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  1. Yesterday
  2. @Americanoid @JackiSchechner And you are suffering from total denial syndrome. Just wait!

  3. DUH!  Cushing's disease best treated by endocrinologist

    I was told that I have Cushing's disease, which has caused diabetes, high blood pressure, hunger, weight gain and muscle loss. I was never sick before this, and I did not have any of those things. I am told I have a tumor on my right adrenal gland. I have been to numerous doctors, but most have not been too helpful.

    Read more at https://cushieblog.com/2016/10/04/cushings-disease-best-treated-by-endocrinologist/

  4. The latest The Cushings Daily! https://t.co/rdlZGx1kUf Thanks to @pyramidmedicine @aautomo884 @thibaudguymard #hcsm #hcsmeu

  5. Last week
  6. @AdamWeinstein @JoyAnnReid Hypocritical coward!

  7. The latest The Cushings Daily! https://t.co/NYShNnSGUc Thanks to @wusa9 @Paulflevy @scanman #hcsm #winterolympics

  8. The latest The Cushings Daily! https://t.co/sZegZhcKrj Thanks to @aautomo884 #hcsm #winterolympics

  9. NIH Clinical Center: Facts at a Glance

    As a research facility, only patients with the precise kind or stage of illness under investigation are admitted for treatment at the NIH Clinical Center. There are no labor and delivery services and no other services common to community hospitals.

    Read more at https://www.cc.nih.gov/about/welcome/fact.html

  10. Today is the Beginning of Lent So… https://t.co/prSOc0yCYh https://t.co/Y1XSbTKnj9

  11. In simple terms, Adrenal Insufficiency occurs when the body does not have enough cortisol in it. You see, cortisol is life sustaining and we actually do need cortisol to survive. You have probably seen the commercials about 'getting rid of extra belly fat' by lowering your cortisol. These advertisements make it hard for people to actually understand the importance of the function of cortisol.

    Read more at http://www.cushings-info.com/index.php?title=Adrenal_Insufficiency

  12. What You Should Know About Pituitary Tumors

    Treatments may include surgery, radiation therapy or medication. Transsphenoidal surgery is surgery performed through the nose and sphenoid sinus (located in the very back part of the nose, just beneath the base of the brain) to remove a pituitary tumor. It can be performed with an endoscope, microscope or both and is a team effort between neurosurgeons and ear, nose and throat (otolaryngology/ENT) surgeons. Radiation therapy uses high-energy x-rays to kill the tumor cells and is recommended when surgery is not an option, if the pituitary tumor remains, or if the tumor causes symptoms that are not relieved by medicine.

    Read more at https://cushieblog.com/2017/02/15/what-you-should-know-about-pituitary-tumors/

  13. The latest The Cushings Daily! https://t.co/19k4TvYGZb Thanks to @CRandC #hcsm #mhealth

  14. Patient’s Atypical Cushing’s Symptoms Lead to Discovery of Novel Genetic Mutations

    Primary bilateral macronodular adrenal hyperplasia (PBMAH) is a disorder characterized by multiple lumps in the adrenal glands and excessive cortisol production. It is a rare cause of Cushing’s syndrome...

    ...Overall, the study “highlights the importance of early recognition of atypical symptoms of Cushing’s syndrome such as exophthalmos, which would save the patient from harmful effects of excessive cortisol exposure,” the researchers said. 

    Read more at https://cushieblog.com/2018/02/14/patients-atypical-cushings-symptoms-lead-to-discovery-of-novel-genetic-mutations/

  15. This study was performed to assess how frequently preoperative medical treatment (PMT) was given to Cushing's syndrome (CS) patients across Europe and to investigate differences in preoperative characteristics of patients who receive PMT and those who undergo primary surgery. 

    Read more at https://cushieblog.com/2018/02/14/preoperative-medical-treatment-in-cushings-syndrome/

  16. Getting a diagnosis and dealing with tests can be a very trying time. Here are some words you'll want to know.

    Find them at http://www.cushings-help.com/definitions.htm

  17. Earlier
  18. From Tips from LindaP

    Things I've learned and wanted to share

    By LindaP, with a little help from other Cushing's Message Board members. This is a continuing list, if you want to share.

