justashell
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About justashell
- Birthday 01/01/1956
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I was interested in reading about this, but can't get the pdf to download.
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Shelley, I forgot to mention a condition called temporal arteritis, or giant cell arteritis. symptoms can include changes in vision, headaches, and generally feeling like being run over by a bus might feel better. The scary thing is that in this particular condition, if not treated - with massive long term prednisone up to 2 yrs- just something to look up an compare symptoms. neck and jaw pain,
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I am very new to the site and just starting to poke around in the forums when I can find time (I am a single mother of a 4yr old little boy) during and after work. I wanted to tell you that some of your posts have really made me smile, and have helped me in many ways
Oh and we share the same birthday! Take care and talk soon! -
Thank you so much. There is at least one of your posts I read someplace each day that makes me smile.
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Wow. Who'd of thunk?
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Shelley,
You are AMAZING and you've taught me so much! I feel so honored to know you and you've touched my life and my heart more than you'll ever know. Thank you for your strength and outlook on life and God. You mean the world to me. .. You've suffered far too much and I do hope your endocrine hell comes to an end soon. Best of luck to you, Shell. You're in my thoughts.
Love, Nic
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Family's Despair over Rare Disease
justashell replied to staticnrg's topic in News Items and Research
MK---I think things are much the same way here---the doctor's look for the obvious---and just treat the symptoms---which doesn't always save any of us money...sadly, some pay with their lives---as you've indicated. Healthy people are productive people---that should be what we're aiming for...not trying to save a nickel... -
Family's Despair over Rare Disease
justashell replied to staticnrg's topic in News Items and Research
Robin--- What a heart-breaking experience for the family to have to endure---but how courageous of them to share it with others. One of the passages---"He used to say he felt like he was in a bubble where everything he did inside it seemed to be normal but to everyone outside the bubble he appeared to be losing his mind." really hit me like a ton of bricks---this is the best description of something that happened to me a couple of times... If and when I ever get a diagnosis, I'm sending a copy of this article to my "former" doctors, who did not and could not help me when I was most vulnerable. Thanks for sharing this! -
Victoria---
I just want you to know that I care---we're all pulling for you---we know you're going through some tough stuff..
Shelley
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wow. what a chart. the tests of the syndrome
justashell replied to barbj222222's topic in News Items and Research
I have had times when I was more active at night---but kind of thought it was the effects of all the diet coke I drank throughout the day. Having Hashimoto's has really caused lots of confusion for me and the doctors. It's great to know that there may be some other, less obvious reason, why there are days I'm up until late and other times when I'm on a more normal sleep-wake schedule.
