How to use these boards
Using this forum is very simple. Select a topic and enter your comments--that's all there is to it! Other users will read your remarks and post their replies and offer suggestions and encouragement.
We do not dispense medical advice here or endorse any specific doctors or medical institutions. We also do not endorse the views and opinions expressed on this forum.
Before considering any treatment that affects your health, consult your doctor or qualified medical personnel.
Many members have worked hard to establish April 8 (Dr. Harvey Cushing's Birthday) as Cushing's Awareness Day. This area includes several threads such as: about the proclamation, itself; what you can do to promote that day; list of people to contact before the 8th; and other helpful info.
We all need a break every now and then from talking about testing, symptoms and surgery. We can use this area to post humor, funny stories, recipes, just chatter...anything that will take our minds of medical troubles and lighten our days
i am trying to do the bio.
how do i amend it or update it...i am diagnosed and i did get tests back that it says i didn't.
i'm having trouble doing this and also posting any pics.
I want to get this all organized and i also don't see my drs name that i put in the bio.
In patients with a diagnosis of Cushing disease in whom magnetic resonance imaging (MRI) shows either no abnormalities or nonspecific abnormalities, surgery is preferable to medical treatment...There is a consensus that the first line of treatment for Cushing disease is transsphenoidal surgery to remove the pituitary adenoma causing the disease, with an 80% remission rate following the intervention. However, in the absence of clear evidence of a pituitary adenoma on imaging, there is some controversy regarding the best treatment.
Read more at https://cushieblog.com/2019/05/25/transsphenoidal-surgery-recommended-for-cushing-disease-with-inconclusive-or-normal-mri/
Comment added to Deborah S, Undiagnosed Bio. I am having the exact same thing (symptoms, test results and Dr. Frustration) and driving myself crazy trying to figure it out. Did you ever get a proper diagnosis?
Read more at https://cushingsbios.com/2016/03/19/deborah-s-undiagnosed-bio/
In Memory: Kathryn McBride ‘Bridie’ Miller, Murdered May 1, 2007
'My name is Caroline and I dont post often but have met a few of you guys and read the board regularly, it has definitely been a godsend to cushies everywhere. The reason I am writing tonight is I have just received devastating information about a dear friend of mine, and a woman some of you may have met during testing. Her name is Kathryn Miller and she is a patient of Dr. Ludlam, that is how she and I met. She was diagnosed with cushings late last fall and had surgery in December and was doing pretty well afterwards...'
Read more at https://cushingsbios.com/2019/05/01/in-memory-kathryn-mcbride-bridie-miller-2/