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Events for June 01, 2017

in Cushie Calendar

  • No permission to add events

----- John Desmond Bernal was born in 1901
By MaryO

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(1901) One of the UK’s most well-known and controversial scientists, John Desmond Bernal, was born. He worked and published extensivelyon many science topics, including vitamin D, vitamin B, cholesterol, and the origin of life.


----- The MAGIC Foundation’s Annual Adult Convention
By MaryO

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Lots of Cushies go to this meeting.  Dr. Theodore Friedman (Dr.F) will be one of the speakers. More information at http://cushings.invisionzone.com/index.php?/topic/54062-the-magic-foundation%E2%80%99s-annual-adult-convention/


----- Bravelets! 25% off the Amelia Bracelet through 7/24. Code: AMELIA25.
By MaryO

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$10 from every item sold on this page will be donated to help raise awareness for Cushing’s Disease through the work of the Cushings Helpfamily of websites. For over 16 years we have provided information, support, RSS feeds, news, and education for people with Cushing's or other endocrine problems, their friends and families. Cushing's syndrome is a hormonal disorder caused by prolonged exposure of the body's tissues to high levels of cortisol. Read more at https://www.bravelets.com/bravepage/cushing-s-help-and-support


----- Invisible Illness Awareness Week
By MaryO

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This week (September 26 – October 2) is Invisible Illness Awareness Week. Invisible illness is all around us. More than likely, you knowsomeone who is battling a battle every day. Help raise awareness for invisible illnesses by starting conversations. The more you talk about it, the more awareness can take place. The more awareness that takes place, thebetter our chances of finding a cure and coming to a better understandingof the needs of patients who feel alone in their battles.


----- Bravelets Sale through 10/3
By MaryO

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$10 from every item sold on this page will be donated to help raise awareness for Cushing’s Disease through the work of the Cushings Helpfamily of websites. For nearly 16 years we have provided information, support, RSS feeds, news, and education for people with Cushing's or other endocrine problems, their friends and families. Cushing's syndrome is ahormonal disorder caused by prolonged exposure of the body's tissues to high levels of cortisol. View all the items here: https://www.bravelets.com/bravepage/cushing-s-help-and-support


----- All Types of Cushing's are NOT the Same
By MaryO

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 In the words of our dear friend and advocate, Robin Ess, 'There are many genetic varieties with quite a few discovered in the past couple of years. Plus, there are several types such as adrenal, ectopic, and pituitary. And so on'....Amazingly, some doctors do not realize that there are different varieties of Cushing's and that the symptoms can come from a different source. Read more at http://www.cushings-info.com/index.php?title=All_Types_of_Cushing%27s_are_NOT_the_Same


----- Recruitment for Cushing's Syndrome Clinical Study
By MaryO

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This trial is testing the safety and effectiveness of a new investigational drug for the treatment of Cushing's Syndrome. Under the supervision of qualified physicians, cortisol levels and symptoms of Cushing’sSyndrome will be closely followed along with any signs of side effects. Learn more at http://curec.lk/1X0J6kT  


----- Cushing's disease best treated by endocrinologist
By MaryO

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I was told that I have Cushing's disease, which has caused diabetes, high blood pressure, hunger, weight gain and muscle loss. I was never sick before this, and I did not have any of those things. I am toldI have a tumor on my right adrenal gland. I have been to numerous doctors, but most have not been too helpful. Read more at https://cushieblog.com/2016/10/04/cushings-disease-best-treated-by-endocrinologist/


----- Endocrine Society issues new guidelines on hypopituitarism
By MaryO

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The Endocrine Society today (10/13/16) issued a Clinical Practice Guideline that recommends treating insufficient hormone levels in individuals with hypopituitarism by replacing hormones at levels as close to the body's natural patterns as possible. Read more at https://cushieblog.com/2016/10/15/endocrine-society-issues-new-guidelines-on-hypopituitarism/


----- Cushing’s Syndrome Treatments
By MaryO

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You may need one treatment or a combination of these treatmentsto effectively treat your Cushing's syndrome. Your doctor will let you know what treatments for Cushing's syndrome you'll need. Read more at https://cushieblog.com/2017/01/01/cushings-syndrome-treatments/


