like we are imposing. I sure hope that becomes a reality.We got back on Sunday Midnight, and John had to fly out 6 hours later Monday morning. He had to get up and 4 AM and giver to get out of here. I too was exhausted from the long drive and am not totally recovered yet. Haven't even taken the time to take in a swim. It is horribly hot here, gosh I didn't miss the 90's ... We spent many evenings in Canada in sweat shirts and under the covers at night with the windows open bringing in the fresh air.The blueberries didn't produce a good crop this year. There was speculation that the hail storm ealier in the summer had damaged them as well a frost could have taken them out too. We did manage to get about 3 ice cream pail fulls though. Fishing was GREAT. John took out Joe's boat and was able to navigate the lakes we fish by himself. I missed staying with my Sister. Right now, emotionally she doesn't seem to be able to handle company for long, I am not sure why, but I don't question it. The time we did spend together was good, I enjoyed it. She met a new man since her divorce from Joe. Don.. He seems like a really nice guy!Looking at going back in Oct or so to check out the realestate. The local Paper Mill shut down and there should be a few extra houses on the Market.Marlene is talking about coming down for a visit to get away for a bit. She is having a tough time since she hurt her back and is having a horrible battle with the insurance company. She basically needs a break and a get-away and some good company and fun! Tarina is still re-enlisting in the Airforce. It should happen sometime towards the end of this month. She is going to move home and wait out the time frame until boot camp. She is looking at going to Canada during her wait as well maybe heading out to see James in Calgary. Yes, James is still pounding away on the rigs in Calgary, catching up on some bills. He is looking at doing a different job out there, hopefully he will get it!Need to get busy staining the deck and getting caught up around here, got partially sorted mail on the table, and have a to-do list that is a killer!Well ta ta for now!Me..
I problaby should post my story up until this point, but decided for now I would just start a journal of how each day or week is, so that I, (or anyone) can look back and see how I have progressed. These baby steps in recovery can be deceiving and sometimes you feel that you are stuck in one place and not getting any better.As of late:I have lost 24 lbs (about) now at the 160 mark. Hopefully this will keep going down so that I can get back into the 130's where I am most comfortable. I haven't worked out or started a exercise program, but we are working on the pool deck and that is enough of a workout for me right now. Hopefully when the pool is up and running I will get a water program going. It feels so good.I still get fogged in moments. I feel spacey but remembering back they are nothing like they use to be.I still get very tired and feel week most of the time, but I see how I have slowly been improving. My feet still ache, I have the ongoing neck aches because of the ruptured disks in my neck and my shoulder, well that is a whole other story. I don't know if anythign will help it other then surgery but right now I am not prepared to be even peeking at that possibility. I have just had enough of doctors and hospitals .. and I have another problem (my heart blockage) to contend with right now.My sleep pattern is still messed up and I wake up about every 2-3 hours each night. I don't have a problem falling back to sleep, but hate that I wake up like that.I still get some mild swelling and my hands will ache too if I do too much. Mostly my right hand swells up as well my left foot. That seems to be lingering since my adrenal surgery this past Oct/04. I will be going in next Monday for the heart catheter procedure. I hope (if needed) that he can do the stent at that time. I don't want to have to go through a bypass surgery. I think considering the time frame this was caught rather early and that the stent will work. Future goal is to stop smoking. I really need to address this and get a grip and give them things up. I just have to find the will power. I know it is in me, I just have to do it. GET'er done! If there is a will there is a way.. right? I don't know why I doubt myself about this so much. So many other people who have smoked for years just QUIT, why can't I?Well feeling rather foggy after the last week of working on the deck. I may go have a quick nap or laydown for a bit. I feel worn right out today.Bye for now,Canasa
After working on our deck around the pool for the last couple weeks I am crashing today. I have had a couple crash days in the past, while working on this project. Today isn't as bad as last week.The heat is the killer when working out there. I had my niece and nephew over to help, and it was nice to have the company.I think I will sit back today, catch up on some reading on the boards here at cushing's help and play on the internet for a while. I may go back outside later tonight to start the preping for painting the deck.Our old deck is now attached to the new deck. We have a couple stair railings to build yet on the new part and on the old part I have to take down the old privacy boards yet, repair, and replace those that need replacing.Hopefully I will have it close to painting by this weekend. I have to go in for my heart catheter thing on Monday, June 20th, so I am sure I will either be having to take it easy after that if they place a stent in my heart, therefore I want to get as much as I can get done without pushing myself too much.John has been working out of town in Lexington all week, and while home on the weekends he has been killing himself in the heat and getting this deck built. He did most of the foundation and leveling, I have done alot of the flooring, and cosmetics. It is funny how all the Men have to give me tips on this while they see me out there working. I don't mind the tips, and some have come in quite useful. It has been a long time since I had a skill saw or miter saw in hand and it does feel great to be slowly getting back to normal. Sooo, for today, it is a veg out day. Laterz,Canasa