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Events for March 30, 2017

in Cushie Calendar

  • No permission to add events

----- The MAGIC Foundation’s Annual Adult Convention
By MaryO

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Lots of Cushies go to this meeting.  Dr. Theodore Friedman (Dr.F) will be one of the speakers. More information at http://cushings.invisionzone.com/index.php?/topic/54062-the-magic-foundation%E2%80%99s-annual-adult-convention/


----- Bravelets! 25% off the Amelia Bracelet through 7/24. Code: AMELIA25.
By MaryO

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$10 from every item sold on this page will be donated to help raise awareness for Cushing’s Disease through the work of the Cushings Helpfamily of websites. For over 16 years we have provided information, support, RSS feeds, news, and education for people with Cushing's or other endocrine problems, their friends and families. Cushing's syndrome is a hormonal disorder caused by prolonged exposure of the body's tissues to high levels of cortisol. Read more at https://www.bravelets.com/bravepage/cushing-s-help-and-support


----- Invisible Illness Awareness Week
By MaryO

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This week (September 26 – October 2) is Invisible Illness Awareness Week. Invisible illness is all around us. More than likely, you knowsomeone who is battling a battle every day. Help raise awareness for invisible illnesses by starting conversations. The more you talk about it, the more awareness can take place. The more awareness that takes place, thebetter our chances of finding a cure and coming to a better understandingof the needs of patients who feel alone in their battles.


----- Bravelets Sale through 10/3
By MaryO

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$10 from every item sold on this page will be donated to help raise awareness for Cushing’s Disease through the work of the Cushings Helpfamily of websites. For nearly 16 years we have provided information, support, RSS feeds, news, and education for people with Cushing's or other endocrine problems, their friends and families. Cushing's syndrome is ahormonal disorder caused by prolonged exposure of the body's tissues to high levels of cortisol. View all the items here: https://www.bravelets.com/bravepage/cushing-s-help-and-support


----- Cushing's Symptoms (Part 2)
By MaryO

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Myth: 'All Cushing's patients have the exact same symptoms and the level of illness is the same for everyone. If you do not have ALL of the classic symptoms of Cushing's, then you must NOT have Cushing's Syndrome/Disease!' Read more at http://www.cushings-info.com/index.php?title=Symptoms,_Part_2


----- In Memory: Alena Renea Weeks Greenhill
By MaryO

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March 30, 2007 It may not have been adrenal crisis, but it may have, as Renea, after her BLA, didn't need replacement. She hadn't taken hydro for some year(s), and yet her cortisol was always '0'. The doctors would just scratch their heads. Renea was 31. Read more at https://cushingsbios.com/2015/03/30/in-memory-alena-renea-weeks-greenhill/


----- Recruitment for Cushing's Syndrome Clinical Study
By MaryO

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This trial is testing the safety and effectiveness of a new investigational drug for the treatment of Cushing's Syndrome. Under the supervision of qualified physicians, cortisol levels and symptoms of Cushing’sSyndrome will be closely followed along with any signs of side effects. Learn more at http://curec.lk/1X0J6kT  


----- Endocrine Society issues new guidelines on hypopituitarism
By MaryO

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The Endocrine Society today (10/13/16) issued a Clinical Practice Guideline that recommends treating insufficient hormone levels in individuals with hypopituitarism by replacing hormones at levels as close to the body's natural patterns as possible. Read more at https://cushieblog.com/2016/10/15/endocrine-society-issues-new-guidelines-on-hypopituitarism/


----- Cushing's Syndrome mutant PKAL205R exhibits altered substrate specificity
By MaryO

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Through these results, we suggest that substrate rewiring may contribute to Cushing's Syndrome disease etiology, and introduce a powerful new paradigm for investigating mutation-induced kinase substrate rewiring in human disease. Read more at https://cushieblog.com/2016/12/15/cushings-syndrome-mutant-pkal205r-exhibits-altered-substrate-specificity/


----- Comment added to Imaging Technique Measures Tumor Stiffness to Aid Surgical Planning
By MaryO

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...I may have Cushing’s, but have not finished testing yet. Read more at https://cushieblog.com/2017/01/28/imaging-technique-measures-tumor-stiffness-to-aid-surgical-planning/


----- Postsurgical treatment often necessary in persistent, recurrent Cushing’s disease
By MaryO

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Nearly half of adults with Cushing’s disease that persists or recurs after surgical treatment require second and sometimes third therapeutic interventions, including pituitary surgical reintervention, radiotherapy, pharmacotherapy or bilateral adrenalectomy, study data from Mexicoshow. Read more at https://cushieblog.com/2017/03/30/postsurgical-treatment-often-necessary-in-persistent-recurrent-cushings-disease/


----- Cushing's Awareness Challenge: 2 Days to Go!
By MaryO

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More information at https://cushieblogger.com/2017/03/08/time-to-sign-up-for-the-cushings-awareness-challenge-2017/


30
March 2017

Celebrating Today


(54) lyynm
(43) papergirl
(36) alims
(??) Lynn
(??) TanyaW
(25) brethelilcushie