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Helpful Articles

Diagnosing a Young Boy

Jun 10 2014 03:34 PM | Gene in Helpful Articles

From my personal experience, the 24 hour urine and saliva tests were the most important, and blood tests were always off, since they are really just a quick snapshot in time at any given moment. Overall symptoms are what really need to be considered. F...

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Add your name; Help us show how difficult Cushing

Apr 09 2011 12:38 PM | MelissaTX in Useful Information

Here is the full list, feel free to copy and paste it. Personalize it. This list is meant for all of us to share. CUSHIE WARRIORS: MEN, WOMEN & CHILDREN WHO BATTLE CUSHING’S NUMEROUS TIMES IN HOPES OF WINNING THE WAR Many of you only know on...

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New MemberMap

Apr 10 2012 02:12 PM | MaryO in Useful Information

For all Cushies, diagnosed or not, friends and family - add your name and whatever info you want to share to this map. The directions are similar to those for AI, below. Cushing's MemberMap If you have Adrenal Insufficiency, a friend of mine...

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Questions About Korlym?

Feb 27 2012 10:38 PM | MaryO in Research and News

Have questions about the new Korlym? How about Korlym vs ketoconazole? About medical vs surgical treatment for Cushing's. Ask Dr. Theodore Friedman. Theodore C. Friedman, M.D., Ph.D. has opened a private practice, specializing in treating pati...

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FDA approves Korlym for patients with endogenou...

Feb 17 2012 09:45 PM | MaryO in Research and News

FDA NEWS RELEASE For Immediate Release: Feb. 17, 2012 Media Inquiries: Morgan Liscinsky, 301-796-0397; morgan.liscinsky@fda.hhs.gov Consumer Inquiries: 888-INFO-FDA FDA approves Korlym for patients with endogenous Cushing’s syndrome Today, Korlym (m...

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Things I've learned and wanted to share

Dec 17 2005 05:42 PM | LindaP in Useful Information

I have learned so much on this cushing's journey, much of it from all of you and this site. I wanted to share those learnings, in the event that it helps anyone else. Obviously - my own opinions here! My best wishes to everyone on their cush...

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MD Anderson surgery tips

Feb 01 2010 10:11 AM | missaf in Useful Information

My MD Anderson surgery tips 1) After all your records are with IMCC, you'll get a number to call to schedule surgery. They will give you all the details they think you need (isn't much). Be sure to get your medical record number, you'll...

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Drugs that might interfere with Cushing's t...

Jun 07 2011 01:10 PM | MaryO in Useful Information

from The Diagnosis of Cushing's Syndrome: An Endocrine Society Clinical Practice Guideline. Authors: Lynnette K. Nieman, Beverly M. K. Biller, James W. Findling, John Newell-Price, Martin O. Savage, Paul M. Stewart, and Victor M. Montori View atta...

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More Treatments for Cushing’s Disease

Nov 22 2011 02:54 PM | MaryO in Research and News

(Ivanhoe Newswire) – Cushing's disease is a hormone disorder that causes many symptoms, such as high blood pressure, fat accumulation, osteoporosis and ultimately ending in death. It is caused by a tumor in the anterior pituitary gland that s...

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Dr. Friedman asked MaryO and I to announce this:

Nov 30 2011 11:39 PM | staticnrg in Research and News

Cushings-Help.com Announces The Availability Of An Investigational Drug ForSevere Cushings's Syndrome On a Compassionate Use Basis November, 2011 We would like to make patients aware that mifepristone, aninvestigational drug that blocks the action...

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