ttiffany20191
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About ttiffany20191
- Birthday April 2
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I just wanted to say hello. You are in such good hands at the NIH. I too, had surgery there and they saved my life. I hope things are going well for you.
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First of all I want to welcome you! I'm sorry you think you maybe dealing with this disease. To answer your question, it is hard to say if you sound like one. You have a couple of the symptoms. The best think I could tell you is to schedule an appointment with an endocrinologist and get them to run some tests on you. Then go from there. If you don't have it..that is good news...but if you do there are people here that will help you through the process. Wishing you the very best of luck!
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Cushing's Awareness Challenge 2013
ttiffany20191 replied to MaryO's topic in Cushing's Awareness Day, April 8
I am going to do it this year!! -
Frustrating...Cushing's just keeps on giving and giving! :/ I have always believed that people who were sick a long time and severely had damage done that was permanent.
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It is very possible! I maintained normal periods throughout Cushing's. not everyone has every single symptom.
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Oh yes, I'm almost three years post op and my pain is still not great. I recommend getting her into pain management. They really helped me so much. Has she had surgery yet? A dr explained it to me like this: imagine cortisol being like battery acid running through your veins. Even when the cortisol is gone the damage is done. Cortisol breaks down your muscles and bones. I had really bad bone pain. I feel for your mom. The best thing you can do is what you are doing now? Ask questions..I know it is hard to understand but she is lucky to have you in her life trying to understand and support her. Also is she on the boards? If not you should tell her to join us! best wishes to you both. Feel free to ask any questions -Tiff
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Hi Vicky! Just wanted to welcome you to the boards. I'm glad you are under the care of an endo,although sometimes they miss cushings,but anyway usually they will do more 24 hour urines,blood work, and midnight salivaries( where you chew a piece of cotton and they measure your cortisol levels) after that they would want to figure out where all of this cortisol is being produced..or by what. The most common source is that you have a tumor on your pituitary. Second is that you have an adrenal adenoma..and lastly but much more rare is having a tumor in the lung or somewhere else in the body. Anyway feel free to ask questions! There is a ton of info here and you might want to go and read old threads in the forums. There are so many supportive people here. I hope it isn't Cushings but if it is you are in the right place. Good luck and keep us posted! -Tiff
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Hi Holly! First of all I just wanted to welcome you to the boards. It sounds like your symptoms need to be looked into further. You know your body and if something doesn't feel right then you should listen to it. Maybe you could print off some material ( this site has a lot of great info) and bring up your symptoms. If you don't get anywhere with your pcp, I'd see if you can get into an Endocrinologist. The first steps would be a 24 hour urine. I hope it isn't Cushings but if it is you are in the right place. Feel free to ask questions. When I was first diagnosed I. Knew nothing about Cushings and I asked a lot of questions on the boards. A lot of dr's don't understand this disease so you have to educate your self. Again welcome and feel free to message me if you need someone to talk to. - Tiff
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Just a question, has any cushings suffers had cysts on the liver and kidneys ?
hope you are well , havent spoken in a while x
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hi Tiffany, could i ask are your tests higher when your feeling ok or when you have the syptoms ?
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Hi Vicki! welcome. Feel free to message me! Glad you are on the boards, hope u are finding the answers you need!
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Hib tiffany20191,
Im a newbee, how do i start a instant message with you ? , love to chat.as i dont wont to worry you on e-mail. thanks
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A good thing with my doctors was to write everything down from your questions to your symptoms..bring them literature on the disease which you can find on this site...I know my mind was so foggy and a mess in the middle of Cushings so it was hard to remember anything! If you need advice or support post away! These people are wonderful!!
