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Kristy

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Kristy last won the day on June 18 2022

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About Kristy

  • Birthday July 15

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    Texas

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  1. Hi Jody, Post-op, I was out of work about 8 weeks, primarily because I wasn't stable enough to go to work sooner. I am glad you are going to NIH! I think you will be well cared for! It is true that many of us cured cushies don't stick around. I quit posting regularly a number of years ago. Life just had me busy, and this is a good thing! I had the microadenoma that was left to grow while the doctors squabbled about me having or not having Cushings over a 5 year period. I ultimately was diagnosed with Cyclical Cushings in 2004. Unfortunately for me, the tumor grew all throughout the gland during this time. Post surgery, the tumor grew back in fragments. For me, radiation using gamma knife was the right choice instead of a second surgery. I've continued to work and I'm working on my MBA. I haven't returned completely to pre-cushings status (I think the weight loss is the hardest), but have major improvements. For me, having my mind back in working order has been the most blessing. Take care, and keep positive for the days ahead! Kristy
  2. Nope... just can't seem to find that magic bullet. What I have noticed though, is patients who were suspected of cushings who took avandia and actos, that it did take alot longer to have their cushings diagnosed. Unfortunately, one of the side effects of the medicines was weight gain... so it seems to me that it may have helped biochemically, but when you are trying to tell your doctor that something is terribly wrong... Never mind... you all know where I am going.
  3. The drug is Avandia... and with all of the new warnings about it... I expect they are looking for another way. http://www.fda.gov/bbs/topics/NEWS/2007/NEW01636.html
  4. Yes, this is great news for ectopic Cushings patients!
  5. This drug is already used to treat acromegaly. Tammy noticed alot of improvement on the trial. It is a 15 day trial. If results are promising, this could lead to a medicine approach to treating Cushings. I'd do it... but... I didn't meet the criteria for the protocol. Good luck!
  6. 10-15 new cases of Cushings per million is all Cushings cases, steriod induced, pituitary, adrenal, and cancer. Steriod induced Cushings is predominate. 13% of hormone secreting tumors are ACTH secreting tumors. 15% are GH secreting. The stats for GH secreting tumors that cause acromegaly is about 3 people per million per year, so that means ACTH secreting pituitary tumors that cause Cushings Disease are 1-2 people per million per year. That puts adrenal cushings
  7. For those who are wondering... you can change the skin color at the bottom left of the webpage .
  8. I don't... it isn't new, just 'new and improved' so... I am skeptical. There is more to pituitary tumors than growth. There is a whole issue about the hormone side of the story. You first. :ph34r:
  9. This is actually based on research that came out a few years ago with 11-[beta]-hydroxysteroid dehydrogenase and mice. You can read alot about the research on the web. I don't know if it will help us or not, but I know I was willing to try just about anything - lol. Pseudo cushings, cushings, crazy woman... I had gotten just about to the point where quite frankly, it didn't matter.... I was ill. He knew it too.... he knew it.
  10. His e-mail on his website is returning to sender, so it is ole letter and stamp... I am sending mine!
  11. Maybe Dr. Bost in Beaumont Texas has never REALLY had a cushings patient as a patient? Dr. Brent. Bost 3030 NORTH ST STE 310 BEAUMONT, Texas 77702 k
  12. I don't think it is about us. I think it is about donor fees, funds, grants, symposia, abstracts, speaker fees, and fame, not to mention admiration from friends and colleagues. Sadly, we have a few doctors who have forgotten why they are doctors. My uncle is a doctor - quite a surgeon amongst his colleagues, and he is quick to tell me all of the papers he has spent his lifetime on... and the lectures and the travels.... but I wondered as he once talked with me about his personal accomplishments amongst his colleagues... if he felt the same pride when he put humpy dumpty back together again... if he felt that same glow when he put shattered limbs, flesh, and soul back together again. Mother called me last week to tell me that my uncle was so upset, that he couldn't ski anymore, he tore his retina. I can't ski - too weak. Wonder if he can operate anymore. God thing? I went to a Healthcare Design Conference last week and had a blast listening to the case studies presented by design professionals solving problems in our hospitals and healthcare facilities. These people have the patients, doctors, and hospital staff as primary focus. It was like... here is the problem, and here are our constraints, and this is how we solved it and look at the result Whoo Hoo! The breakouts presented by the academia though... I wonder about those published studies. (Skeptic) But... I have a medical library card... and am glad to use it for you! Just ask! There is always another way
  13. I wear my pin everyday on my work badge!
  14. Here is a new article! The biochemical investigation of Cushing syndrome MARIE SIMARD, M.D. Division of Pediatric Endocrinology, Department of Pediatrics, University of Utah School of Medicine, Salt Lake City, Utah Neurosurg Focus 16 (4):Article 4, 2004, http://www.aans.org/education/journal/neur...pr04/16-4-4.pdf
  15. I was watching TV the other night, and they had an episode where the wife on this sitcom had alot of stress and was loosing hair by the handfuls. She went to the doctor and he checked her out and did testing. Her thyroid was fine. He told her to exercise and lose weight. So... the rest of the story started off on her exercise adventure with her husband... I lost interest pretty quickly (Im not a TV watcher anyways). Nice article... It is nice to get more attention about stress and what stress does to the body in the media. Now if we can get the discussion bumped up just a wee bit higher .
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