    I have learned so much on this Cushing's journey, much of it from all of you and this site. I wanted to share those learnings, in the event that it helps anyone else.

    Obviously - my own opinions here!

    My best wishes to everyone on their Cushing's journey.

    Read more at http://www.cushings-info.com/index.php?title=Help_Yourself,_Part_2

  19.  

    The worldwide prevalence of metabolic syndrome in obese people is estimated at about 10%. Conversely, the incidence of undiagnosed Cushing’s syndrome is about 75 cases per 1 million people.

    Cushing’s and metabolic syndrome share significant clinical similarities, including obesity, hypertension, and type 2 diabetes. Therefore, “making the diagnosis is the least certain aspect in the care of patients with [Cushing’s],” Dr. Lynn Loriaux wrote.

    Read more at https://cushieblog.com/2017/10/29/the-challenge-of-obesity-in-diagnosing-cushings-syndrome-and-strategies-to-improve-methods/

  20. management.jpg

     

    These findings highlight the significant burden associated with CD. As current treatment options may not fully reverse the burden of chronic hypercortisolism, there is a need for both improved diagnostic tools to reduce the time to diagnosis and effective therapy, particularly a targeted medical therapy.

    Read more at https://cushieblog.com/2017/08/13/the-burden-of-cushings-disease-clinical-and-health-related-quality-of-life-aspects/

  21. The latest The Cushings Daily! https://t.co/c1LWVb1omn Thanks to @aautomo884 @AcroCommunity @CBSNewYork #hcsm #meded

  22. Karen’s disease started when she was a little girl (7) and she finally got a diagnosis in 2005. She had cycling Cushing’s, Thyroid disease, GH deficiency, and Auto immune Alopecia. She believes she is cured after two Pituitary surgeries. A doctor didn’t advise Vermont’s Karen Nolan (Rooon on the boards) that she might be one of the scant 3.5 per million people diagnosed annually with Cushing’s disease – another Cushing’s patient did.

     

    Read more at https://cushieblogger.com/2017/04/12/karen-nolan-cyclic-cushings-part-2/

  23. Ashley's mother has Cushing's and she  just found out she has high cortisol levels, too.

    Read more at https://cushingsbios.com/2018/02/12/ashley-d-possible-familial-cushings-bio/

  24. Myth: “It is MY fault that I got Cushing’s. I did something wrong that caused me to be sick! 

    Fact: This is a very controversial topic because we don’t like to talk about it. However, many people struggle with this myth.

    Read more at https://cushieblogger.com/2017/04/12/myth-it-is-my-fault-that-i-got-cushings/

  25. Myth: “It is MY fault that I got Cushing’s. I did something wrong that caused me to be sick!  Fact: This is a very… https://t.co/PW56PUy7Iz

  26. After Your Transsphenoidal (Pituitary) Surgery

    After your physicians have determined that it is reasonably safe to discharge you from the hospital following transsphenoidal pituitary surgery there are a number of important situations that may arise. Most people feel well after discharge. However, you should be aware of these possible problems, just in case. The following general guidelines are provided to promote your health and safety.

    Read more at http://www.cushings-info.com/index.php?title=Pituitary_Post-Op

  27. Mika is from New South Wales, Australia.  She is not yet diagnosed with Cushing's but thinks she's close.

    Read more at https://cushingsbios.com/2018/02/11/mika-undiagnosed-bio/

  28. Cushing’s Diagnosis and Symptoms, part 2

    Listen as Robin Smith (staticnrg) and Mary O’Connor (MaryO) co-host Cushing’s message board members calling in to talk about their fight for diagnosis and treatment. The show will be opened with a brief explanation of what Cushing’s is and what the symptoms are.

    Listen at http://www.blogtalkradio.com/cushingshelp/2008/03/13/-cushings-diagnosis-and-symptoms-part-2

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