Jump to content



Welcome to the Cushing's Help Boards

Welcome to the Cushing's Help Boards. Like most online communities you must register to view or post in our community. Don't worry - this is a simple free process that requires minimal information for you to signup.

Be a part of the Cushing's Help Boards by signing in or creating an account.
  • Start new topics and reply to others
  • Subscribe to topics and forums to get automatic updates
  • Search for past information from more than 10,000 members
  • Get your own profile and make new friends
  • Get a free blog and photo gallery
  • Customize your experience here
  • And much more...
Please join us!
Guest Message by DevFuse
 

Events for April 06, 2017

in Cushie Calendar

  • No permission to add events

----- The MAGIC Foundation’s Annual Adult Convention
By MaryO

Permalink
Lots of Cushies go to this meeting.  Dr. Theodore Friedman (Dr.F) will be one of the speakers. More information at http://cushings.invisionzone.com/index.php?/topic/54062-the-magic-foundation%E2%80%99s-annual-adult-convention/


----- Bravelets! 25% off the Amelia Bracelet through 7/24. Code: AMELIA25.
By MaryO

Permalink
$10 from every item sold on this page will be donated to help raise awareness for Cushing’s Disease through the work of the Cushings Helpfamily of websites. For over 16 years we have provided information, support, RSS feeds, news, and education for people with Cushing's or other endocrine problems, their friends and families. Cushing's syndrome is a hormonal disorder caused by prolonged exposure of the body's tissues to high levels of cortisol. Read more at https://www.bravelets.com/bravepage/cushing-s-help-and-support


----- Invisible Illness Awareness Week
By MaryO

Permalink
This week (September 26 – October 2) is Invisible Illness Awareness Week. Invisible illness is all around us. More than likely, you knowsomeone who is battling a battle every day. Help raise awareness for invisible illnesses by starting conversations. The more you talk about it, the more awareness can take place. The more awareness that takes place, thebetter our chances of finding a cure and coming to a better understandingof the needs of patients who feel alone in their battles.


----- Bravelets Sale through 10/3
By MaryO

Permalink
$10 from every item sold on this page will be donated to help raise awareness for Cushing’s Disease through the work of the Cushings Helpfamily of websites. For nearly 16 years we have provided information, support, RSS feeds, news, and education for people with Cushing's or other endocrine problems, their friends and families. Cushing's syndrome is ahormonal disorder caused by prolonged exposure of the body's tissues to high levels of cortisol. View all the items here: https://www.bravelets.com/bravepage/cushing-s-help-and-support


----- Personal Stories - MaryO
By MaryO

Permalink
Life changed for me in 1983. At first I noticed I'd stopped having my periods and, of course, I thought I was pregnant. I went to my Gynecologist who had no explanation. Lots of women lose their periods for a variety of reasons so no one thought that this was really significant. Then I got really tired, overly tired. I would take my son to a half hour Choir rehearsal and could not stay awake for the whole time. I would lie down in the back of the van, set an alarm and sleep for the 30 minutes. Readmore at http://www.cushings-info.com/index.php?title=Personal_Stories_-_MaryO


----- Day 6: Cushing’s Awareness Challenge 2016
By MaryO

Permalink
The above is the official Cushing’s path to a diagnosis but here’s how it seems to be in real life... Read more at https://cushieblog.com/2016/04/06/day-6-cushings-awareness-challenge-2016/


----- Recruitment for Cushing's Syndrome Clinical Study
By MaryO

Permalink
This trial is testing the safety and effectiveness of a new investigational drug for the treatment of Cushing's Syndrome. Under the supervision of qualified physicians, cortisol levels and symptoms of Cushing’sSyndrome will be closely followed along with any signs of side effects. Learn more at http://curec.lk/1X0J6kT  


----- Endocrine Society issues new guidelines on hypopituitarism
By MaryO

Permalink
The Endocrine Society today (10/13/16) issued a Clinical Practice Guideline that recommends treating insufficient hormone levels in individuals with hypopituitarism by replacing hormones at levels as close to the body's natural patterns as possible. Read more at https://cushieblog.com/2016/10/15/endocrine-society-issues-new-guidelines-on-hypopituitarism/


----- Cushing's Syndrome mutant PKAL205R exhibits altered substrate specificity
By MaryO

Permalink
Through these results, we suggest that substrate rewiring may contribute to Cushing's Syndrome disease etiology, and introduce a powerful new paradigm for investigating mutation-induced kinase substrate rewiring in human disease. Read more at https://cushieblog.com/2016/12/15/cushings-syndrome-mutant-pkal205r-exhibits-altered-substrate-specificity/


----- 8 Things You Should Know About Addison's Disease
By MaryO

Permalink
Addison's disease refers to an autoimmune disorder in which your body attacks and destroys your adrenal glands.  Read more at https://cushieblog.com/2017/02/06/8-things-you-should-know-about-addisons-disease/


----- Some Lifestyle Tips for Cushing’s Syndrome
By MaryO

Permalink
There are some ideas in the post below and some at http://www.cushings-info.com/index.php?title=Help_Yourself,_Part_1 (and also parts 2 and 3!) Do you have any other helpful tips for the New Year? Read more at http://wp.me/p3t4Te-Ma


----- Some Lifestyle Tips for Cushing’s Syndrome
By MaryO

Permalink
There are some ideas in the post below and some at http://www.cushings-info.com/index.php?title=Help_Yourself,_Part_1 (and also parts 2 and 3!) Do you have any other helpful tips for the New Year? Read more at https://cushieblog.com/2017/01/02/some-lifestyle-tips-for-cushings-syndrome/


----- Kathleen (ForegoneLegacy), Pituitary Bio
By MaryO

Permalink
(Golden Oldie)  Kathleen (ForegoneLegacy) is from Chambersburg, PA. She had two pituitary tumors removed 8/22/08 and she's still not feeling any better. Over the last 10 years she has been Cushing's, Lyme, lupus, endometriosis, sinus tachycardia, fibromyalgia, arthritis and asthma. Read more at https://cushingsbios.com/2017/02/06/kathleen-foregonelegacy-pituitary-bio/


----- New Testimonial from Jayne
By MaryO

Permalink
I am hoping that a solution can be found to keep this website open. It has so much knowledge for so many undiagnosed cushies and holds too many memories for me. No where else can I look to find 'In Memory' for all the cushie friends I've met and known for so many years... You have touched so many thousands of peoples lives with this site. Read more at https://cushieblogger.com/testimonial/jayne/


----- A Stunning Woman Reveals The Devastating Secret Behind Her Weight Gain
By MaryO

Permalink
Vicki P first noticed she was gaining weight back in October 2015.  She has had two pituitary surgeries since then. Read more at https://cushingsbios.com/2017/03/06/a-stunning-woman-reveals-the-devastating-secret-behind-her-weight-gain/


6
April 2017

Celebrating Today


(49) robing
(46) Cate2
(51) Sazzle