This event repeats every year forever
Each and every day since 1987, I tell anyone who will listen about Cushing’s. I pass out a LOT Cushing’s business cards. My husband also passes out cards and brochures.
Adding to websites, blogs and more which I have maintained continuously since 2000 - at mostly my own expense.
Posting on the Cushing's Help message boards about Rare Disease Day. I post there most every day.
Tweeting/retweeting info about Cushing’s and Rare Disease Day today.
Adding info to one of my blogs about Cushing’s and Rare Disease Day.
Adding new and Golden Oldies bios to another blog, again most every day.
Thinking about getting the next Cushing’s Awareness Blogging Challenge set up for April...and will anyone else participate?
And updating https://www.facebook.com/CushingsInfo with a bunch of info today (and every day!)
Today is Rare Disease Day.
I had Cushing's Disease due to a pituitary tumor. I was told to diet, told to take antidepressants and told that it was all my fault that I was so fat. My pituitary surgery in 1987 was a "success" but I still deal with the aftereffects of Cushing's and of the surgery itself.
I also had another Rare Disease - Kidney Cancer, rare in younger, non-smoking women.
If you're interested, you can read my bio here https://cushingsbios.com/2013/04/29/maryo-pituitary-bio/
What are YOU doing for Rare Disease Day?