----- Medical Therapies in Cushing’s Syndrome
By MaryO

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Medical therapy has an important, albeit secondary, role in patients with Cushing’s syndrome. While medications are not currently used as definitive therapy of this condition, they can be very effective in controlling hypercortisolism in patients who fail surgery, those who are not surgical candidates, or those whose tumor location is unknown. Medical therapies can be particularly helpful to control hypercortisolism in patients with Cushing’s disease who underwent radiation therapy and are awaiting its salutary effects. Read more at https://cushieblog.com/2016/12/04/medical-therapies-in-cushings-syndrome/


----- Cushing's Syndrome mutant PKAL205R exhibits altered substrate specificity
By MaryO

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Through these results, we suggest that substrate rewiring may contribute to Cushing's Syndrome disease etiology, and introduce a powerful new paradigm for investigating mutation-induced kinase substrate rewiring in human disease. Read more at https://cushieblog.com/2016/12/15/cushings-syndrome-mutant-pkal205r-exhibits-altered-substrate-specificity/


----- Pituitary Issues: Irregular Periods
By MaryO

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Q: I am 28 years old and I have not yet started my periods naturally. I have to take medicine for periods — Novelon. The doctors say thatthere is some problem with my hormones in the pituitary gland. Please advise me how to get normal and natural periods, because after taking the medicine I get my period, but without medicines I don’t. Read the answer at https://cushieblog.com/2017/02/01/pituitary-issues-irregular-periods/


----- Comment added to Annette S (Annette), Undiagnosed Bio
By MaryO

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...Those negative tests don't mean anything if she has many symptoms that warrant further searching. I have even less symptoms than the textbook ones and my highs are few in comparison to my normal ones but enough to raise an eyebrow... Read more at https://cushingsbios.com/2017/01/30/annette-s-annette-undiagnosed-bio/


----- Nancy (chance), Steroid-Induced Bio
By MaryO

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Nancy (chance) is from Olympia, Washington. She has Iatrogenic(steroid-induced) Cushing's due to being on steroids for 30 years. She also has Adrenal Insufficiency and a doctor told her to say she has Addison's. Read more at https://cushingsbios.com/2017/03/01/nancy-chance-steroid-induced-bio/


----- A Faster Way to Diagnose Cushing’s Syndrome
By MaryO

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Diagnosing Cushing’s syndrome can take 24 hours of complicated and repeated analysis of blood and urine, brain imaging, and tissue samples from sinuses. But that may soon be in the past: National Institutes ofHealth (NIH) researchers have found that measuring cortisol levels in hair samples can do the same job faster. Read more at https://cushieblog.com/2017/04/01/a-faster-way-to-diagnose-cushings-syndrome/


----- Adrenocortical carcinoma masquerading as Cushing's disease
By MaryO

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30% of the patients with Cushing's Syndrome have ACTH levels inthe ‘grey zone’ (5–20 pg/mL), thereby posing a challenge in establishingthe aetiological diagnosis.  Read more at https://cushieblog.com/2017/04/01/adrenocortical-carcinoma-masquerading-as-cushings-disease/


----- Longer-Acting Growth Hormones Promising for Adult GH Deficiency
By MaryO

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Two investigational long-acting growth-hormone (GH) replacementproducts hold potential for less frequent dosing and improved adherence among adult patients with proven growth-hormone deficiency. Read more at https://cushieblog.com/2017/04/03/longer-acting-growth-hormones-promising-for-adult-gh-deficiency/


----- Aimee, Adrenal Bio
By MaryO

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Aimee is the daughter of a Cushing's patient, Pat.  Pat was due to have a BLA in February 2008.  She has also had two back fusions, twoknee replacements, pituitary surgery, gamma knife and chemical treatment. Read more at https://cushingsbios.com/2017/05/01/aimee-adrenal-bio/


----- Interview with Gracie (Fatnsassy)
By MaryO

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Gracie says: 'I've been having symptoms of Cushing's at least 14 yrs. I began testing with Dr. F. June, 2007. I was diagnosed in May, 2008 with cyclical Cushing's disease. I have surgery coming up soon. I'm going to see Dr. J. next Monday, and I'll get my surgery date that day, soI will know by the night of the program, when I am going to surgery.) Let me know if you need more info.' Listen at http://www.blogtalkradio.com/cushingshelp/2008/07/31/interview-with-gracie-fatnsassy


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June 2017

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