MaryOld

From http://www.medscape.com/viewarticle/435929?srcmp=endo-060702 Young Women Often Overlook Signs of Ovarian Failure NEW YORK (Reuters Health) Jun 03 - Young women with spontaneous premature ovarian failure often overlook the menstrual signs that could be a clue to the diagnosis, according to a recent report. Approximately 1% of US women experience ovarian failure by 40 years of age, according to a statement from the National Institutes of Health. Premature ovarian failure is a well-established risk factor for osteoporosis. By ignoring menstrual signs, the diagnosis of premature ovarian failure is delayed, as is the initiation of treatments to prevent osteoporosis. "Because missed periods are common symptoms in young women, it is understandable that more than half of our patients were not concerned at first," lead investigator Dr. Lawrence Nelson, from the National Institute of Child Health and Human Development (NICHD) in Bethesda, Maryland, said in a statement. "But the delay in evaluating and treating ovarian insufficiency may place young women at increased risk of developing osteoporosis in later years," he explained. To better characterize the disease, Dr. Nelson's team interviewed 48 women who had been diagnosed with spontaneous premature ovarian failure. The mean age of the study group was 33.5 years. The most common presenting symptom was a disturbance in menstrual cycle, reported by 44 of the women, the researchers note in the May issue of Obstetrics & Gynecology. More than half of the women interviewed said they did not view missing their period as an important health issue and that they did not fully appreciate that the ovary is an important source of hormones. Forty-six percent said they felt their knowledge of menstrual health was lacking, the report indicates. More than half of the women with menstrual irregularities reported having seen three or more different physicians before being diagnosed with premature ovarian failure, and one in four of the woman said it took longer than 5 years for them to be diagnosed with the condition, the authors note. "These findings suggest that women and their physicians may want to err on the side of caution and evaluate menstrual irregularities early," Dr. Duane Alexander, director of the NICHD, said in a statement.

Selected Ongoing Clinical Trials from Southern Medical Journal Evaluation of Patients With Thyroid Disorders This observational study will examine the history, clinical presentation, and genetics of thyroid function disorders. Physical examination, endocrine blood and urine tests, TRH tests, thyroid nuclear medicine scans, thyroidal radioiodine or technetium uptake measurements, X-ray, computed tomography, MRI, or other standard diagnostic procedures will be used as indicated. Men and women of any age with thyroid abnormalities are eligible for enrollment. Contact: National Institute of Diabetes and Digestive and Kidney Disease, 9000 Rockville Pike, Bethesda, MD 20892. (800) 411-1222. E-mail: prpl@mail.cc.nih.gov.

WooHoo! Thanks to everyone who participates! Total disbursed so far: $106.39 Total raised through shopping: $138.07 through bonuses: $33.00 Grand total raised: $171.07

===> Extra! Extra! Read all about it! $5 Free Donation. From March 1 through June 30 2002, (extended deadline) each new member who registers at iGive and shops will earn an additional $5 for these boards. That's on top of the standard of up to 26% from their shopping. Only hitch - you've got to shop within 45 days of joining. With over 370 stores now at iGive, you've got some great choices. ===> Inkjet cartridges and toner supplies are one of the most popular items. You can save 50 - 80%! ===> Easier than falling off a log - the iGive Shopping Window! http://www.iGive.com/html/shopwindow.cfm ===> Get even more - check out Office Depot, Office Max and Viking for office supplies - get your tax exemption and get money back, when you shop via iGive.com

Yes, I remember that you moderate a board, Lynn I had asked, on the "main" board, for everyone who I had listed - moderators, CUSH people, people who wanted to host a chat - to email me to get their passwords. Very few people did. I don't know if it's because they didn't read the post or not. It was the one titled something like "Board moderators Check In". I figured that was a post that moderators would read, but I was apparently mistaken. Anyway, I'll PM you the password, Lynn. Thanks for asking about it

It says they're machine washable - but we'll see. Sometimes, they say that they are, and techincally they are, but they never look the same. We'll see how these go. Sue, maybe youshould get lots, so when one gets dirty, you'll alwas have a spare LOL

Thanks, Sue - I'm going to order some, too, but I'm going to wait for a bit and see if I can get enough stuff to qualify for the free shipping offer. I hope to get some more things up and ready over the next week. Think that there would be any call for barbecue aprons? Here's a current list of the blank products that I can put logos on. http://www.cafepress.com/cp/info/products/index.aspx Next week, they will add the stickers, flying discs, license plate frames and wall clocks. ?I'm hoping that the stickers will be like those cling things we were talking about before. For July 4th, there will be some kind of plush eagle. ?Not sure what that will look like though.

