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Events for April 01, 2017

in Cushie Calendar

  • No permission to add events

----- John Desmond Bernal was born in 1901
By MaryO

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(1901) One of the UK’s most well-known and controversial scientists, John Desmond Bernal, was born. He worked and published extensivelyon many science topics, including vitamin D, vitamin B, cholesterol, and the origin of life.


----- The MAGIC Foundation’s Annual Adult Convention
By MaryO

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Lots of Cushies go to this meeting.  Dr. Theodore Friedman (Dr.F) will be one of the speakers. More information at http://cushings.invisionzone.com/index.php?/topic/54062-the-magic-foundation%E2%80%99s-annual-adult-convention/


----- Bravelets! 25% off the Amelia Bracelet through 7/24. Code: AMELIA25.
By MaryO

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$10 from every item sold on this page will be donated to help raise awareness for Cushing’s Disease through the work of the Cushings Helpfamily of websites. For over 16 years we have provided information, support, RSS feeds, news, and education for people with Cushing's or other endocrine problems, their friends and families. Cushing's syndrome is a hormonal disorder caused by prolonged exposure of the body's tissues to high levels of cortisol. Read more at https://www.bravelets.com/bravepage/cushing-s-help-and-support


----- Invisible Illness Awareness Week
By MaryO

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This week (September 26 – October 2) is Invisible Illness Awareness Week. Invisible illness is all around us. More than likely, you knowsomeone who is battling a battle every day. Help raise awareness for invisible illnesses by starting conversations. The more you talk about it, the more awareness can take place. The more awareness that takes place, thebetter our chances of finding a cure and coming to a better understandingof the needs of patients who feel alone in their battles.


----- Bravelets Sale through 10/3
By MaryO

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$10 from every item sold on this page will be donated to help raise awareness for Cushing’s Disease through the work of the Cushings Helpfamily of websites. For nearly 16 years we have provided information, support, RSS feeds, news, and education for people with Cushing's or other endocrine problems, their friends and families. Cushing's syndrome is ahormonal disorder caused by prolonged exposure of the body's tissues to high levels of cortisol. View all the items here: https://www.bravelets.com/bravepage/cushing-s-help-and-support


----- Pituitary Hormones
By MaryO

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http://www.cushings-...uitary_Hormones


----- Cushing's Glossary
By MaryO

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Getting a diagnosis and dealing with tests can be a very tryingtime. Here are some words you'll want to know. Find them at http://www.cushings-help.com/definitions.htm


----- All Types of Cushing's are NOT the Same
By MaryO

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 In the words of our dear friend and advocate, Robin Ess, 'There are many genetic varieties with quite a few discovered in the past couple of years. Plus, there are several types such as adrenal, ectopic, and pituitary. And so on'....Amazingly, some doctors do not realize that there are different varieties of Cushing's and that the symptoms can come from a different source. Read more at http://www.cushings-info.com/index.php?title=All_Types_of_Cushing%27s_are_NOT_the_Same


----- Day 1, Cushing's Awareness Challenge
By MaryO

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April is always Cushing’s Awareness Challenge month because Dr.Harvey Cushing was born on April 8th, 1869. https://cushieblog.c...challenge-2016/


----- Day 1, Cushing's Awareness Challenge
By MaryO

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April is always Cushing’s Awareness Challenge month because Dr.Harvey Cushing was born on April 8th, 1869. https://cushieblogge...challenge-2017/


----- Day 1, Cushing's Awareness Challenge
By MaryO

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April is always Cushing’s Awareness Challenge month because Dr.Harvey Cushing was born on April 8th, 1869. https://cushieblogge...challenge-2017/


----- Cushing's disease best treated by endocrinologist
By MaryO

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I was told that I have Cushing's disease, which has caused diabetes, high blood pressure, hunger, weight gain and muscle loss. I was never sick before this, and I did not have any of those things. I am toldI have a tumor on my right adrenal gland. I have been to numerous doctors, but most have not been too helpful. Read more at https://cushieblog.com/2016/10/04/cushings-disease-best-treated-by-endocrinologist/


----- Cushing’s Syndrome Treatments
By MaryO

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You may need one treatment or a combination of these treatmentsto effectively treat your Cushing's syndrome. Your doctor will let you know what treatments for Cushing's syndrome you'll need. Read more at https://cushieblog.com/2017/01/01/cushings-syndrome-treatments/


----- Medical Therapies in Cushing’s Syndrome
By MaryO

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Medical therapy has an important, albeit secondary, role in patients with Cushing’s syndrome. While medications are not currently used as definitive therapy of this condition, they can be very effective in controlling hypercortisolism in patients who fail surgery, those who are not surgical candidates, or those whose tumor location is unknown. Medical therapies can be particularly helpful to control hypercortisolism in patients with Cushing’s disease who underwent radiation therapy and are awaiting its salutary effects. Read more at https://cushieblog.com/2016/12/04/medical-therapies-in-cushings-syndrome/


