Announcements

99 topics in this forum

1. What Can *you* Do To Help?

   By MaryO, March 8, 2005
   • 15 replies
   • 6.1k views
   • 
   • MaryO
   • March 14, 2015

2. Virtual Town Hall Meeting on Cushing's Awareness Day

   By MaryO, April 1   

   • town hall
   • meeting
   • (and 1 more)

     Tagged with:

     • town hall
     • meeting
     • cushing's awareness day
   • 0 replies
   • 609 views
   • 
   • MaryO
   • April 1

3. Webinar March 31! Medical Treatment for Cushing’s Disease

   By MaryO, March 21   

   • webinar
   • dr. f.
   • (and 7 more)

     Tagged with:

     • webinar
     • dr. f.
     • dr. theodore c friedman
     • treatment
     • cushings disease
     • pituitary
     • medicine
     • surgery
     • ketoconazole
   • 0 replies
   • 644 views
   • 
   • MaryO
   • March 21

4. Dr. Theodore Friedman Will Be Giving a Brief Update on Growth Hormone Replacement

   By MaryO, January 15   

   • dr. f.
   • dr. theodore c friedman
   • (and 4 more)

     Tagged with:

     • dr. f.
     • dr. theodore c friedman
     • growth hormone replacement
     • webinar
     • endocrinologist
     • endocrine
   • 0 replies
   • 525 views
   • 
   • MaryO
   • January 15

5. Dr. Friedman Webinar on Optimal replacement for Hypopituitarism and Sheehan’s

   By MaryO, November 25, 2023   

   • dr. theodore c friedman
   • webinar
   • (and 9 more)

     Tagged with:

     • dr. theodore c friedman
     • webinar
     • hypopituitarism
     • sheehans
     • oxytocin
     • testosterone
     • growth hormone
     • pituitary
     • thyroid
     • cortisol
     • zoom
   • 0 replies
   • 461 views
   • 
   • MaryO
   • November 25, 2023

6. Cushing’s Disease, Type 2 Diabetes Study (M3_8994), 60-minutes, 120 Dollars

   By MaryO, November 10, 2023   

   • cushing's
   • pituitary
   • (and 2 more)

     Tagged with:

     • cushing's
     • pituitary
     • diabetes
     • reward
   • 0 replies
   • 501 views
   • 
   • MaryO
   • November 10, 2023

7. Take a Survey and Earn Money!

   By MaryO, October 21, 2023   

   • rarevoice
   • survey
   • (and 1 more)

     Tagged with:

     • rarevoice
     • survey
     • study
   • 0 replies
   • 245 views
   • 
   • MaryO
   • October 21, 2023

8. Pituitary Tumor Support Group

   By MaryO, September 20, 2023   

   • pituitary
   • tumor
   • (and 1 more)

     Tagged with:

     • pituitary
     • tumor
     • endocrinologist
   • 0 replies
   • 433 views
   • 
   • MaryO
   • September 20, 2023

9. Johns Hopkins Pituitary Patient Education Day

   By MaryO, September 2, 2023   

   • johns hopkins
   • pituitary
   • (and 3 more)

     Tagged with:

     • johns hopkins
     • pituitary
     • meeting
     • in-person
     • dr. roberto salvatori
   • 0 replies
   • 539 views
   • 
   • MaryO
   • September 2, 2023

10. Webinar: Dr. Theodore Friedman (The Wiz) will giving a webinar on Updates on Treating Hypothyroidism

    By MaryO, July 27, 2023   

    • webinar
    • dr. f.
    • (and 2 more)

      Tagged with:

      • webinar
      • dr. f.
      • dr. theodore c friedman
      • hypothyroidism
    • 0 replies
    • 304 views
    • 
    • MaryO
    • July 27, 2023

11. NIH 70th Anniversary Celebration (2023)

    By MaryO, July 5, 2023   

    • nih
    • anniversary
    • 0 replies
    • 320 views
    • 
    • MaryO
    • July 5, 2023

12. Webinar: Good Hormone Health Webinar Sunday July 9, 2023, 2023. 6 PM PST

    By MaryO, June 26, 2023   

    • dr. f.
    • dr. theodore c friedman
    • (and 3 more)

      Tagged with:

