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Events for May 04, 2017

in Cushie Calendar

  • No permission to add events

----- The MAGIC Foundation’s Annual Adult Convention
By MaryO

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Lots of Cushies go to this meeting.  Dr. Theodore Friedman (Dr.F) will be one of the speakers. More information at http://cushings.invisionzone.com/index.php?/topic/54062-the-magic-foundation%E2%80%99s-annual-adult-convention/


----- Bravelets! 25% off the Amelia Bracelet through 7/24. Code: AMELIA25.
By MaryO

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$10 from every item sold on this page will be donated to help raise awareness for Cushing’s Disease through the work of the Cushings Helpfamily of websites. For over 16 years we have provided information, support, RSS feeds, news, and education for people with Cushing's or other endocrine problems, their friends and families. Cushing's syndrome is a hormonal disorder caused by prolonged exposure of the body's tissues to high levels of cortisol. Read more at https://www.bravelets.com/bravepage/cushing-s-help-and-support


----- Invisible Illness Awareness Week
By MaryO

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This week (September 26 – October 2) is Invisible Illness Awareness Week. Invisible illness is all around us. More than likely, you knowsomeone who is battling a battle every day. Help raise awareness for invisible illnesses by starting conversations. The more you talk about it, the more awareness can take place. The more awareness that takes place, thebetter our chances of finding a cure and coming to a better understandingof the needs of patients who feel alone in their battles.


----- Bravelets Sale through 10/3
By MaryO

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$10 from every item sold on this page will be donated to help raise awareness for Cushing’s Disease through the work of the Cushings Helpfamily of websites. For nearly 16 years we have provided information, support, RSS feeds, news, and education for people with Cushing's or other endocrine problems, their friends and families. Cushing's syndrome is ahormonal disorder caused by prolonged exposure of the body's tissues to high levels of cortisol. View all the items here: https://www.bravelets.com/bravepage/cushing-s-help-and-support


----- Edward Calvin Kendall died, 1972
By MaryO

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 Along with his work on the adrenal gland, he is remembered for successfully isolating thyroxine, a thyroid gland hormone.


----- How to make Money with Cushing's (or other Chronic Illness)
By MaryO

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  Other ideas here: http://cushings.invisionzone.com/index.php?/topic/54095-we-could-all-be-rich/


----- May the Fourth Be With You!
By MaryO

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May the Fourth Be With You!


----- Recruitment for Cushing's Syndrome Clinical Study
By MaryO

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This trial is testing the safety and effectiveness of a new investigational drug for the treatment of Cushing's Syndrome. Under the supervision of qualified physicians, cortisol levels and symptoms of Cushing’sSyndrome will be closely followed along with any signs of side effects. Learn more at http://curec.lk/1X0J6kT  


----- Endocrine Society issues new guidelines on hypopituitarism
By MaryO

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The Endocrine Society today (10/13/16) issued a Clinical Practice Guideline that recommends treating insufficient hormone levels in individuals with hypopituitarism by replacing hormones at levels as close to the body's natural patterns as possible. Read more at https://cushieblog.com/2016/10/15/endocrine-society-issues-new-guidelines-on-hypopituitarism/


----- Cushing's Syndrome mutant PKAL205R exhibits altered substrate specificity
By MaryO

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Through these results, we suggest that substrate rewiring may contribute to Cushing's Syndrome disease etiology, and introduce a powerful new paradigm for investigating mutation-induced kinase substrate rewiring in human disease. Read more at https://cushieblog.com/2016/12/15/cushings-syndrome-mutant-pkal205r-exhibits-altered-substrate-specificity/


----- Jenny, Undiagnosed Bio
By MaryO

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(Golden Oldie) Jenny is from Minneapolis, Minnesota.  Her doctor referred her to an Endo and her appointment was be at the end of January 2008. Read more at https://cushingsbios.com/2017/02/04/jenny-undiagnosed-bio/


----- Neurosurgeon and Otolaryngologist Team Up to Remove Tumor in Pituitary Gland
By MaryO

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After experiencing bad headaches and double vision, Kris Johnson was diagnosed with a pituitary adenoma, a tumor of the pituitary glandat the base of the brain. Loyola ENT surgeon Chirag Patel, MD, teamed up with Video at https://cushieblog.com/2017/02/04/neurosurgeon-and-otolaryngologist-team-up-to-remove-tumor-in-pituitary-gland/


----- Endoscopic Surgery on a Pituitary Adenoma
By MaryO

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In this video Dr. Theodosopoulos illustrates portions of an endoscopic resection of a pituitary adenoma. Watch the video at https://cushieblog.com/2017/02/04/endoscopic-surgery-on-a-pituitary-adenoma/


----- History of Cortisone’s Discovery
By MaryO

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“The cortisone story originated at Mayo Clinic, where I have been on staff for 33 years,” Young told Endocrine Today. “Although much ofthis story is not new information, it is not familiar to the current generations of endocrine scientists and clinical endocrinologists. It is a story of discovery science, clinical intuition, persistence, team science, patient volunteerism and sacrifice, hopes, and dreams.” Read more at https://cushieblog.com/2017/04/04/history-of-cortisones-discovery/


----- Interview with Jayne, Ectopic Cushing’s Patient
By MaryO

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Mary O’Connor (MaryO) hosted an interview with Jayne, a Cushing’s patient who had pituitary surgeries and a bilateral adrenalectomy before finding the true source of her ectopic Cushing’s. Read more at https://cushieblogger.com/2017/04/04/interview-with-jayne-ectopic-cushings-patient/


4
May 2017

Celebrating Today


(59) Valerie
(62) elaine-
(52) Weezay
(37) VanessaRossen
(33) JoannaBlueEyes