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Events for June 27, 2017

in Cushie Calendar

  • No permission to add events

----- John Desmond Bernal was born in 1901
By MaryO

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(1901) One of the UK’s most well-known and controversial scientists, John Desmond Bernal, was born. He worked and published extensivelyon many science topics, including vitamin D, vitamin B, cholesterol, and the origin of life.


----- The MAGIC Foundation’s Annual Adult Convention
By MaryO

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Lots of Cushies go to this meeting.  Dr. Theodore Friedman (Dr.F) will be one of the speakers. More information at http://cushings.invisionzone.com/index.php?/topic/54062-the-magic-foundation%E2%80%99s-annual-adult-convention/


----- Bravelets! 25% off the Amelia Bracelet through 7/24. Code: AMELIA25.
By MaryO

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$10 from every item sold on this page will be donated to help raise awareness for Cushing’s Disease through the work of the Cushings Helpfamily of websites. For over 16 years we have provided information, support, RSS feeds, news, and education for people with Cushing's or other endocrine problems, their friends and families. Cushing's syndrome is a hormonal disorder caused by prolonged exposure of the body's tissues to high levels of cortisol. Read more at https://www.bravelets.com/bravepage/cushing-s-help-and-support


----- Invisible Illness Awareness Week
By MaryO

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This week (September 26 – October 2) is Invisible Illness Awareness Week. Invisible illness is all around us. More than likely, you knowsomeone who is battling a battle every day. Help raise awareness for invisible illnesses by starting conversations. The more you talk about it, the more awareness can take place. The more awareness that takes place, thebetter our chances of finding a cure and coming to a better understandingof the needs of patients who feel alone in their battles.


----- Bravelets Sale through 10/3
By MaryO

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$10 from every item sold on this page will be donated to help raise awareness for Cushing’s Disease through the work of the Cushings Helpfamily of websites. For nearly 16 years we have provided information, support, RSS feeds, news, and education for people with Cushing's or other endocrine problems, their friends and families. Cushing's syndrome is ahormonal disorder caused by prolonged exposure of the body's tissues to high levels of cortisol. View all the items here: https://www.bravelets.com/bravepage/cushing-s-help-and-support


----- A New Cushie added to the Cushing's World Map
By MaryO

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  Add your location and diagnosis to our Cushing's World Map. Helpful Doctor locations are being added to this map, as well See the Map at http://www.zeemaps.com/pub?group=342449&legend=1&locate=1&add=1


----- Cushing's World Map
By MaryO

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  Add your location and diagnosis to our Cushing's World Map. Helpful Doctor locations are being added to this map, as well See the Map at http://www.zeemaps.com/pub?group=342449&legend=1&locate=1&add=1


----- National Sunglasses Day
By MaryO

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Elton John has over a thousand pairs, Canadian singer Corey Hart only wears his at night, and you can tell the good guys from the bad guys in The Matrix by the shape of theirs. What am I talking about? Sunglasses, of course! There’s nothing quite as stylish as a pair of shades, soget out your aviators or your wayfarers and start celebrating National Sunglasses Day! Read more at http://www.maryo.co/national-sunglasses-day/


----- Diagnostic Testing for Cushing's
By MaryO

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Diagnosis is based on a review of the patient's medical history, physical examination and laboratory tests. Often x-ray exams of the adrenal or pituitary glands are useful for locating tumors. These tests help to determine if excess levels of cortisol are present and why. No single lab test is perfect, and usually, several are needed. The three most common tests used to diagnose Cushing's syndrome are the 24-hour urinary free cortisol test, the measurement of midnight plasma cortisol or late-night salivary cortisol, and the low-dose dexamethasone suppression test (LDDST). Another test, the dexamethasone-corticotropin-releasing hormone (dexamethasone-CRH) test, may be needed to distinguish Cushing's syndrome from other causes of excess cortisol. Read more at http://www.cushings-info.com/index.php?title=Diagnostic_Testing


----- Recruitment for Cushing's Syndrome Clinical Study
By MaryO

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This trial is testing the safety and effectiveness of a new investigational drug for the treatment of Cushing's Syndrome. Under the supervision of qualified physicians, cortisol levels and symptoms of Cushing’sSyndrome will be closely followed along with any signs of side effects. Learn more at http://curec.lk/1X0J6kT  


----- Annette S (Annette), Undiagnosed Bio
By MaryO

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Annette is from Chattanooga, TN, She has many Cushing's symptoms but is not yet diagnosed.  She was diagnosed as insulin resistant and as of recent was told she is not insulin resistant. Read more at https://cushingsbios.com/2017/01/30/annette-s-annette-undiagnosed-bio/


----- Meme's Brother-in-law, Steroid-Induced Bio
By MaryO

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Meme's brother-in-law has had a lifetime of prednisone use due to chronic asthma. He has steroid induced (Iatrogenic) Cushing's. Read more at https://cushingsbios.com/2017/02/27/memes-brother-steroid-induced-bio/


----- Lower health-related quality of life observed in patients with Addison’s disease, Cushing’s syndrome
By MaryO

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Cushing’s syndrome of pituitary origin was associated with worse health-related quality of life, especially for physical functioning, social functioning and mental health. In Cushing’s syndrome, health-related quality of life was generally worse during periods of hypercortisolism,but scores for these patients were lower than those of patients with Addison’s disease even during periods of hypocortisolism or eucortisolism, according to the researchers. Read more at http://addisonshelp.blogspot.com/2017/04/lower-health-related-quality-of-life.html


----- Interview with Kate (Fairley)
By MaryO

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Kate (Fairley), July 17, 2008. Kate had symptoms since 1991. She had two pituitary surgeries and another recurrence. She is not yet cured and her current diagnoses are Idiopathic Intracranial Hypertension, panhypopituitarism and a CSF leak. She has appeared on National Geographic TV in the Science of Obesity. Listen at http://www.blogtalkradio.com/cushingshelp/2008/07/17/interview-with-kate-fairley Sadly, Kate was only 46 when she died on June 23, 2014.  Her bio and video can be found here: https://cushingsbios.com/2015/06/23/1623/


----- Comparison of MRI techniques for detecting microadenomas in Cushing's disease
By MaryO

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This study was a blinded assessment of pituitary MRI in patients with proven Cushing's disease. Read more at https://cushieblog.com/2017/04/29/comparison-of-mri-techniques-for-detecting-microadenomas-in-cushings-disease/


----- Register Now for Johns Hopkins Pituitary Day!
By MaryO

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The 9th annual Pituitary Day will take place on October 14, 2017. Patients living with pituitary disorders can hear lectures from our pituitary specialists, see movies of pituitary surgeries and hear from other patients about their experience living with pituitary disease and undergoing surgery. Read more at https://cushieblogger.com/2017/05/23/register-now-for-johns-hopkins-pituitary-day/


----- A retrospective analysis of postoperative hypokalemia in pituitary adenomas after transsphenoidal surgery
By MaryO

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Pituitary adenoma is one of the most common intracranial neoplasms, and its primary treatment is endoscopic endonasal transsphenoidal tumorectomy. Postoperative hypokalemia in these patients is a common complication, and is associated with morbidity and mortality. This study aimed to analyze the etiopathology of postoperative hypokalemia in pituitary adenomas after endoscopic transsphenoidal surgery. Read more at https://cushieblog.com/2017/05/23/a-retrospective-analysis-of-postoperative-hypokalemia-in-pituitary-adenomas-after-transsphenoidal-surgery/


27
June 2017

Celebrating Today


(28) BriLee