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  1. Today
  2. Lynne (jim4lynne), Steroid-Induced Bio https://t.co/CzPlCXIYZx

  3. Last week
  4. Cushing’s Slideshow https://t.co/k6k9kyfmo5

  5. Sherry, I'm sharing your fantastic slideshow again.

    Sherry wrote: "PowerPoint that was presented at pioneer Pacific College. It took alot of work with my failing memory but I did It! I want to get the word out about Cushing's and my journey with this awful disease." 

  6. Is Cushings worth looking into?

    I've never heard of a test that uses dried urine. All the testing I've ever done has had a day's worth of urine in one container (sometimes 2). The whole thing is kept refrigerated, then whisked off to the lab. I don't know where you're from but someplace in the world may have something with dried urine but it's definitely not a standard test. Not yet, anyway. Definitely talk to your doctor about Cushing's. If you can see an endocrinologist who is familiar with Cushing's, even better. Best of luck to you and keep us posted!
  7. Is Cushings worth looking into?

    The dried urine isn't really going to be helpful for looking into Cushing's. You'd be better off doing a 24 hour urinary cortisol if your doctor will order one.
  8. Is Cushings worth looking into?

    I did a saliva test last fall. Morning, noon, and afternoon were in range. Night was high. However, in the winter I did a urine test that uses dried urine samples. In that one, morning was low but the other three were in range.
  9. Is Cushings worth looking into?

    You said you did a urine test; was that a 24 hour urine test? What can happen with Cushing's is you have high cortisol levels at night but very low ones during the morning/day and if you do a 24 hour urine sometimes these almost cancel each other out and your result is a completely normal urine test.
  10. Hi there, I have had ongoing health problems for most of my adult life. I am a 53 year old female. Recently got diagnosed with sleep apnea and am using cpap. It's helping maybe a little with my unrelenting fatigue. Symptoms over the years have included anxiety, fatigue, depression, dizziness, change in appetite, weak, shaky, lack of mental focus, and more. The reason I'm here on this board is because of two things I have that may indicate Cushings. One is fat pads on my shoulders above my collarbone. It is NOT a hump behind my neck. They are unsightly and also a bit tender - all this time I've assumed it's muscle tension. The other is that I did a saliva test for cortisol last fall to see if I had adrenal fatigue. The 11pm level was above range, at 1.6 ng/mL. The range was 0.4-1.0. However, a urine test in the winter had my 11pm cortisol right in range. So, based on what I've told you, would it be worth talking to my doctor about Cushings, or do these things not really stand out as symptomatic? Thanks for any advice on this!
  11. Welcome to the boards!  I hope this week is a little better for you than the past ones have been.  I know getting a diagnosis can be tough :(

  12. Good morning!  I hope everyone has a great week!

    :coffee:

  13. The latest The Cushings Daily! https://t.co/ZqeNoUXKWL #hcsm #meded

  14. The latest The Cushings Daily! https://t.co/D5sAar3YO6 Thanks to @LuvLibertyPeace @Pituitarydi @ChristianPost #hcsm #icymi

  15. Earlier
  16. Tonight on TV!

    until
    First In Human represents the first time cameras have embedded in Building 10 and followed first in human patients throughout their entire trial. This unique access is the product of Hoffman’s nearly twenty years of filmmaking in partnership with the NIH on projects such as The Alzheimer’s Project and The Weight of the Nation. This episode airs at 9:00 PM eastern More information at https://cushieblogger.com/2017/08/10/nih-discovery-channels-documentary-series-first-in-human/
  17. Tonight on TV! https://cushieblogger.com/2017/08/10/nih-discovery-channels-documentary-series-first-in-human/

    First In Human represents the first time cameras have embedded in Building 10 and followed first in human patients throughout their entire trial. This unique access is the product of Hoffman’s nearly twenty years of filmmaking in partnership with the NIH on projects such as The Alzheimer’s Project and The Weight of the Nation. 

  18. An unusual case of Cushing’s syndrome due to bihormonal ACTH–prolactin secreting pituitary macroadenoma with rapid… https://t.co/YbiBa2gkxv

  19. I'm very new to this site, but one of the first things I did was read through your story. It's inspiring to see how many people's lives you touched, and heartbreaking to read through what happened during your last few months. I hope you are at peace, and I wish you a very happy birthday!

    1. MaryO

      MaryO

      Thank you for this, Jasminesky.  Sue was indeed a very special person who touched everyone she met.  I miss her all the time.

  20. @EllenYarnall @swancoole @blakehounshell @conor64 I say 17, too. Is there a prize for the people that guess right?… https://t.co/ov1wh6vU3Z

  21. The latest The Cushings Daily! https://t.co/zNUF5cRhlP Thanks to @WayneB99 @LuvLibertyPeace @HiveDan #hcsm #icymi

  22. ... I too am in the same situation and also have been dealing with constant pain for 6 years now, been bedridden for about 4. I’m pretty sure my pain is unrelated to my Cushing’s– terrible pain in/ behind my eyes. They feel like they’re ripping if I move them. I’ve been through the process of test after test, surgery after surgery to no avail and no answer or relief from my pain. I have about 90% of the symptoms of Cushing’s including cataracts in both eyes and I am only 26.
     
  23. @pizzatanktopbro Fantastico!

  24. The latest The Cushings Daily! https://t.co/3ZLBg01S8b #hcsm #meded

  25. Carpal Tunnel?

    Always something! I woke up last night with numb tingly wrist and ring finger. In the last few days, I've had to move my watch band out a notch. I've been on Omnitrope .3 growth hormone for a couple months and just finished my second cartridge. Emailed Dr. Salvatori for advice. A couple weeks ago it felt like my wisdom tooth lower left was coming in and I generally felt like something was happening with my jaw. That's evened out now. Naturally, my second shipment (2 more cartridges) just came, along with their co-pay, so I hope I don't have to throw any of that away.
  26. Renee (rmaxwell) is from the Los Angeles area of California. She is not yet diagnosed but has many symptoms.https://t.co/cDVPSN4fWh

  27. Renee (rmaxwell) is from the Los Angeles area of California. She is not yet diagnosed but has many symptoms.

    https://cushingsbios.com/2017/07/08/renee-rmaxwell-undiagnosed-bio/

  28. @jaketapper Look who I've got on the hook? https://t.co/HjNcDwSLfT

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