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Events for April 13, 2017

in Cushie Calendar

  • No permission to add events

----- The MAGIC Foundation’s Annual Adult Convention
By MaryO

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Lots of Cushies go to this meeting.  Dr. Theodore Friedman (Dr.F) will be one of the speakers. More information at http://cushings.invisionzone.com/index.php?/topic/54062-the-magic-foundation%E2%80%99s-annual-adult-convention/


----- Bravelets! 25% off the Amelia Bracelet through 7/24. Code: AMELIA25.
By MaryO

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$10 from every item sold on this page will be donated to help raise awareness for Cushing’s Disease through the work of the Cushings Helpfamily of websites. For over 16 years we have provided information, support, RSS feeds, news, and education for people with Cushing's or other endocrine problems, their friends and families. Cushing's syndrome is a hormonal disorder caused by prolonged exposure of the body's tissues to high levels of cortisol. Read more at https://www.bravelets.com/bravepage/cushing-s-help-and-support


----- Invisible Illness Awareness Week
By MaryO

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This week (September 26 – October 2) is Invisible Illness Awareness Week. Invisible illness is all around us. More than likely, you knowsomeone who is battling a battle every day. Help raise awareness for invisible illnesses by starting conversations. The more you talk about it, the more awareness can take place. The more awareness that takes place, thebetter our chances of finding a cure and coming to a better understandingof the needs of patients who feel alone in their battles.


----- Bravelets Sale through 10/3
By MaryO

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$10 from every item sold on this page will be donated to help raise awareness for Cushing’s Disease through the work of the Cushings Helpfamily of websites. For nearly 16 years we have provided information, support, RSS feeds, news, and education for people with Cushing's or other endocrine problems, their friends and families. Cushing's syndrome is ahormonal disorder caused by prolonged exposure of the body's tissues to high levels of cortisol. View all the items here: https://www.bravelets.com/bravepage/cushing-s-help-and-support


----- Day 13, Cushing’s Awareness Challenge 2016
By MaryO

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In the fall of 2002 my endo refused to discuss my fatigue or anything at all with me until I lost 10 pounds. He said I wasn’t worth treating in my overweight condition and that I was setting myself up for a heart attack. He gave me 3 months to lose this weight. Those 3 months includedThanksgiving, Christmas and New Years.  Needless to say, I left his office in tears, again. Read more at https://cushieblogger.com/2016/04/13/day-13-cushings-awareness-challenge-2016/


----- Day 13: Cushing’s Awareness Challenge 2017
By MaryO

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As luck would have it, NIH (National Institutes of Health, Bethesda, Maryland) was doing a clinical trial of Cushing's. I live in the same area as NIH so it was not too inconvenient but very scary at first tothink of being tested there. At that time I only had a choice of NIH, Mayo Clinic and a place in Quebec to do this then-rare pituitary surgery called a Transsphenoidal Resection. Read more at https://cushieblogger.com/2017/04/13/day-13-cushings-awareness-challenge-2017/


----- Recruitment for Cushing's Syndrome Clinical Study
By MaryO

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This trial is testing the safety and effectiveness of a new investigational drug for the treatment of Cushing's Syndrome. Under the supervision of qualified physicians, cortisol levels and symptoms of Cushing’sSyndrome will be closely followed along with any signs of side effects. Learn more at http://curec.lk/1X0J6kT  


----- Endocrine Society issues new guidelines on hypopituitarism
By MaryO

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The Endocrine Society today (10/13/16) issued a Clinical Practice Guideline that recommends treating insufficient hormone levels in individuals with hypopituitarism by replacing hormones at levels as close to the body's natural patterns as possible. Read more at https://cushieblog.com/2016/10/15/endocrine-society-issues-new-guidelines-on-hypopituitarism/


----- Cushing's Syndrome mutant PKAL205R exhibits altered substrate specificity
By MaryO

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Through these results, we suggest that substrate rewiring may contribute to Cushing's Syndrome disease etiology, and introduce a powerful new paradigm for investigating mutation-induced kinase substrate rewiring in human disease. Read more at https://cushieblog.com/2016/12/15/cushings-syndrome-mutant-pkal205r-exhibits-altered-substrate-specificity/


----- Low Cortisol or an Adrenal Crisis
By MaryO

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Some are very sick and believe it can be treated at home, others are low on cortisol and believe they urgently need Emergency Departmenttreatments.  It can be very hard to tell the difference at times. Read more at https://cushieblog.com/2017/01/02/low-cortisol-or-an-adrenal-crisis-learning-the-difference/


----- April (April), undiagnosed bio (PCOS)
By MaryO

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(Golden Oldie)  April (April) is from Jacksonville, Florida. She is not yet diagnosed with Cushing's but has a PCOS diagnosis. Read moreat https://cushingsbios.com/2017/03/13/april-april-undiagnosed-bio-pcos/


----- Cushing's Awareness Challenge - Day 13
By MaryO

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I take medication every single day to stay alive.  At 24 years old, it was one of my main complaints after my BLA.  Of course, I had taken medicine before that, even taken medication every day before that, but my life didn't depend on it. Read more at http://www.lifewithcushings.com/2017/04/cushings-awareness-challenge-day-13.html


----- Interview with Monica and Crystal, Pituitary Buddies
By MaryO

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Monica was diagnosed with Cyclical Cushing’s. She had pituitarysurgery in November 2006. An 8mm encapsulated pituitary tumor was removed. Since there was no post-op crash, she also had a BLA in December 2006. Read more at https://cushieblogger.com/2017/04/13/interview-with-monica-and-crystal-pituitary-buddies/


13
April 2017

Celebrating Today


(52) TandA
(53) shona_magnum
(42) Lacy
(46) Shayla