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Events for April 12, 2017

in Cushie Calendar

  • No permission to add events

----- The MAGIC Foundation’s Annual Adult Convention
By MaryO

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Lots of Cushies go to this meeting.  Dr. Theodore Friedman (Dr.F) will be one of the speakers. More information at http://cushings.invisionzone.com/index.php?/topic/54062-the-magic-foundation%E2%80%99s-annual-adult-convention/


----- Bravelets! 25% off the Amelia Bracelet through 7/24. Code: AMELIA25.
By MaryO

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$10 from every item sold on this page will be donated to help raise awareness for Cushing’s Disease through the work of the Cushings Helpfamily of websites. For over 16 years we have provided information, support, RSS feeds, news, and education for people with Cushing's or other endocrine problems, their friends and families. Cushing's syndrome is a hormonal disorder caused by prolonged exposure of the body's tissues to high levels of cortisol. Read more at https://www.bravelets.com/bravepage/cushing-s-help-and-support


----- Invisible Illness Awareness Week
By MaryO

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This week (September 26 – October 2) is Invisible Illness Awareness Week. Invisible illness is all around us. More than likely, you knowsomeone who is battling a battle every day. Help raise awareness for invisible illnesses by starting conversations. The more you talk about it, the more awareness can take place. The more awareness that takes place, thebetter our chances of finding a cure and coming to a better understandingof the needs of patients who feel alone in their battles.


----- Bravelets Sale through 10/3
By MaryO

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$10 from every item sold on this page will be donated to help raise awareness for Cushing’s Disease through the work of the Cushings Helpfamily of websites. For nearly 16 years we have provided information, support, RSS feeds, news, and education for people with Cushing's or other endocrine problems, their friends and families. Cushing's syndrome is ahormonal disorder caused by prolonged exposure of the body's tissues to high levels of cortisol. View all the items here: https://www.bravelets.com/bravepage/cushing-s-help-and-support


----- Day 12, Cushing’s Awareness Challenge 2016
By MaryO

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As luck would have it, NIH (National Institutes of Health, Bethesda, Maryland) was doing a clinical trial of Cushing’s. I live in the same area as NIH so it was not too inconvenient but very scary at first tothink of being tested there. At that time I only had a choice of NIH, Mayo Clinic and a place in Quebec to do this then-rare pituitary surgery called a Transsphenoidal Resection. Read more at https://cushieblogger.com/2016/04/12/day-12-cushings-awareness-challenge-2016/


----- Day 12: Cushing’s Awareness Challenge 2017
By MaryO

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So, where did all this blue and yellow come from, anyway?  The answer is so easy and without any thought that it will amaze you Read more at https://cushieblogger.com/2017/04/12/day-12-cushings-awareness-challenge-2017/


----- Comment added to Lisa (Lisa), Undiagnosed Bio
By MaryO

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...Saw a neuro-endocrinologist and wifey just got the official Cushings diagnosis last week. She had all of the same sysmptoms for years and progressively getting worse... Read more at https://cushingsbios.com/2017/02/05/lisa-lisa-undiagnosed-bio/


----- Cushing's Awareness Challenge - Day 5
By MaryO

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Social media dominates most people's lives these days. You see what everyone you know is up to, but the problem is, most people only post about the highlights of their lives. You don't get to see the low points, the every day struggles. You don't see what keeps them up at night with worry. Read more at http://www.lifewithcushings.com/2017/04/cushings-awareness-challenge-day-5.html


----- Karen Nolan, Cyclic Cushing’s, part 2
By MaryO

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Karen’s disease started when she was a little girl (7) and she finally got a diagnosis in 2005. She had cycling Cushing’s, Thyroid disease, GH deficiency, and Auto immune Alopecia. She believes she is cured after two Pituitary surgeries. A doctor didn’t advise Vermont’s Karen Nolan(Rooon on the boards) that she might be one of the scant 3.5 per million people diagnosed annually with Cushing’s disease – another Cushing’s patient did.   Read more at https://cushieblogger.com/2017/04/12/karen-nolan-cyclic-cushings-part-2/


----- Cushing's Awareness Challenge - Day 12
By MaryO

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One of the most common symptoms of Cushing's is weight gain.  Some people only gain 30 pounds, some gain hundreds.  I always have a hardtime quantifying the exact amount I gained because I was a teenager, or even a young child when I first had Cushing's symptoms.  My best guess is about 150 pounds, only because that is close to what I've lost after treatment.   Read more at http://www.lifewithcushings.com/2017/04/cushings-awareness-challenge-day-12_12.html


----- Myth: “It is MY fault that I got Cushing’s. I did something wrong that caused me to be sick!
By MaryO

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Fact: This is a very controversial topic because we don’t like to talk about it. However, many people struggle with this myth. Read moreat https://cushieblogger.com/2017/04/12/myth-it-is-my-fault-that-i-got-cushings/


12
April 2017

Celebrating Today


(61) Barbara