Stickers, flying discs, license plate frames and wall clocks will be available online next week, too. Would anyone be interested in any of these? Also...until June 9,

Insulated Cooler Bag Great for keeping your lunch fresh and beverages cold (and urine fresh???), our handy insulated lunch bag/cooler will hold up to six 12oz cans with ice. Bag includes handy front pocket, adjustable shoulder strap and zip tight top. 100% Denier Polyester Exterior, Nylon interior Adjustable Shoulder Strap Front Pocket Note the color! Perfect for remembering those 24-hour jugs! Only $18.99 each For each cooler, $1.00 goes to CUSH and $1.00 goes to the fees for running these boards and websites. Note that this is a "limited" item, and that, like the Valentine's bears, will be discontinued at some point. I'll try to let you know in advance when that will be. Click here for more info or to order

New! ?Cushie Tote Bag Our 100% cotton canvas tote bags have plenty of room to carry everything you need when you are on the go. They include a bottom gusset and extra long handles for easy carrying. 10 oz heavyweight natural canvas fabric Full side and bottom gusset 22" reinforced self-fabric handles Machine washable Just the thing for carrying those Symptoms Lists to the endo or papers at the UVA convention! Only $14.99 each. ?For each bag, $1.00 goes to CUSH and $1.00 goes to the fees for running these boards and websites For more info, or to order, click here for the Cushie Store

http://www.medscape.com/viewarticle/434053 Possible Link Between CJD and Human Growth Hormone NEW YORK (Reuters Health) May 22 - Dutch researchers report the case of a man who developed Creutzfeldt-Jakob disease (CJD) 38 years after receiving a low-dose of human derived growth hormone during a diagnostic procedure. Reporting in the June issue of the Journal of Neurology, Neurosurgery, and Psychiatry, Dr. C. M. van Duijn, from Erasmus University Medical Centre Rotterdam, and colleagues describe the case of a 47-year-old man who developed paraesthesia followed by rapidly progressive ataxia. One month after presentation, the patient's condition rapidly declined and he died 5 months after hospital admission. Dr. van Duijn's team had made a clinical diagnosis of CJD, which was confirmed at necropsy. The patient's history revealed that at 9 years of age he was given 6 IU of human growth hormone over 5 days to rule out growth hormone deficiency. Dr. van Duijn's team notes that this is the second Dutch patient to die from CJD after human growth hormone treatment. In the first case, the woman had been treated with intramuscular injections of human growth hormone over several years. When the women was 39 years of age, 27 years after starting human growth hormone treatment, she developed an ataxic gate, slurred speech, sensory disorders, and myoclonus. CJD was confirmed postmortem. Based on this woman's case, a retrospective study was undertaken to find all 564 registered patients who had been treated with human growth hormone before 1985. As of January 1995, none of these subjects was suspected of having CJD, the researchers note. "An incubation period as long as 38 years had never been reported for iatrogenic CJD," Dr. van Duijn's group notes. They speculate that the long incubation period was due to the low-dose of human growth hormone the patient received. Dr. van Duijn and colleagues conclude that "since our patient was one of the first in the world to receive human growth hormone, this case indicates that still more patients with iatrogenic CJD can be expected in the coming years. Another implication of our study is that CJD can develop even after a low dose of human growth hormone." They stress that "this case once more testifies that worldwide close monitoring of any form of iatrogenic CJD is mandatory." J Neurol Neurosurg Psychiatry 2002;72:792-793.

Adrienne, the person you got it from, most likely didn't even send it at all. This worm sends out it's own emails, using address books that people might have. So, it might appear that person X has sent along an email, but they're not even aware of it. Something interesting with this - my CushingsSupport email address sent a copy of this along to my PianoMary name. No way would I have sent myself a file like this! Remember - never, ever download an exe or a zip file even from someone you know unless you're absolutely, positive that they sent you this file. A good, up to date, virus scanner is a must, too.

Apparently Microsoft knows that this is a security issue involving Internet Explorer. If you use this browser, to to http://www.microsoft.com/windows....ult.asp for a Security Update. 15 May 2002 Cumulative Patch for Internet Explorer (Q321232) Originally posted: May 15, 2002 Summary Who should read this bulletin: Customers using Microsoft? Internet Explorer Impact of vulnerability: Six new vulnerabilities, the most serious of which could allow code of attacker's choice to run. Maximum Severity Rating: Critical Recommendation: Consumers using the affected versions of IE should install the patch immediately. Affected Software: Microsoft Internet Explorer 5.01 Microsoft Internet Explorer 5.5 Microsoft Internet Explorer 6.0