      • dr. f.
      • dr. theodore c friedman
      • dr. theodore friedman
      • ozempic
      • weight
    • 0 replies
    • 535 views
    • 
    • MaryO
    • June 26, 2023

13. Final Call for the 2023 Cushing’s Hub Competition

    By MaryO, June 16, 2023   

    • clinical case
    • hypercortisolemia
    • 0 replies
    • 374 views
    • 
    • MaryO
    • June 16, 2023

14. Solu-Cortef® Shortage

    By MaryO, May 26, 2023   

    • solu-cortef
    • cortisol
    • (and 1 more)

      Tagged with:

      • solu-cortef
      • cortisol
      • hydrocortisone
    • 0 replies
    • 182 views
    • 
    • MaryO
    • May 26, 2023

15. Cushing's Support for Adults- Virtual Chat

    By MaryO, February 15, 2023   

    • online support
    • 0 replies
    • 372 views
    • 
    • MaryO
    • February 15, 2023

16. Webinar: Good Hormone Health Webinar Sunday January 8, 2023. 6 PM PST

    By MaryO, December 26, 2022   

    • web
    • dr. f.
    • (and 1 more)

      Tagged with:

      • web
      • dr. f.
      • dr. theodore c friedman
    • 1 reply
    • 502 views
    • 
    • MaryO
    • December 27, 2022

17. Webinar: Best Practices for the Management of Individuals with Cushing's Disease

    By MaryO, August 8, 2022   

    • webinar
    • cushings disease
    • (and 1 more)

      Tagged with:

      • webinar
      • cushings disease
      • dr. maria fleseriu
    • 0 replies
    • 529 views
    • 
    • MaryO
    • August 8, 2022

18. Webinar on Dr. Friedman’s views on the Pituitary Society “Consensus” Guidelines on Cushing’s disease and new Cushing’s medicines

    By MaryO, March 20, 2022   

    • pituitary
    • pituitary society
    • (and 3 more)

      Tagged with:

      • pituitary
      • pituitary society
      • cushings
      • dr. theodore friedman
      • dr. f.
    • 0 replies
    • 655 views
    • 
    • MaryO
    • March 20, 2022

19. Record a Video, Receive A Rarity T-Shirt!

    By MaryO, March 16, 2022   

    • video
    • tshirt
    • (and 3 more)

      Tagged with:

      • video
      • tshirt
      • rare disease
      • plushie
      • zebra
    • 0 replies
    • 463 views
    • 
    • MaryO
    • March 16, 2022

20. “A Window into Rare” a Rare Disease Day Panel Discussion

    By MaryO, February 25, 2022   

    • webinar
    • rare disease day
    • (and 1 more)

      Tagged with:

      • webinar
      • rare disease day
      • cushing's
    • 0 replies
    • 867 views
    • 
    • MaryO
    • February 25, 2022

21. In the US? Free COVID Tests

    By MaryO, January 18, 2022   

    • covid-19
    • tests
    • (and 1 more)

      Tagged with:

      • covid-19
      • tests
      • united states
    • 0 replies
    • 410 views
    • 
    • MaryO
    • January 18, 2022

22. Join us for a Virtual RDLA Regional Meet and Greet Session!

    By MaryO, January 7, 2022   

    • rare disease
    • advocate
    • (and 1 more)

      Tagged with:

      • rare disease
      • advocate
      • state
    • 0 replies
    • 644 views
    • 
    • MaryO
    • January 7, 2022

23. Light Up for Rare

    By MaryO, December 29, 2021   

    • rare disease
    • nord
    • (and 1 more)

      Tagged with:

      • rare disease
      • nord
      • lights
    • 0 replies
    • 539 views
    • 
    • MaryO
    • December 29, 2021

24. Record a Video and Receive Rarity the Zebra!

    By MaryO, December 15, 2021   

    • video
    • zebra
    • (and 2 more)

      Tagged with:

      • video
      • zebra
      • rare disease
      • amazon gift card
    • 0 replies
    • 502 views
    • 
    • MaryO
    • December 15, 2021

25. Register for Rare Disease Week

    By MaryO, December 6, 2021   

    • rare disease
    • conference
    • (and 1 more)

      Tagged with:

      • rare disease
      • conference
      • meeting
    • 0 replies
    • 553 views
    • 
    • MaryO
    • December 6, 2021