----- The Pituitary Gland: Small But Mighty
By MaryO

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Not only does the pituitary make its own hormones, but it alsotriggers hormone production in other glands. The pituitary is aided in its job by the hypothalamus. This part of the brain is situated above the pituitary, and sends messages to the gland on when to release or stimulate production of necessary hormones. Read more at https://cushieblog.com/2016/12/31/the-pituitary-gland-small-but-mighty/


----- Pituitary Issues: Irregular Periods
By MaryO

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Q: I am 28 years old and I have not yet started my periods naturally. I have to take medicine for periods — Novelon. The doctors say thatthere is some problem with my hormones in the pituitary gland. Please advise me how to get normal and natural periods, because after taking the medicine I get my period, but without medicines I don’t. Read the answer at https://cushieblog.com/2017/02/01/pituitary-issues-irregular-periods/


----- Comment added to Annette S (Annette), Undiagnosed Bio
By MaryO

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...Those negative tests don't mean anything if she has many symptoms that warrant further searching. I have even less symptoms than the textbook ones and my highs are few in comparison to my normal ones but enough to raise an eyebrow... Read more at https://cushingsbios.com/2017/01/30/annette-s-annette-undiagnosed-bio/


----- Nancy (chance), Steroid-Induced Bio
By MaryO

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Nancy (chance) is from Olympia, Washington. She has Iatrogenic(steroid-induced) Cushing's due to being on steroids for 30 years. She also has Adrenal Insufficiency and a doctor told her to say she has Addison's. Read more at https://cushingsbios.com/2017/03/01/nancy-chance-steroid-induced-bio/


----- Day 1: Blogging with the Cushies, featuring Alicia and The EPIC Foundation
By MaryO

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Have you checked out The Epic Foundation? I encourage you to doso. Cushie comrade Karen has dreamed of starting this non-profit to help Cushing's patients and others with invisible diseases. In 2017, Karen debuted EPIC.  Read more at https://cushieblogger.com/2017/04/02/day-1-blogging-with-the-cushies-featuring-alicia-and-the-epic-foundation/


----- Cushing's Awareness Blogging Challenge
By MaryO

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I remember the moment I realized something wasn't right.  My mom was taking me to the mall, because none of my jeans fit me anymore.  She was talking about how she wished I would try to lose weight, because she has been overweight most of her life, and didn't want that for me.  But, I needed pants to wear to school, so I bought another size up.  I remember thinking, nothing has changed.  I didn't eat more, or less, I hadn't stopped any activities.  Maybe this was just my metabolism slowing down.  Read more at http://www.lifewithcushings.com/


----- A Faster Way to Diagnose Cushing’s Syndrome
By MaryO

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Diagnosing Cushing’s syndrome can take 24 hours of complicated and repeated analysis of blood and urine, brain imaging, and tissue samples from sinuses. But that may soon be in the past: National Institutes ofHealth (NIH) researchers have found that measuring cortisol levels in hair samples can do the same job faster. Read more at https://cushieblog.com/2017/04/01/a-faster-way-to-diagnose-cushings-syndrome/


----- Adrenocortical carcinoma masquerading as Cushing's disease
By MaryO

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30% of the patients with Cushing's Syndrome have ACTH levels inthe ‘grey zone’ (5–20 pg/mL), thereby posing a challenge in establishingthe aetiological diagnosis.  Read more at https://cushieblog.com/2017/04/01/adrenocortical-carcinoma-masquerading-as-cushings-disease/


----- Cushing's Awareness Challenge: It's Here!
By MaryO

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  Read the blog at https://cushieblogger.com


----- Interview with Mary O’Connor aka MaryO, Cushings-Help.com founder
By MaryO

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As part of this year’s Cushing’s Awareness Challenge, I’ve decided to share our Interview Series again since there was lots of great info in there... Interview with Mary O’Connor (MaryO), founder of Cushings-Help.com and 20-year pituitary Cushing’s Survivor. Robin (staticnrg) hosted. Read more at https://cushieblogger.com/2017/04/01/interview-with-mary-oconnor-aka-maryo-cushings-help-com-founder/


----- Cushing's Awareness Challenge: It's Here!
By MaryO

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  Read the blog at https://cushieblogger.com


----- Day 1: Blogging with the Cushies, featuring Alicia and The EPIC Foundation
By MaryO

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Have you checked out The Epic Foundation? I encourage you to doso. Cushie comrade Karen has dreamed of starting this non-profit to help Cushing's patients and others with invisible diseases. In 2017, Karen debuted EPIC.  Read more at https://cushieblogger.com/2017/04/02/day-1-blogging-with-the-cushies-featuring-alicia-and-the-epic-foundation/


----- Cushing's Awareness Videos and Pictures due Today
By MaryO

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Thank you for being willing to participate in giving a voice toCushing’s Disease in recognition of April 8th - Cushing’s Awareness Day! Read more at http://cushings-help.com/news.htm


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April 2017

Celebrating Today


(30) Joeykins
(56) jrtracing
(33) ErinS