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Events for April 16, 2017

in Cushie Calendar

  • No permission to add events

----- The MAGIC Foundation’s Annual Adult Convention
By MaryO

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Lots of Cushies go to this meeting.  Dr. Theodore Friedman (Dr.F) will be one of the speakers. More information at http://cushings.invisionzone.com/index.php?/topic/54062-the-magic-foundation%E2%80%99s-annual-adult-convention/


----- Bravelets! 25% off the Amelia Bracelet through 7/24. Code: AMELIA25.
By MaryO

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$10 from every item sold on this page will be donated to help raise awareness for Cushing’s Disease through the work of the Cushings Helpfamily of websites. For over 16 years we have provided information, support, RSS feeds, news, and education for people with Cushing's or other endocrine problems, their friends and families. Cushing's syndrome is a hormonal disorder caused by prolonged exposure of the body's tissues to high levels of cortisol. Read more at https://www.bravelets.com/bravepage/cushing-s-help-and-support


----- Invisible Illness Awareness Week
By MaryO

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This week (September 26 – October 2) is Invisible Illness Awareness Week. Invisible illness is all around us. More than likely, you knowsomeone who is battling a battle every day. Help raise awareness for invisible illnesses by starting conversations. The more you talk about it, the more awareness can take place. The more awareness that takes place, thebetter our chances of finding a cure and coming to a better understandingof the needs of patients who feel alone in their battles.


----- Bravelets Sale through 10/3
By MaryO

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$10 from every item sold on this page will be donated to help raise awareness for Cushing’s Disease through the work of the Cushings Helpfamily of websites. For nearly 16 years we have provided information, support, RSS feeds, news, and education for people with Cushing's or other endocrine problems, their friends and families. Cushing's syndrome is ahormonal disorder caused by prolonged exposure of the body's tissues to high levels of cortisol. View all the items here: https://www.bravelets.com/bravepage/cushing-s-help-and-support


----- Help Yourself, Part 3
By MaryO

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Good general info for anyone, no matter what symptoms or disease you may have. Read more at http://www.cushings-info.com/index.php?title=Help_Yourself,_Part_3


----- Add or update Your Bio
By MaryO

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The Add Your Bio form has been updated so that it no longer requires Flash. Your information will help others. I would like to add that if anyone would like to do something for the Cushing's Awareness Challenge but you don't have (or want to have) a blog, why not consider adding yourbio to the website this month? More info at http://www.cushings-help.com/forms/bio.htm


----- Day 16, Cushing’s Awareness Challenge 2016
By MaryO

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I used to carry a print out of this everywhere I go because I find it very soothing.  This print out was in a plastic page saver. On the other side there is a Psalm 116, part of the post from Day Nineteen of the 2015 Cushing's Challenge.  These days, both these readings are available on my phone. Read more at https://cushieblog.com/2016/04/16/day-16-cushings-awareness-challenge-2016/


----- Day 16: Cushing’s Awareness Challenge 2017
By MaryO

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After I was finished with the Cushing's long diagnostic process, surgery and several post-op visits to NIH, I was asked to give the scripture reading at my church. The man who preached the sermon that week wasthe survivor of a horrific accident where he and his family were hit by avan while waiting at an airport. Read more at https://cushieblogger.com/2017/04/16/day-16-cushings-awareness-challenge-2017/


----- Another Cushie Blogger
By MaryO

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Danielle has joined the Cushings Awareness Challenge!   Read her blog at http://www.lifewithcushings.com/


----- Cushing's Awareness Challenge - Day 2
By MaryO

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... me, it is not about giving all the dirty details.  It's about raising awareness, providing support to others with chronic illness,so they know they are not alone.  It's about the person reading this blog, that thinks they might have Cushing's, who might get help a little sooner than they would have without reading my story.  It's for friends and family, so they know what's going on in my life, with my health, withoutme having to tell the story over and over again... Read more at https://cushieblogger.com/2017/04/02/cushings-awareness-challenge-day-2/


----- Interview with Terry G, pituitary patient
By MaryO

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Terry (Terry) is a long time pituitary Cushing’s survivor. Terry had a pituitary surgery (in LA) in October of 2003 which did not cure her Cushing’s Disease. Then, Dec 13th, 2003 she had her BLA in a Wisconsinhospital. She also had an infection in her sphenoid sinus. It originated at the site of her pituitary surgery from October 2003. She had to be on alot of antibiotics and narcotic pain relievers. In Sept 2005 the surgeon remove the infection from one area, making another area clear….. Listen at http://www.blogtalkradio.com/cushingshelp/2008/04/17/interview-with-terry-g-pituitary-patient


----- Myth: UFC’s are the Gold Standard for Cushing’s testing
By MaryO

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Fact: UFC stands for Urinary Free Cortisol. In layman’s terms this test assesses cortisol by collecting urine for 24 hours. It was once thought that this was the gold standard and the end all and be all in termsof assessing Cushing’s in a patient. What we now know is that this is notnecessarily true... Read more at https://cushieblogge...hings-testing/ 


16
April 2017

Celebrating Today


(35) mirage
(52) Annr
(52) mrsb91986
(36) jillianjakes
(38) tealou