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SusanM

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SusanM last won the day on March 25 2022

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About SusanM

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  • Gender
    Female
  • Location
    Massachusetts
  • Interests
    Knitting and designing knitwear, writing, public speaking and all needle arts (knitting, cross-stitch, etc.)

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  1. Sounds like work! On the other hand, it sounds like it will be very helpful to some. Just curiosity...what was this stopped before? Was there a problem?
  2. Thanks, MaryO. My apologies, I didn't go back to the original but read just what was in this thread.
  3. Melissa of TX, thanks for doing this work and pulling this list together. As I read through it, the list has a powerful impact to the reader. Having to have a list like this makes me sad (that any of us are sick), but doing so helps the world understand more about who we are. I elected not to participate for personal reasons, but encourage others to do so. One minor thought....pituitary adenomas are not the only thing that causes Cushings. Pituitary Hyperplasia is the rare form of this disease and thought you may want to update the definitions portion to include pituitary hyperplasia along with pituitary adenomas.
  4. There's a fine example of patient advocacy. Thanks to the help of your sisters, you found the answer. That's amazing!
  5. Best wishes that this is processed quickly and approved for you.
  6. Thank you susan, every day i check in and it gives me the energy to fight! with out you and this heaven sent site i would still be on the GP tread mill, as far as encho heres there is only two in the state.....

    cheers and hope to talk soon Vicki xx

  7. http://www.healthgrades.com/directory_search/physician/profiles/dr-md-reports/dr-daniel-kelly-md-0433d821

    Here's the information for Dr. Daniel Kelly who is a neurosurgeon out of Santa Monica. he is well known and respected.

    Good luck!

  8. Found this article today on Dr. F's website and think it is very helpful. It has quite a bit of research data which is interesting and many of us have contributed to that data! Enjoy. http://www.goodhormo...ushings-hmr.pdf Title: High Prevalence of Normal Tests Assessing Hypercortisolism in Subjects with Mild and Episodic Cushing ’ s Syndrome Suggests that the Paradigm for Diagnosis and Exclusion of Cushing ’ s Syndrome Requires Multiple Testing
  9. Susan: It would seem that we have quite a bit in common. Age, spinal injury, and most important, interests. I'm also an avid scrapbooker, needle worker and in a past life, was a communications specialist. Thanks for your ideas!

  10. Susan, Thanks for being one of the first people on this board to help and encourage me. I'll never forget it. Love, Sallyt

  11. Interesting. It's a beta-blocker which is a very common hypertension drug. I take and have taken it for over a year. I asked the endo about it prior to doing testing and I was told the drug would not interfere with testing. The adrenaline comes from a different portion of the adrenal gland than cortisol. I believe that is the reason why there is no impact to the cortisol testing. Thanks for sharing....interesting!
  12. Way to go, MaryO! I am so happy to see the the contribution going to the running of the boards! TERRIFIC!
  13. Kathi: On my screen, those five fingers are the rays of the sun that is in the corner of that area. Are you on XP or an earlier version of Windows? Thinking that maybe you aren't seeing the sun and clouds.
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