For those who can not make it to Washington, DC next week, we're pleased to announce a livestream will be available for the Rare Disease Congressional Caucus briefing.
Rare Disease Legislative Advocates with honorary co-hosts Representatives Leonard Lance (R-NJ) and G. K. Butterfield (D-NC) and Senators Orrin Hatch (R-UT) and Amy Klobuchar (D-MN), Co-Chairs of the Rare Disease Congressional Caucus, invite you to a lunch briefing:
The Diagnostic Odyssey
Tuesday, December 4, 2018, from 12:00 p.m. until 1:00 p.m.
121 Cannon House Office Building
Complimentary lunch included
Registration available on-site
If you have questions about the briefing, please email Shannon von Felden, RDLA Program Manager, at svonfelden@