Cushing's Help and Support has only 44 days left for $5 Donation Match iGive has extended its offer of a FREE $5 bonus for each new shopper until June 30, 2002! Time is running short. Unless you spread the word Cushing's Help and Support will miss out. ============================== Contents ------------------------------ 1. $5 Bonus Information 2. Don't get left behind 3. It Adds Up Quickly 4. Hundreds of Great Deals 5. Tracking & Registration are so easy 6. Supporters get started with just one click 7. Cause Statistics ========================================= 1. FREE $5 + up to 26% of each purchase! ----------------------------------------- Each new person who registers at iGive.com between now and June 30 can raise an additional $5 for your cause, on top of earning up to 26% of each purchase for you! All they have to do is shop via iGive.com within 45 days of joining. We make it easy, with over 360 familiar stores (like Amazon, Lands' End, PetFood Direct, Office Depot, and Best Buy) to choose from! The average online shopper is earning about $20-$40 per year for their chosen cause. Some shoppers are raising that for their cause each month! Make sure that cause is Cushing's Help and Support. =============================================== 2. It's working for thousands of causes ----------------------------------------------- The average check we wrote last month was for about $75. You can see a list of recent checks we've sent at http://www.iGive.com/html/payments.cfm ======================================== 3. Benefits come quickly ---------------------------------------- Just five new shoppers can mean another $150, $200, even $500 or more in the coming year. Better yet, it continues year in and year out, without any more work on your part. ================================= 4. Hundreds of Great Deals! --------------------------------- As always, your supporters get great deals, never pay more, and might even pay less when they shop for things they need from stores they know and trust. Books, records, office supplies, clothes, pet supplies, and gifts are just some of the things people are buying every day. Why shouldn't each purchase also help Cushing's Help and Support? Even simply bidding at eBay can help your organization, when your supporters are members of iGive.com. It really is simple. All your supporters have to do to register is click on your special link. Free for them, free for you. But they'll only know about it if you spread the word! ============================================ 5. Tracking & Registration is Automatic -------------------------------------------- Whenever members shop by starting at iGive.com, our newsletter, or by using the iGive.com Shopping Window, they'll automatically be earning money for Cushing's Help and Support. Each month, we send out checks to qualifying causes. ========================================== 6. Get Started Today with this simple link ------------------------------------------ Each day that goes by means lost opportunity - wasted money. Don't let that happen. Simply by letting your supporters and friends know that they can help, without it costing anything you'll be helping Cushing's Help and Support. Your supporters can join just by clicking on this link: http://www.iGive.com/html/refer.cfm?causeid=17825 Send it to them today. The $5 bonus expires June 30, 2002. ================================== 7. Cushing's Help and Support Cause statistics & info ---------------------------------- Money raised to help support thes boards and Cushings-Help.com: $149.50 $5 Registration Bonuses: $15.00 Members: 34 Members joined since 3/1/02: 10 Statistics as of 5/12/02 and are subject to change.

The American Association of Clinical Endocrinologists Calls for Patients With Diabetes to Take Charge of Their Health JACKSONVILLE, Fla., May 17 /PRNewswire/ -- New information about diabetes and the treatment of this growing nationwide epidemic can create confusion on how patients should handle their health. ?The American Association of Clinical Endocrinologists (AACE) takes a strong stand on the diabetes patients' involvement in their care. The recent study in the Journal of the American Medical Association (JAMA) which brought attention to potential side effects caused by metformin, also sold as Glucophage, is an example of this distribution of incomplete information. ?Metformin, used regularly by a very large number of patients, has shown a unique utility for patients by helping to control diabetes while maintaining or even losing weight, which is important because of the link between obesity and diabetes. ?Furthermore, extensive metformin use has been associated with a strong safety record. AACE created the Intensive Diabetes Self-Management System, which includes an AACE Patient/Physician Contract. (http://www.aace.com/pub/pf/index.php) This contract clearly outlines the physician and patient's responsibilities for living with diabetes. AACE encourages patients with diabetes to talk to their physicians about any public information about diabetes. ?"It is important for patients to understand all the benefits and side effects of medications and treatments," stated AACE president, Hossein Gharib, MD, FACE. ?"Endocrinologists, the diabetes specialists, have been educating patients as well as other physicians as to the proper use of medications including metformin." AACE is a professional medical organization with over 4,000 members in the United States and 74 other countries. ?Founded in 1991, AACE is dedicated to the optimal care of patients with endocrine problems. ?AACE initiatives inform the public about endocrine diseases. ?AACE also conducts continuing education programs for clinical endocrinologists, physicians whose advanced, specialized training enables them to be experts in the care of endocrine disease, such as diabetes, thyroid disorders, growth hormone deficiency, osteoporosis, cholesterol disorders, hypertension and obesity. For further information, visit AACE Online at http://www.aace.com. MAKE YOUR OPINION COUNT - ?Click Here ? http://tbutton.prnewswire.com/prn/11690X07136284 SOURCE ?American Association of Clinical Endocrinologists ? CO: ?American Association of Clinical Endocrinologists ST: ?Florida SU: http://www.prnewswire.com ? 05/17/2002 09:24 EDT