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Events for April 20, 2017

in Cushie Calendar

  • No permission to add events

----- John Desmond Bernal was born in 1901
By MaryO

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(1901) One of the UK’s most well-known and controversial scientists, John Desmond Bernal, was born. He worked and published extensivelyon many science topics, including vitamin D, vitamin B, cholesterol, and the origin of life.


----- The MAGIC Foundation’s Annual Adult Convention
By MaryO

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Lots of Cushies go to this meeting.  Dr. Theodore Friedman (Dr.F) will be one of the speakers. More information at http://cushings.invisionzone.com/index.php?/topic/54062-the-magic-foundation%E2%80%99s-annual-adult-convention/


----- Bravelets! 25% off the Amelia Bracelet through 7/24. Code: AMELIA25.
By MaryO

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$10 from every item sold on this page will be donated to help raise awareness for Cushing’s Disease through the work of the Cushings Helpfamily of websites. For over 16 years we have provided information, support, RSS feeds, news, and education for people with Cushing's or other endocrine problems, their friends and families. Cushing's syndrome is a hormonal disorder caused by prolonged exposure of the body's tissues to high levels of cortisol. Read more at https://www.bravelets.com/bravepage/cushing-s-help-and-support


----- Invisible Illness Awareness Week
By MaryO

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This week (September 26 – October 2) is Invisible Illness Awareness Week. Invisible illness is all around us. More than likely, you knowsomeone who is battling a battle every day. Help raise awareness for invisible illnesses by starting conversations. The more you talk about it, the more awareness can take place. The more awareness that takes place, thebetter our chances of finding a cure and coming to a better understandingof the needs of patients who feel alone in their battles.


----- Bravelets Sale through 10/3
By MaryO

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$10 from every item sold on this page will be donated to help raise awareness for Cushing’s Disease through the work of the Cushings Helpfamily of websites. For nearly 16 years we have provided information, support, RSS feeds, news, and education for people with Cushing's or other endocrine problems, their friends and families. Cushing's syndrome is ahormonal disorder caused by prolonged exposure of the body's tissues to high levels of cortisol. View all the items here: https://www.bravelets.com/bravepage/cushing-s-help-and-support


----- Day 20, Cushing’s Awareness Challenge 2016
By MaryO

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I had found out that I had my kidney cancer on Friday, April 28, 2006 and my surgery on May 9, 2006.  I was supposed to go on a CushieCruise to Bermuda on May 14, 2006.  My surgeon said that there was no way I could go on that cruise and I could not postpone my surgery until after that cruise. Read more at https://cushieblog.com/2016/04/20/day-20-cushings-awareness-challenge-2016/


----- Day 20: Cushing’s Awareness Challenge 2017
By MaryO

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So, these are only seven of the many, many symptoms of Cushing's. I had those above – and I often felt like I looked like one of those little bearded dwarves. Cushing's affects every part of the body. It’s notlike when I had kidney cancer and only the kidney was affected. Read moreat https://cushieblogger.com/2017/04/20/day-20-cushings-awareness-challenge-2017/


----- Recruitment for Cushing's Syndrome Clinical Study
By MaryO

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This trial is testing the safety and effectiveness of a new investigational drug for the treatment of Cushing's Syndrome. Under the supervision of qualified physicians, cortisol levels and symptoms of Cushing’sSyndrome will be closely followed along with any signs of side effects. Learn more at http://curec.lk/1X0J6kT  


----- Endocrine Society issues new guidelines on hypopituitarism
By MaryO

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The Endocrine Society today (10/13/16) issued a Clinical Practice Guideline that recommends treating insufficient hormone levels in individuals with hypopituitarism by replacing hormones at levels as close to the body's natural patterns as possible. Read more at https://cushieblog.com/2016/10/15/endocrine-society-issues-new-guidelines-on-hypopituitarism/


----- Cushing's Syndrome mutant PKAL205R exhibits altered substrate specificity
By MaryO

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Through these results, we suggest that substrate rewiring may contribute to Cushing's Syndrome disease etiology, and introduce a powerful new paradigm for investigating mutation-induced kinase substrate rewiring in human disease. Read more at https://cushieblog.com/2016/12/15/cushings-syndrome-mutant-pkal205r-exhibits-altered-substrate-specificity/


----- New Testimonial from Susan (SDSather)
By MaryO

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You have provided an invaluable service to many, many people with Cushing's and other Cushing's-like diseases and syndromes... ...You have been a pioneer in this field and you created an avenue for people to find information, when it was often withheld by the medical profession as proprietary. Thank you so much for all you have done. Read more at https://cushieblogger.com/testimonial/susan-sdsather/


----- Comment added to “Kathleen (ForegoneLegacy), Pituitary Bio”
By MaryO

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thank you so much for sharing your journey through your surgery! How are you feeling now? Read more at https://cushingsbios.com/2017/02/06/kathleen-foregonelegacy-pituitary-bio/


----- Myth: “All Cushing’s patients have the exact same symptoms...
By MaryO

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Fact: Everyone does NOT have the exact same symptoms. Not all Cushing’s patients are exactly the same. This is one mistake that non experts tend to make in terms of categorizing patients by whether they meet theexact same classic symptoms or not...  Read more at https://cushieblogger.com/2017/04/20/myth-all-cushings-patients-have-the-exact-same-symptoms/


----- Cushing's Awareness Challenge - Day 20
By MaryO

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Many people with Cushing's do not have a supportive primary care physician.  They either don't believe their symptoms, or won't refer them to a specialist. I was fortunate enough to never have a problem with mine.  Although she didn't know much about Cushing's, she was willing to refer me to multiple endocrinologists. I have been going to the same practice since I was born, and now, due to insurance issues, I will have to switch. Read more at http://www.lifewithcushings.com/2017/04/cushings-awareness-challenge-day-20.html


----- Interview with Jackie (samsmom) & Jordan
By MaryO

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Jackie (samsmom) & Jordan: Cushing’s in young people, the fight to diagnose, the amazing gift of a GOOD endocrinologist. Jackie has appeared on Discovery Health discussing her fight for a cure for her younger daughter, as well. Later, the gene responsible for Sam’s illness was found. Her father carried the gene as did her two sisters. Jordan, Jackie’s oldest daughter, has recently had her adrenals removed. Listen at http://www.blogtalkradio.com/cushingshelp/2008/05/15/interview-with-jackie-samsmon-jordan


20
April 2017

Celebrating Today


(46) sowens
(51) mainegal
(40) brapps