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Events for May 18, 2017

in Cushie Calendar

  • No permission to add events

----- The MAGIC Foundation’s Annual Adult Convention
By MaryO

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Lots of Cushies go to this meeting.  Dr. Theodore Friedman (Dr.F) will be one of the speakers. More information at http://cushings.invisionzone.com/index.php?/topic/54062-the-magic-foundation%E2%80%99s-annual-adult-convention/


----- Bravelets! 25% off the Amelia Bracelet through 7/24. Code: AMELIA25.
By MaryO

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$10 from every item sold on this page will be donated to help raise awareness for Cushing’s Disease through the work of the Cushings Helpfamily of websites. For over 16 years we have provided information, support, RSS feeds, news, and education for people with Cushing's or other endocrine problems, their friends and families. Cushing's syndrome is a hormonal disorder caused by prolonged exposure of the body's tissues to high levels of cortisol. Read more at https://www.bravelets.com/bravepage/cushing-s-help-and-support


----- Invisible Illness Awareness Week
By MaryO

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This week (September 26 – October 2) is Invisible Illness Awareness Week. Invisible illness is all around us. More than likely, you knowsomeone who is battling a battle every day. Help raise awareness for invisible illnesses by starting conversations. The more you talk about it, the more awareness can take place. The more awareness that takes place, thebetter our chances of finding a cure and coming to a better understandingof the needs of patients who feel alone in their battles.


----- Bravelets Sale through 10/3
By MaryO

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$10 from every item sold on this page will be donated to help raise awareness for Cushing’s Disease through the work of the Cushings Helpfamily of websites. For nearly 16 years we have provided information, support, RSS feeds, news, and education for people with Cushing's or other endocrine problems, their friends and families. Cushing's syndrome is ahormonal disorder caused by prolonged exposure of the body's tissues to high levels of cortisol. View all the items here: https://www.bravelets.com/bravepage/cushing-s-help-and-support


----- Stay Safe - Adrenal Crisis!
By MaryO

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If left untreated, adrenal insufficiency can cause serious illness or death. But by working with their doctors and nurses, patients canlearn how to manage this condition.   Learn more at http://www.cushings-info.com/index.php?title=Adrenal_Crisis!


----- Recruitment for Cushing's Syndrome Clinical Study
By MaryO

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This trial is testing the safety and effectiveness of a new investigational drug for the treatment of Cushing's Syndrome. Under the supervision of qualified physicians, cortisol levels and symptoms of Cushing’sSyndrome will be closely followed along with any signs of side effects. Learn more at http://curec.lk/1X0J6kT  


----- Endocrine Society issues new guidelines on hypopituitarism
By MaryO

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The Endocrine Society today (10/13/16) issued a Clinical Practice Guideline that recommends treating insufficient hormone levels in individuals with hypopituitarism by replacing hormones at levels as close to the body's natural patterns as possible. Read more at https://cushieblog.com/2016/10/15/endocrine-society-issues-new-guidelines-on-hypopituitarism/


----- Adrenal Insufficiency: Primary and Secondary
By MaryO

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Adrenal insufficiency is a condition that develops when most ofthe adrenal gland is not functioning normally. Primary adrenal insufficiency arises due to the damage of the glands or because of using drugs that halt synthesis of cortisol. On the other hand, secondary adrenal insufficiency stems from processes that inhibit the secretion of the adrenocorticotropic hormone (ACTH) by the hypophysis as a result of a hypothalamic or pituitary pathology. The former is sometimes also referred to as tertiary adrenal insufficiency. Read more at https://cushieblog.com/2016/11/20/adrenal-insufficiency-primary-and-secondary/


----- Cushing's Syndrome mutant PKAL205R exhibits altered substrate specificity
By MaryO

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Through these results, we suggest that substrate rewiring may contribute to Cushing's Syndrome disease etiology, and introduce a powerful new paradigm for investigating mutation-induced kinase substrate rewiring in human disease. Read more at https://cushieblog.com/2016/12/15/cushings-syndrome-mutant-pkal205r-exhibits-altered-substrate-specificity/


----- Bilateral testicular tumors resulting in recurrent Cushing’s syndrome after bilateral adrenalectomy
By MaryO

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Recurrence of hypercortisolism in patients after bilateral adrenalectomy for Cushing’s disease is extremely rare. Read more at https://cushieblog.com/2016/12/21/bilateral-testicular-tumors-resulting-in-recurrent-cushings-syndrome-after-bilateral-adrenalectomy/


----- Mandy, Undiagnosed Bio
By MaryO

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(Golden Oldie) Mandy is from Southend on Sea, England.  She had several diagnoses and had seen a vast array of medical personnel.  She was diagnosed with PCOS but not yet with Cushing's. Read more at https://cushingsbios.com/2017/02/18/mandy-undiagnosed-bio/


----- A New Newspaper Article on Jordy
By MaryO

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Mr Cernik suffers from ultra-rare Cushing's syndrome which causes high levels of the hormone Cortisol - a steroid that regulates the metabolism and immune system. Read more at https://cushingsbios.com/2017/04/18/a-new-newspaper-article-on-jordy/


----- Comment added to Rachel, Undiagnosed Bio
By MaryO

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...The fatigue is a nightmare I don’t even think the word fatigue does what happens justice. My fatigue ( I call it Zombie status) has been assisted with helping out my adrenal glands, because I know at the very least I have an issue due to testing... Read more at https://cushingsbios.com/2017/04/03/rachel-undiagnosed-bio/


----- Myth: “Men1 and Men2 are the only genetic causes of Cushing’s”
By MaryO

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This is a Myth. More current research has explored multiple etiologies of Cushing’s. It was once thought that heredity had no influence on the development of Cushing’s Syndrome/Disease and our knowledge was oncelimited in this sense. Read more at https://cushieblogger.com/2017/04/18/myth-men1-and-men2-are-the-only-genetic-causes-of-cushings/


----- Interview with Monica, pituitary survivor
By MaryO

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Listen as Monica (Monicaroni) talks about the challenges she’s faced maintaining her music career while in testing and treatment. Monica was diagnosed with Cyclical Cushing’s. She had pituitary surgery in November 2006. An 8mm encapsulated pituitary tumor was removed. Since there was no post-op crash, she also had a BLA in December 2006. Listen at http://www.blogtalkradio.com/cushingshelp/2008/05/02/interview-with-monica-pituitary-survivor


----- NIH Clinical Center
By MaryO

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The Big Bang Theory’s Jim Parsons is set to narrate a three-part docuseries 'First in Human: The Trials of Building 10' about the NIH Clinical Center. The documentary series is scheduled to begin airing on Discovery May 18.


18
May 2017

Celebrating Today


(35) Elena