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Events for April 22, 2017

in Cushie Calendar

  • No permission to add events

----- The MAGIC Foundation’s Annual Adult Convention
By MaryO

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Lots of Cushies go to this meeting.  Dr. Theodore Friedman (Dr.F) will be one of the speakers. More information at http://cushings.invisionzone.com/index.php?/topic/54062-the-magic-foundation%E2%80%99s-annual-adult-convention/


----- Bravelets! 25% off the Amelia Bracelet through 7/24. Code: AMELIA25.
By MaryO

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$10 from every item sold on this page will be donated to help raise awareness for Cushing’s Disease through the work of the Cushings Helpfamily of websites. For over 16 years we have provided information, support, RSS feeds, news, and education for people with Cushing's or other endocrine problems, their friends and families. Cushing's syndrome is a hormonal disorder caused by prolonged exposure of the body's tissues to high levels of cortisol. Read more at https://www.bravelets.com/bravepage/cushing-s-help-and-support


----- Invisible Illness Awareness Week
By MaryO

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This week (September 26 – October 2) is Invisible Illness Awareness Week. Invisible illness is all around us. More than likely, you knowsomeone who is battling a battle every day. Help raise awareness for invisible illnesses by starting conversations. The more you talk about it, the more awareness can take place. The more awareness that takes place, thebetter our chances of finding a cure and coming to a better understandingof the needs of patients who feel alone in their battles.


----- Bravelets Sale through 10/3
By MaryO

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$10 from every item sold on this page will be donated to help raise awareness for Cushing’s Disease through the work of the Cushings Helpfamily of websites. For nearly 16 years we have provided information, support, RSS feeds, news, and education for people with Cushing's or other endocrine problems, their friends and families. Cushing's syndrome is ahormonal disorder caused by prolonged exposure of the body's tissues to high levels of cortisol. View all the items here: https://www.bravelets.com/bravepage/cushing-s-help-and-support


----- Pituitary Hormones
By MaryO

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http://www.cushings-...uitary_Hormones


----- Cushing's Glossary
By MaryO

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Getting a diagnosis and dealing with tests can be a very tryingtime. Here are some words you'll want to know. Find them at http://www.cushings-help.com/definitions.htm


----- Day 22, Cushing’s Awareness Challenge 2016
By MaryO

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This is a tough one.  Sometimes I’m in “why me” mode.  Why Cushing’s?  Why cancer?  Unfortunately, there’s not a thing I can do about either.  Cushing’s, who knows the risk factors?  For kidney cancer I found out the risk factors and nearly none apply to me. So why? But why not?  Noparticular reason why I should be exempt from anything. Read more at https://cushieblogger.com/2016/04/22/


----- Day 22: Cushing’s Awareness Challenge 2017
By MaryO

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Today’s Cushing's Awareness Challenge post is about kidney cancer (renal cell carcinoma). You might wonder how in the world this is related to Cushing's. I think it is, either directly or indirectly. Read more at https://cushieblogger.com/2017/04/22/day-22-cushings-awareness-challenge-2017/


----- The Pituitary Gland: Small But Mighty
By MaryO

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Not only does the pituitary make its own hormones, but it alsotriggers hormone production in other glands. The pituitary is aided in its job by the hypothalamus. This part of the brain is situated above the pituitary, and sends messages to the gland on when to release or stimulate production of necessary hormones. Read more at https://cushieblog.com/2016/12/31/the-pituitary-gland-small-but-mighty/


----- Suspecting Pituitary Disorders: “What's Next?”
By MaryO

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In this '3 in 3' video, Ji Hyun (CJ) Chun, PA-C, BC-ADM, covers 3 types of pituitary disorders and describes useful workups for use by primary care clinicians. Read more at https://cushieblog.com/2017/03/22/suspecting-pituitary-disorders-whats-next/


----- Day 1: Blogging with the Cushies, featuring Alicia and The EPIC Foundation
By MaryO

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Have you checked out The Epic Foundation? I encourage you to doso. Cushie comrade Karen has dreamed of starting this non-profit to help Cushing's patients and others with invisible diseases. In 2017, Karen debuted EPIC.  Read more at https://cushieblogger.com/2017/04/02/day-1-blogging-with-the-cushies-featuring-alicia-and-the-epic-foundation/


----- Cushing's Awareness Blogging Challenge
By MaryO

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I remember the moment I realized something wasn't right.  My mom was taking me to the mall, because none of my jeans fit me anymore.  She was talking about how she wished I would try to lose weight, because she has been overweight most of her life, and didn't want that for me.  But, I needed pants to wear to school, so I bought another size up.  I remember thinking, nothing has changed.  I didn't eat more, or less, I hadn't stopped any activities.  Maybe this was just my metabolism slowing down.  Read more at http://www.lifewithcushings.com/


----- Steve Owens (sowens) returns to talk about support networks and agencies
By MaryO

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Steve Owens (sowens) returned on May 29, 7:30. His topic was building up support networks and using available agencies to get back to work (rehab, PT/OT, job coaches, etc)... Listen at http://www.blogtalkradio.com/cushingshelp/2008/05/29/steve-owens-sowens-returns-to-talk-about-support-networks-and-agencies


----- Cushing's Awareness Challenge - Day 22
By MaryO

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Steroids are my BFFs, but at the same time, they are the enemy.  When I had Cushing's, steroids, whether produced from your body or taken in pill form, were the absolute worst.  Now, my life depends on them.  It's a hard switch to flip, and years later, still finding myself battling the need to hate them.   I hate taking medication daily. I hate bringing pill bottles, needles, and vials filled with steroids everywhere Igo. Read more at http://www.lifewithcushings.com/2017/04/cushings-awareness-challenge-day-22.html


----- Comment added to “Kristin T, Undiagnosed Bio”
By MaryO

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... I have every single symptom of Cushing’s, and I believe itis cyclical and has been happening for about 26 years. It will be what kills me, I fear. Of course, it will be deemed because of obesity and health issues related to it. It is frustrating that doctors just think-it’s sorare, this cannot be what’s wrong. I think it is rarely diagnosed because it us hard to get the tests to give the accurate information. I do not think they will ever diagnose me... Read more at http://wp.me/p3tb2N-r0


----- Myth: “Each Person Requires the Same Dose of Steroid in Order to Survive…
By MaryO

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Fact: In simple terms, Adrenal Insufficiency occurs when the body does not have enough cortisol in it. You see, cortisol is life sustaining and we actually do need cortisol to survive. You have probably seen the commercials about “getting rid of extra belly fat” by lowering your cortisol. These advertisements make it hard for people to actually understandthe importance of the function of cortisol.... Read more at https://cushieblogger.com/2017/04/22/myth-each-person-requires-the-same-dose-of-steroid-in-order-to-survive/


22
April 2017

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