Jump to content



Welcome to the Cushing's Help Boards

Welcome to the Cushing's Help Boards. Like most online communities you must register to view or post in our community. Don't worry - this is a simple free process that requires minimal information for you to signup.

Be a part of the Cushing's Help Boards by signing in or creating an account.
  • Start new topics and reply to others
  • Subscribe to topics and forums to get automatic updates
  • Search for past information from more than 10,000 members
  • Get your own profile and make new friends
  • Get a free blog and photo gallery
  • Customize your experience here
  • And much more...
Please join us!
Guest Message by DevFuse
 

Events for April 11, 2017

in Cushie Calendar

  • No permission to add events

----- The MAGIC Foundation’s Annual Adult Convention
By MaryO

Permalink
Lots of Cushies go to this meeting.  Dr. Theodore Friedman (Dr.F) will be one of the speakers. More information at http://cushings.invisionzone.com/index.php?/topic/54062-the-magic-foundation%E2%80%99s-annual-adult-convention/


----- Bravelets! 25% off the Amelia Bracelet through 7/24. Code: AMELIA25.
By MaryO

Permalink
$10 from every item sold on this page will be donated to help raise awareness for Cushing’s Disease through the work of the Cushings Helpfamily of websites. For over 16 years we have provided information, support, RSS feeds, news, and education for people with Cushing's or other endocrine problems, their friends and families. Cushing's syndrome is a hormonal disorder caused by prolonged exposure of the body's tissues to high levels of cortisol. Read more at https://www.bravelets.com/bravepage/cushing-s-help-and-support


----- Invisible Illness Awareness Week
By MaryO

Permalink
This week (September 26 – October 2) is Invisible Illness Awareness Week. Invisible illness is all around us. More than likely, you knowsomeone who is battling a battle every day. Help raise awareness for invisible illnesses by starting conversations. The more you talk about it, the more awareness can take place. The more awareness that takes place, thebetter our chances of finding a cure and coming to a better understandingof the needs of patients who feel alone in their battles.


----- Bravelets Sale through 10/3
By MaryO

Permalink
$10 from every item sold on this page will be donated to help raise awareness for Cushing’s Disease through the work of the Cushings Helpfamily of websites. For nearly 16 years we have provided information, support, RSS feeds, news, and education for people with Cushing's or other endocrine problems, their friends and families. Cushing's syndrome is ahormonal disorder caused by prolonged exposure of the body's tissues to high levels of cortisol. View all the items here: https://www.bravelets.com/bravepage/cushing-s-help-and-support


----- A New Cushie added to the Cushing's World Map
By MaryO

Permalink
  Add your location and diagnosis to our Cushing's World Map. Helpful Doctor locations are being added to this map, as well See the Map at http://www.zeemaps.com/pub?group=342449&legend=1&locate=1&add=1


----- Cushing's World Map
By MaryO

Permalink
  Add your location and diagnosis to our Cushing's World Map. Helpful Doctor locations are being added to this map, as well See the Map at http://www.zeemaps.com/pub?group=342449&legend=1&locate=1&add=1


----- Day 11, Cushing’s Awareness Challenge 2016
By MaryO

Permalink
So, where did all this blue and yellow come from, anyway? Theanswer is so easy and without any thought that it will amaze you! In Julyof 2000, I was talking with my dear friend Alice, who ran a wonderful menopause site, Power Surge. We wondering why there weren’t many support groups online (OR off!) for Cushing’s and I wondered if I could start one myself and we decided that maybe I could. Read more at https://cushieblog.com/2016/04/11/day-11-cushings-awareness-challenge-2016/


----- Day 11: Cushing’s Awareness Challenge 2017
By MaryO

Permalink
When Michael started having headache issues in middle school, I had him tested for Cushing's.  I had no idea yet if it could be familialbut I wasn't taking any chances.  It turned out that my father had also had some unnamed endocrine issues.  Hmmm... Read more at  https://cushieblogge...challenge-2017/


----- Testimonials
By MaryO

Permalink
Mary, without your efforts, many of us would be dead! I have 0 doubt of that. We have lost several along the way, but even so, because of you, they were able to connect with others and find support! It makes all the difference in the world. Read more at https://cushieblogger.com/testimonial/


----- Cushie MemberMap
By MaryO

Permalink
Add your own info (or your doctor's) to the Cushie MemberMap at http://www.zeemaps.com/pub?group=342449&legend=1&locate=1&add=1


----- Recruitment for Cushing's Syndrome Clinical Study
By MaryO

Permalink
This trial is testing the safety and effectiveness of a new investigational drug for the treatment of Cushing's Syndrome. Under the supervision of qualified physicians, cortisol levels and symptoms of Cushing’sSyndrome will be closely followed along with any signs of side effects. Learn more at http://curec.lk/1X0J6kT  


----- Cushing's Awareness Challenge - Day 4
By MaryO

Permalink
I have often said, I wish I had cancer instead.  Most people would not understand this sentiment, why in the world would you wish for such a horrible disease?     It is another common thread tying people with chronic illness together. If my disease was cancer, everyone would know what it was.  I wouldn't be questioned by my boss when I called in sick.  My friends and family would be more supportive.  My doctors wouldn't question my symptoms.   Maybe my life would be easier.   Read more at http://www.lifewithcushings.com/2017/04/cushings-awareness-challenge-day-4.html


----- Cushing’s is RARE”, “No one has Cushing’s!
By MaryO

Permalink
Myth: “Cushing’s is RARE”, “No one has Cushing’s!”, “It is literally impossible for you to have Cushing’s Disease!”   Fact... Read moreat https://cushieblogger.com/2017/04/04/cushings-is-rare-no-one-has-cushings/


----- The Cables1 Gene in Glucocorticoid Regulation of Pituitary Corticotrope Growth and Cushing Disease
By MaryO

Permalink
Cushing disease (CD) is due to pituitary corticotrope adenomas that produce unrestrained ACTH secretion and have lost the negative feedback exerted by glucocorticoids (GCs). Read more at https://cushieblog.com/2017/03/14/the-cables1-gene-in-glucocorticoid-regulation-of-pituitary-corticotrope-growth-and-cushing-disease/


----- Cushing's Awareness Challenge - Day 11
By MaryO

Permalink
There are a lot of expectations when you are finally treated orcured from Cushing's.  It can be harder than having Cushing's, or it might be a breeze.  Here's what I experienced after my BLA. Read more at http://www.lifewithcushings.com/2017/04/cushings-awareness-challenge-day-11.html


----- Cushing’s Diagnosis and Symptoms, part 2
By MaryO

Permalink
Listen as Robin Smith (staticnrg) and Mary O’Connor (MaryO) co-host Cushing’s message board members calling in to talk about their fight for diagnosis and treatment. The show will be opened with a brief explanation of what Cushing’s is and what the symptoms are. Listen at http://www.blogtalkradio.com/cushingshelp/2008/03/13/-cushings-diagnosis-and-symptoms-part-2


11
April 2017

Celebrating Today


(24) Shannonsmom
(44) Magritte
(26) Sabrina