Jump to content



Welcome to the Cushing's Help Boards

Welcome to the Cushing's Help Boards. Like most online communities you must register to view or post in our community. Don't worry - this is a simple free process that requires minimal information for you to signup.

Be a part of the Cushing's Help Boards by signing in or creating an account.
  • Start new topics and reply to others
  • Subscribe to topics and forums to get automatic updates
  • Search for past information from more than 10,000 members
  • Get your own profile and make new friends
  • Get a free blog and photo gallery
  • Customize your experience here
  • And much more...
Please join us!
Guest Message by DevFuse
 

Events for April 18, 2017

in Cushie Calendar

  • No permission to add events

----- The MAGIC Foundation’s Annual Adult Convention
By MaryO

Permalink
Lots of Cushies go to this meeting.  Dr. Theodore Friedman (Dr.F) will be one of the speakers. More information at http://cushings.invisionzone.com/index.php?/topic/54062-the-magic-foundation%E2%80%99s-annual-adult-convention/


----- Bravelets! 25% off the Amelia Bracelet through 7/24. Code: AMELIA25.
By MaryO

Permalink
$10 from every item sold on this page will be donated to help raise awareness for Cushing’s Disease through the work of the Cushings Helpfamily of websites. For over 16 years we have provided information, support, RSS feeds, news, and education for people with Cushing's or other endocrine problems, their friends and families. Cushing's syndrome is a hormonal disorder caused by prolonged exposure of the body's tissues to high levels of cortisol. Read more at https://www.bravelets.com/bravepage/cushing-s-help-and-support


----- Invisible Illness Awareness Week
By MaryO

Permalink
This week (September 26 – October 2) is Invisible Illness Awareness Week. Invisible illness is all around us. More than likely, you knowsomeone who is battling a battle every day. Help raise awareness for invisible illnesses by starting conversations. The more you talk about it, the more awareness can take place. The more awareness that takes place, thebetter our chances of finding a cure and coming to a better understandingof the needs of patients who feel alone in their battles.


----- Bravelets Sale through 10/3
By MaryO

Permalink
$10 from every item sold on this page will be donated to help raise awareness for Cushing’s Disease through the work of the Cushings Helpfamily of websites. For nearly 16 years we have provided information, support, RSS feeds, news, and education for people with Cushing's or other endocrine problems, their friends and families. Cushing's syndrome is ahormonal disorder caused by prolonged exposure of the body's tissues to high levels of cortisol. View all the items here: https://www.bravelets.com/bravepage/cushing-s-help-and-support


----- A New Cushie added to the Cushing's World Map
By MaryO

Permalink
  Add your location and diagnosis to our Cushing's World Map. Helpful Doctor locations are being added to this map, as well See the Map at http://www.zeemaps.com/pub?group=342449&legend=1&locate=1&add=1


----- Cushing's World Map
By MaryO

Permalink
  Add your location and diagnosis to our Cushing's World Map. Helpful Doctor locations are being added to this map, as well See the Map at http://www.zeemaps.com/pub?group=342449&legend=1&locate=1&add=1


----- In Memory: Diane
By MaryO

Permalink
I am not sure of the exact date but this was originally posted April 18, 2008... My name is Amy and my very best friend just passed awayfrom an adrenal crisis. Diane was unaware that she had any adrenal issue.Read more at https://cushingsbios.com/2015/04/18/in-memory-diane/


----- Day 18, Cushing’s Awareness Challenge 2016
By MaryO

Permalink
I have seen this image several places online and it never ceases to crack me up. Sometimes, we really have strange things going on inside our bodies. Read more at https://cushieblogger.com/2016/04/18/day-18-cushings-awareness-challenge-2016/


----- Day 18: Cushing’s Awareness Challenge 2017
By MaryO

Permalink
In case you haven’t guessed it, my cause seems to be Cushing'sAwareness.  I never really decided to devote a good portion of my life toCushing's, it just fell into my lap, so to speak – or my laptop.. Read more at https://cushieblogger.com/2017/04/18/day-18-cushings-awareness-challenge-2017/


----- Stay Safe - Adrenal Crisis!
By MaryO

Permalink
If left untreated, adrenal insufficiency can cause serious illness or death. But by working with their doctors and nurses, patients canlearn how to manage this condition.   Learn more at http://www.cushings-info.com/index.php?title=Adrenal_Crisis!


