Sounds like work! On the other hand, it sounds like it will be very helpful to some. Just curiosity...what was this stopped before? Was there a problem?
Melissa of TX, thanks for doing this work and pulling this list together. As I read through it, the list has a powerful impact to the reader. Having to have a list like this makes me sad (that any of us are sick), but doing so helps the world understand more about who we are.
I elected not to participate for personal reasons, but encourage others to do so.
One minor thought....pituitary adenomas are not the only thing that causes Cushings. Pituitary Hyperplasia is the rare form of this disease and thought you may want to update the definitions portion to include pituitary hyperplasia along with pituitary adenomas.
Thank you susan, every day i check in and it gives me the energy to fight! with out you and this heaven sent site i would still be on the GP tread mill, as far as encho heres there is only two in the state.....
Found this article today on Dr. F's website and think it is very helpful. It has quite a bit of research data which is interesting and many of us have contributed to that data! Enjoy.
http://www.goodhormo...ushings-hmr.pdf
Title: High Prevalence of Normal Tests Assessing
Hypercortisolism in Subjects with Mild and Episodic
Cushing ’ s Syndrome Suggests that the Paradigm
for Diagnosis and Exclusion of Cushing ’ s Syndrome
Requires Multiple Testing
Susan: It would seem that we have quite a bit in common. Age, spinal injury, and most important, interests. I'm also an avid scrapbooker, needle worker and in a past life, was a communications specialist. Thanks for your ideas!
Interesting. It's a beta-blocker which is a very common hypertension drug. I take and have taken it for over a year. I asked the endo about it prior to doing testing and I was told the drug would not interfere with testing.
The adrenaline comes from a different portion of the adrenal gland than cortisol. I believe that is the reason why there is no impact to the cortisol testing.
Thanks for sharing....interesting!
Kathi:
On my screen, those five fingers are the rays of the sun that is in the corner of that area. Are you on XP or an earlier version of Windows? Thinking that maybe you aren't seeing the sun and clouds.