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Showing results for tags 'How I feel Today'.
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Last I wrote, it was about all these glorious blogs I was creating. A couple weeks ago *Poof* and they were all gone My personal blog contained: A journal about how I felt about my Cushing's years after my pituitary surgery. How I was feeling about life. Notes about how I felt about my kidney cancer (Renal Cell Carcinoma) 2 years after my diagnosis and surgery. Information about news in kidney cancer treatments, links to other good sites, comments from friends and much more, all lovingly collected and saved. Until a hacker inserted a couple lines of code somewhere and took the whole thing down. Not just that blog but several of my sites that use a form of code known as PHP. I can't rebuild the blog that I lost but I can start again, once more... Check http://cushingshelp.blogspot.com/ for updates.
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July 22, 2008: These 3 blogs were all hit by my hacker a few weeks ago. The new Cushing's blog is http://cushingshelp.blogspot.com/ The new Barbados blog is http://beautiful-barbados.blogspot.com/ The new music studio blog is http://oconnor-music.blogspot.com/ I'm hoping by hosting these through Blogger instead of on my own server they won't be vulnerable to hackers anymore. ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ Original post: I spent the last couple days making a new blog - actually 3 of them, none what I intended. It was my idea to start a blog for people who updated their bios often so I set about looking at blog skins. I liked one of the tropical ocean so much that I decided to make one for our Barbados vacations. I already had a website that grew out of my posting info for guests who would come to stay with us. The new Bajan Blog is at http://barbados-crane.com/blog/ Then it occurred to me that maybe I could attach one to my site for my music studio where students/parents could ask questions. And http://oconnormusicstudio.com/blog/ was born. Finally, I got back to the Cushing's one...and decided to use it for me. I renamed it Cushing's, Cancer & Music since those are the main components of my life these days. That one is at http://cushings-info.com/blog/ Feel free to check any, all or none out and comment if you want. Now I hope I have enough to say to keep these going! LOL
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Wow! I guess I haven't been on the boards for 2 weeks or so I see that I have dozens of PMs to read, many emails to check/answer and I missed at least one person who had ordered an Awareness Bracelet that I never sent My Monday appointment with the surgeon went ok. He took blood/urine and was going to send me for CT scans. That day, as I recall was very cold here with a wind chill of something like -7o I came home and taught my piano students, as usual. Tuesday morning I woke up and my back hurt. I assumed it was from the cold combined with my arthritis. That got worse throughout the day so I called my PCP. Naturally, he was away until the 19th but had a substitute I could see Wed. I didn't want to wait because the pain was excruciating by now and I couldn't get out of chairs or sofa without using the walker I had from surgery to help pull me up. So I called my husband at work and he said he'd come home and take me to the ER. I had been supposed to have handbell rehearsal that night so I called my director and let her know I wouldn't make it. She assumed that Tom (husband) would be home sooner than he was, so she got the associate pastor from my church and they headed to the ER to wait with us. They asked about me at the front desk and were assured that I was there although they didn't see me. I guess they thought I was with the triage nurse or something. So they waited. Then a Melissa O'Connor was called... My people realized it wasn't me and left. Finally, Tom got home - he had really important work to do (sarcastically said!) and I got to the ER about 6:00PM. Last time I was there, they told me I had kidney cancer, so I was hoping that there was no rerun of that experience! The triage nurse let me wait on a gurney instead of one of the hard plastic chairs in the waiting room. Unfortunately, they also wanted blood and urine. My only good arm had been used by the neurosurgeon the day before Luckily the nurse finally got the IV in to my other arm. I guess my veins are a bit better post-Cushing's. No collapses this time. They did CT scans (so I don't have to do my surgeon's ones - YEA!) and XRays and found basically nothing except lung nodules that hadn't grown much since my last scan - say what? I didn't know I HAD lung nodules. I got some percocet and they sent me home with orders to see the sub PCP in 2 days. The percocet didn't do much except make me sleepy/groggy. My days were spent watching TV and sleeping. Even sitting at the computer or the table was too painful. Tom took me to the sub PCP on that Friday and she's sending me to physical therapy. Until yesterday, I didn't drive at all, and the weather has been awful, so I haven't even called about the PT yet. There is still a little pain, and I need the walker to get out of bed, but I'm doing much better. A weird side thing - Tom was driving my car since it's a van and much heavier than his midlife crisis sports car. The van does much better with snow and ice that we had the last couple weeks. One day he got it home, slammed the door - and the window slid down into the door. Somehow it got off the tracks. Luckily the glass didn't break. So that was a bit of a problem and $. No one had ever even heard of this problem before. Anyway, I hope to get to your PMs, emails and whatever ASAP! It feels a bit weird being here - like my baby has grown up, left home and doesn't need me anymore. Can you have Empty Nest Syndrome for message boards? LOL
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Sheesh, I feel like an invalid. My carpal tunnel is back with a vengeance, so I'm wearing the big braces again - look terrific in short sleeve shirts! It's also very hard to type, to do the computer, to do anything.Besides that, I got some kind of eye infection or something. At first, I thought it was something in my eye because only one quadrant was hurting and red, but it spread to the whole eyeball.It might be from the newest contact lens solution I bought. When I looked at the label, it had expired in March. I just bought it a couple weeks ago! Now I have to find the receipt and haul that back to the store.If it wasn't that, it was probably one of my piano students bringing me pinkeye. AARRGGHH!And I can't/won't/shouldn't wear my contacts with this infection, so besides the splint, the red, puffy eye and all, I look even worse than usual.Always something!