----- Recruitment for Cushing's Syndrome Clinical Study
By MaryO

Permalink
This trial is testing the safety and effectiveness of a new investigational drug for the treatment of Cushing's Syndrome. Under the supervision of qualified physicians, cortisol levels and symptoms of Cushing’sSyndrome will be closely followed along with any signs of side effects. Learn more at http://curec.lk/1X0J6kT  


----- Adrenal Insufficiency: Primary and Secondary
By MaryO

Permalink
Adrenal insufficiency is a condition that develops when most ofthe adrenal gland is not functioning normally. Primary adrenal insufficiency arises due to the damage of the glands or because of using drugs that halt synthesis of cortisol. On the other hand, secondary adrenal insufficiency stems from processes that inhibit the secretion of the adrenocorticotropic hormone (ACTH) by the hypophysis as a result of a hypothalamic or pituitary pathology. The former is sometimes also referred to as tertiary adrenal insufficiency. Read more at https://cushieblog.com/2016/11/20/adrenal-insufficiency-primary-and-secondary/


----- Bilateral testicular tumors resulting in recurrent Cushing’s syndrome after bilateral adrenalectomy
By MaryO

Permalink
Recurrence of hypercortisolism in patients after bilateral adrenalectomy for Cushing’s disease is extremely rare. Read more at https://cushieblog.com/2016/12/21/bilateral-testicular-tumors-resulting-in-recurrent-cushings-syndrome-after-bilateral-adrenalectomy/


----- Mandy, Undiagnosed Bio
By MaryO

Permalink
(Golden Oldie) Mandy is from Southend on Sea, England.  She had several diagnoses and had seen a vast array of medical personnel.  She was diagnosed with PCOS but not yet with Cushing's. Read more at https://cushingsbios.com/2017/02/18/mandy-undiagnosed-bio/


----- Cushing's Awareness Challenge - Day 4
By MaryO

Permalink
I have often said, I wish I had cancer instead.  Most people would not understand this sentiment, why in the world would you wish for such a horrible disease?     It is another common thread tying people with chronic illness together. If my disease was cancer, everyone would know what it was.  I wouldn't be questioned by my boss when I called in sick.  My friends and family would be more supportive.  My doctors wouldn't question my symptoms.   Maybe my life would be easier.   Read more at http://www.lifewithcushings.com/2017/04/cushings-awareness-challenge-day-4.html


----- Cushing’s is RARE”, “No one has Cushing’s!
By MaryO

Permalink
Myth: “Cushing’s is RARE”, “No one has Cushing’s!”, “It is literally impossible for you to have Cushing’s Disease!”   Fact... Read moreat https://cushieblogger.com/2017/04/04/cushings-is-rare-no-one-has-cushings/


----- A New Newspaper Article on Jordy
By MaryO

Permalink
Mr Cernik suffers from ultra-rare Cushing's syndrome which causes high levels of the hormone Cortisol - a steroid that regulates the metabolism and immune system. Read more at https://cushingsbios.com/2017/04/18/a-new-newspaper-article-on-jordy/


----- Comment added to Rachel, Undiagnosed Bio
By MaryO

Permalink
...The fatigue is a nightmare I don’t even think the word fatigue does what happens justice. My fatigue ( I call it Zombie status) has been assisted with helping out my adrenal glands, because I know at the very least I have an issue due to testing... Read more at https://cushingsbios.com/2017/04/03/rachel-undiagnosed-bio/


----- Myth: “Men1 and Men2 are the only genetic causes of Cushing’s”
By MaryO

Permalink
This is a Myth. More current research has explored multiple etiologies of Cushing’s. It was once thought that heredity had no influence on the development of Cushing’s Syndrome/Disease and our knowledge was oncelimited in this sense. Read more at https://cushieblogger.com/2017/04/18/myth-men1-and-men2-are-the-only-genetic-causes-of-cushings/


----- Cushing's Awareness Challenge - Day 18
By MaryO

Permalink
What should you do if you think you have Cushing's? 1.  Click the 3 lines you see in the upper right corner, scroll down about halfway,and take a look at some of those helpful websites.  Those sites are what got me to the right endocrinologist, and helped me through the testing phase... Read more at http://www.lifewithcushings.com/2017/04/cushings-awareness-challenge-day-18.html


----- Interview with Monica, pituitary survivor
By MaryO

Permalink
Listen as Monica (Monicaroni) talks about the challenges she’s faced maintaining her music career while in testing and treatment. Monica was diagnosed with Cyclical Cushing’s. She had pituitary surgery in November 2006. An 8mm encapsulated pituitary tumor was removed. Since there was no post-op crash, she also had a BLA in December 2006. Listen at http://www.blogtalkradio.com/cushingshelp/2008/05/02/interview-with-monica-pituitary-survivor


18
April 2017

Celebrating Today


(57) dinac
(??) Prangelina