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Events for May 02, 2017

in Cushie Calendar

  • No permission to add events

----- The MAGIC Foundation’s Annual Adult Convention
By MaryO

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Lots of Cushies go to this meeting.  Dr. Theodore Friedman (Dr.F) will be one of the speakers. More information at http://cushings.invisionzone.com/index.php?/topic/54062-the-magic-foundation%E2%80%99s-annual-adult-convention/


----- Bravelets! 25% off the Amelia Bracelet through 7/24. Code: AMELIA25.
By MaryO

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$10 from every item sold on this page will be donated to help raise awareness for Cushing’s Disease through the work of the Cushings Helpfamily of websites. For over 16 years we have provided information, support, RSS feeds, news, and education for people with Cushing's or other endocrine problems, their friends and families. Cushing's syndrome is a hormonal disorder caused by prolonged exposure of the body's tissues to high levels of cortisol. Read more at https://www.bravelets.com/bravepage/cushing-s-help-and-support


----- Invisible Illness Awareness Week
By MaryO

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This week (September 26 – October 2) is Invisible Illness Awareness Week. Invisible illness is all around us. More than likely, you knowsomeone who is battling a battle every day. Help raise awareness for invisible illnesses by starting conversations. The more you talk about it, the more awareness can take place. The more awareness that takes place, thebetter our chances of finding a cure and coming to a better understandingof the needs of patients who feel alone in their battles.


----- Bravelets Sale through 10/3
By MaryO

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$10 from every item sold on this page will be donated to help raise awareness for Cushing’s Disease through the work of the Cushings Helpfamily of websites. For nearly 16 years we have provided information, support, RSS feeds, news, and education for people with Cushing's or other endocrine problems, their friends and families. Cushing's syndrome is ahormonal disorder caused by prolonged exposure of the body's tissues to high levels of cortisol. View all the items here: https://www.bravelets.com/bravepage/cushing-s-help-and-support


----- A New Cushie added to the Cushing's World Map
By MaryO

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  Add your location and diagnosis to our Cushing's World Map. Helpful Doctor locations are being added to this map, as well See the Map at http://www.zeemaps.com/pub?group=342449&legend=1&locate=1&add=1


----- Cushing's World Map
By MaryO

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  Add your location and diagnosis to our Cushing's World Map. Helpful Doctor locations are being added to this map, as well See the Map at http://www.zeemaps.com/pub?group=342449&legend=1&locate=1&add=1


----- Help Yourself, Part 1
By MaryO

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Tips for living with Cushing's - before, during and after treatment. Please feel free to add your own tips here! Cushing’s disease may sometimes make you feel that your life is out of your control. But there are some general things you can do to help take back control. For specific tips such as Getting Medical Attention for an Adrenal Crisis or how to makean Emergency Kit, please see Helpful Hints Read more at http://www.cushings-info.com/index.php?title=Help_Yourself,_Part_1


----- In Memory: Patti
By MaryO

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May 2, 2002 From the Message Boards: ” I loved her, she was agreat friend. She died of adrenal cortical carcinoma.” Read more at https://cushingsbios.com/2015/05/02/in-memory-patti/


----- How Cushing's has broken my body
By MaryO

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It isn't April anymore, but 2014 week's events have inspired another post by Catherine trying to explain a few specific limitations and misunderstandings. Read more at https://cushieblogger.com/2016/05/02/how-cushings-has-broken-my-body/


----- Recruitment for Cushing's Syndrome Clinical Study
By MaryO

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This trial is testing the safety and effectiveness of a new investigational drug for the treatment of Cushing's Syndrome. Under the supervision of qualified physicians, cortisol levels and symptoms of Cushing’sSyndrome will be closely followed along with any signs of side effects. Learn more at http://curec.lk/1X0J6kT  


----- Testimonials Updated
By MaryO

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The latest is Grateful you got treatment & for all you do!


----- Midnight Salivary Cortisol Versus Urinary Free and Midnight Serum Cortisol as Screening Tests for Cushing's Syndrome
By MaryO

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Information about Salivary Cortisol.  The newest information isMidnight Salivary Cortisol Versus Urinary Free and Midnight Serum Cortisol as Screening Tests for Cushing's Syndrome. There is currently no optimaltest to screen for endogenous Cushing's syndrome (CS) in children. Traditional  24-hour urine or midnight serum cortisol values may be difficult toobtain or elevated by  venipuncture stress. We hypothesized that salivarycortisol measurement is a reliable way to screen for CS in children. Readmore at https://cushieblog.com/2016/10/02/midnight-salivary-cortisol-versus-urinary-free-and-midnight-serum-cortisol-as-screening-tests-for-cushings-syndrome/


----- Testimonials Updated
By MaryO

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The latest is Grateful you got treatment & for all you do!


----- Hydrocortisone Dosing for Adrenal Insufficiency
By MaryO

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No universally accepted glucocorticoid replacement dose exists for patients with adrenal insufficiency.  Read more at https://cushieblog.com/2016/11/04/hydrocortisone-dosing-for-adrenal-insufficiency/


----- UAE Patient’s (Pituitary) Brain Tumour Removed Through Nostrils
By MaryO

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Patient suffering from a pituitary gland tumor that threatened to cause blindness undergoes scar-less procedure. Read more at https://cushieblog.com/2016/12/02/uae-patients-pituitary-brain-tumour-removed-through-nostrils/


----- Sophie M (Sophie), Pituitary Bio
By MaryO

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Sophie is from Caen, France.   She was recently diagnosed withCushing's Disease but still needs some testing done. Read more at https://cushingsbios.com/2017/02/02/sophie-m-sophie-pituitary-bio/


----- Cushing’s Disease Treatment Market to Witness an Outstanding Growthby 2017 – 2025
By MaryO

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Cushing’s disease treatment market revenue is growing with a stable growth rate, this is attributed to increasing number of pipeline drugs. Also increasing interest of pharmaceutical companies to develop Cushing disease drugs is a major factor contributing to the revenue growth of Cushing disease treatment market over the forecast period.  Read more at https://cushieblog.com/2017/03/02/cushings-disease-treatment-market-to-witness-an-outstanding-growth-by-2017-2025/


----- Jennifer, Undiagnosed Bio
By MaryO

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Jennifer (jqatar07) is from Doha, Qatar. She is not yet diagnosed with Cushing's but has many symptoms. She has been diagnosed with hypothyroidism and she takes Toprol XL for heart palpitations. She will see a Cushing's Expert in Dubai UAE in November. Jennifer updated her bio after seeing an endocrinologist in Dubai UAE. Two pituitary tumors were found and the endo referred her to see Dr. Bill Ludlam. Read more at https://cushingsbios.com/2017/04/02/jennifer-undiagnosed-bio/


----- Prednisolone May Raise Cholesterol in Adrenal Insufficiency
By MaryO

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Prednisolone treatment of patients with adrenal insufficiency is associated with significantly elevated total-and low-density-lipoprotein(LDL) cholesterol levels compared with use of an alternative glucocorticoid, hydrocortisone, new data suggest. Read more at https://cushieblog.com/2017/04/04/prednisolone-may-raise-cholesterol-in-adrenal-insufficiency/


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May 2017

Celebrating Today


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