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I'm feeling so down. My two special friends, Alice and Sue are both are going through some really tough times right now and I feel so helpless. There's nothing I can do to help either one and it makes me feel so bad. I like being a person who can cheer others up and it's just not working right now. Both are people I met online, neither lives close to me, so I can't just drop by and give out hugs, help with housework, shopping, whatever.I hate to call and be disruptive in case of much-needed naps, but I feel like I need to do something more than I am. I don't want to be in the way, but...I'm feeling guilty for not being sick myself - how stupid is that? Nothing of substance here, just someone who wishes that there was less pain and more joy in the world.This is all so depressing to me. The good news is that Alice seems to be getting better while Sue maybe isn't :(Feel better soon (((Alice))) and (((Sue))). I'm so worried about both of you.
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So, I copied this from Christy's Blog. I hope she forgives me!Of course, I did replace with my answers, not hers :)Replace answers with your own :)A is for age- Over the Hill!B is for booze- Black (or white) Russian C is for Career or major- Let's see how does that go...taxi, chef, maid, doctor, teacher, musician, web designer, SURVIVOR!D is for dad's name- Daddy to me, Grandpa to my son, was Frank to othersE is for essential items to bring on a trip - computer and peripherals!F is for favorite album at the moment- Brian Wilson's SmileH is for hometown- Born in Lewiston, Me, raised in Connecticut and Massachusetts, lived in Wisconsin, Virginia, Maryland...I is for instruments you play- piano, organ, violin, clarinet.J is for jam or jelly you like- pumpkin butter, lime curd (if that counts)K is for kid- only one. Son is an only child of an only child of an only childL is for living arrangement- buried in piles of musical instruments, papers and clothesM is for mom's name- Mom to me, Nana to my son, and Mary to everyone elseN is for the names of your friends- Alice, Sue, Chris, Mattilyn, everyone on the boards - too numerous to name!O is for overnight hospital stays- 2 nights when my son was born, although 1 I didn't sleep much!, one week at local hospital for testing, 6 weeks at NIH before Pituitary surgery; many weeks afterP is for phobia(s)- the obvious icky things slugs, snakes, bugs....and planesQ is for a quote you like- "To be alive, to be able to see, to walk,...it's all a miracle". Artur Rubinstein (1887-1982) Polish PianistR is for relationship that's lasted the longest- Tom and I will have been married 33 years in January, 2006S is for siblings- noneT is for tickets- Gonna see The Moody Blues on Saturday!!! WooHooU is for unique trait- love making online stuff do what I want it to.V is for Vegetable- Corn on the cob, broccoli, tomatoes, onions, salads, cukesW is for worst trait- too wimpyX is for x-rays you've had- CAT scans, x-rays, MRIs Most everything has been looked atY is for Yummies - Heath Bar Crunch ice cream, cherry pie, carrot cakeZ is for zodiac sign- Virgo
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I'm afraid if I keep a record of this, I won't like what I see. I'm still tired from my trip. I wonder how long it will take to get back to "normal tired". If/when I get back, it will probably be time for something else that zaps my energy.Gotta start exercising, though. I got quite a bit in the airport, just walking and hauling luggage around.
