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Guest Message by DevFuse
 

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Event: Cushing's Help and Support Birthday!

in Cushie Calendar
Added by MaryO , 11 Jul 2010


Taking place 21 Jul 2006 through 21 Jul 2015 (Recurring Event)

MaryO


Posted Image

It's unbelievable but the idea for Cushing's Help and Support arrived 12 years ago last night. I was talking with my dear friend Alice, who runs a wonderful menopause site called Power Surge, wondering why there weren't many support groups online (OR off!) for Cushing's and I wondered if I could start one myself and we decided that I could.

The first website (http://www.cushings-help.com) first went "live" July 21, 2000 and the message boards September 30, 2000. Hopefully, with these sites, I'm going to make some helpful differences in someone else's life!

The message boards are very active and we have weekly online text chats, weekly live interviews, local meetings, email newsletters, a clothing exchange, a Cushing's Awareness Day Forum, podcasts, phone support and much more.

Whenever one of the members of the boards gets into NIH, I try to go to visit them there. Other board members participate in the "Cushie Helper" program where they support others with one-on-one support, doctor/hospital visits, transportation issues and more.



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