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Events for June 22, 2017

in Cushie Calendar

  • No permission to add events

----- John Desmond Bernal was born in 1901
By MaryO

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(1901) One of the UK’s most well-known and controversial scientists, John Desmond Bernal, was born. He worked and published extensivelyon many science topics, including vitamin D, vitamin B, cholesterol, and the origin of life.


----- The MAGIC Foundation’s Annual Adult Convention
By MaryO

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Lots of Cushies go to this meeting.  Dr. Theodore Friedman (Dr.F) will be one of the speakers. More information at http://cushings.invisionzone.com/index.php?/topic/54062-the-magic-foundation%E2%80%99s-annual-adult-convention/


----- Bravelets! 25% off the Amelia Bracelet through 7/24. Code: AMELIA25.
By MaryO

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$10 from every item sold on this page will be donated to help raise awareness for Cushing’s Disease through the work of the Cushings Helpfamily of websites. For over 16 years we have provided information, support, RSS feeds, news, and education for people with Cushing's or other endocrine problems, their friends and families. Cushing's syndrome is a hormonal disorder caused by prolonged exposure of the body's tissues to high levels of cortisol. Read more at https://www.bravelets.com/bravepage/cushing-s-help-and-support


----- Invisible Illness Awareness Week
By MaryO

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This week (September 26 – October 2) is Invisible Illness Awareness Week. Invisible illness is all around us. More than likely, you knowsomeone who is battling a battle every day. Help raise awareness for invisible illnesses by starting conversations. The more you talk about it, the more awareness can take place. The more awareness that takes place, thebetter our chances of finding a cure and coming to a better understandingof the needs of patients who feel alone in their battles.


----- Bravelets Sale through 10/3
By MaryO

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$10 from every item sold on this page will be donated to help raise awareness for Cushing’s Disease through the work of the Cushings Helpfamily of websites. For nearly 16 years we have provided information, support, RSS feeds, news, and education for people with Cushing's or other endocrine problems, their friends and families. Cushing's syndrome is ahormonal disorder caused by prolonged exposure of the body's tissues to high levels of cortisol. View all the items here: https://www.bravelets.com/bravepage/cushing-s-help-and-support


----- Recruitment for Cushing's Syndrome Clinical Study
By MaryO

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This trial is testing the safety and effectiveness of a new investigational drug for the treatment of Cushing's Syndrome. Under the supervision of qualified physicians, cortisol levels and symptoms of Cushing’sSyndrome will be closely followed along with any signs of side effects. Learn more at http://curec.lk/1X0J6kT  


----- Endocrine Society issues new guidelines on hypopituitarism
By MaryO

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The Endocrine Society today (10/13/16) issued a Clinical Practice Guideline that recommends treating insufficient hormone levels in individuals with hypopituitarism by replacing hormones at levels as close to the body's natural patterns as possible. Read more at https://cushieblog.com/2016/10/15/endocrine-society-issues-new-guidelines-on-hypopituitarism/


----- Cushing's Syndrome mutant PKAL205R exhibits altered substrate specificity
By MaryO

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Through these results, we suggest that substrate rewiring may contribute to Cushing's Syndrome disease etiology, and introduce a powerful new paradigm for investigating mutation-induced kinase substrate rewiring in human disease. Read more at https://cushieblog.com/2016/12/15/cushings-syndrome-mutant-pkal205r-exhibits-altered-substrate-specificity/


----- Suspecting Pituitary Disorders: “What's Next?”
By MaryO

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In this '3 in 3' video, Ji Hyun (CJ) Chun, PA-C, BC-ADM, covers 3 types of pituitary disorders and describes useful workups for use by primary care clinicians. Read more at https://cushieblog.com/2017/03/22/suspecting-pituitary-disorders-whats-next/


----- Steve Owens (sowens) returns to talk about support networks and agencies
By MaryO

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Steve Owens (sowens) returned on May 29, 7:30. His topic was building up support networks and using available agencies to get back to work (rehab, PT/OT, job coaches, etc)... Listen at http://www.blogtalkradio.com/cushingshelp/2008/05/29/steve-owens-sowens-returns-to-talk-about-support-networks-and-agencies


----- Comment added to “Kristin T, Undiagnosed Bio”
By MaryO

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... I have every single symptom of Cushing’s, and I believe itis cyclical and has been happening for about 26 years. It will be what kills me, I fear. Of course, it will be deemed because of obesity and health issues related to it. It is frustrating that doctors just think-it’s sorare, this cannot be what’s wrong. I think it is rarely diagnosed because it us hard to get the tests to give the accurate information. I do not think they will ever diagnose me... Read more at http://wp.me/p3tb2N-r0


----- Myth: “Each Person Requires the Same Dose of Steroid in Order to Survive…
By MaryO

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Fact: In simple terms, Adrenal Insufficiency occurs when the body does not have enough cortisol in it. You see, cortisol is life sustaining and we actually do need cortisol to survive. You have probably seen the commercials about “getting rid of extra belly fat” by lowering your cortisol. These advertisements make it hard for people to actually understandthe importance of the function of cortisol.... Read more at https://cushieblogger.com/2017/04/22/myth-each-person-requires-the-same-dose-of-steroid-in-order-to-survive/


22
June 2017

Celebrating Today


(76) Nona
(36) goaliebird
(38) maciass26
(49) refundle