 We need *YOU* to volunteer |
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 Apr 27 2008, 01:59 PM
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#1
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 Website Founder  Group: ~Chief Cushie~
Posts: 12,031 Joined: 14-July 02 From: Fairfax, VA Member No.: 1,447  Gender:   |
After this Thursday's interview, there's no one else on the schedule. We need volunteers for this - it's easy to do and we will work with you on the time if Thursdays at 7:30 PM doesn't work for you.
Please consider sharing in this new online medium! |
  
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Apr 27 2008, 02:17 PM
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#2
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ChattyCushie  Group: Over 2000 Posts
Posts: 2,656 Joined: 11-October 03 From: Just outside Boston MA Member No.: 2,214  Gender:  |
Hey Mary, I think the voice chats are awesome. I would like to participate, but I am not on my game right now. I wouldn't mind being stuck on the end of the schedule though. Maybe by June I'll be a bit more up for it. Hope so. |
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Apr 27 2008, 06:43 PM
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#3
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Member of the 1000 Post Group: Member of the 1000 Post Club
Posts: 1,993 Joined: 8-May 05 From: California Member No.: 3,750 Gender: |
I'm so afraid of saying something wrong or bad or... yikes!!! (IMG:style_emoticons/default/sofa_bricks.gif) If there's a topic, I'd be happy to do it. (IMG:style_emoticons/default/smile.gif)
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Apr 27 2008, 06:52 PM
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#4
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Over 2000 Posts  Group: Mega Poster!
Posts: 5,412 Joined: 10-November 06 From: Colby, Ks Member No.: 6,517 Gender: |
Sign up Lisa, I want to hear your story! The topic is "you & Cushing's"!!!! Really, it's easy, just like visiting on the phone, you tend to forget that anyone is listening besides the interviewer.
Judy |
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Apr 27 2008, 07:20 PM
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#5
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Robin Group: Mega Poster!
Posts: 6,251 Joined: 30-March 05 From: SW Virginia Member No.: 3,529 Gender: |
Hi, Lisa and Lisa...it's easy. We'll ask questions to get you going, but you probably won't need them. You have so much info to share!! The time flies by...30" really isn't long.
XOXO Robin |
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Apr 27 2008, 07:46 PM
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#6
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Over 2000 Posts Group: Over 2000 Posts
Posts: 4,746 Joined: 25-November 06 From: HOT southern Nevada Member No.: 6,640 Gender: |
Hi all,
I haven't heard all the podcasts yet. However, I noticed that time ran out on all of those I heard and no one got to call in. I wonder if you could even have some of the old guests back on with the chance for us to call in. I don't feel I would be a good guest at this point since I don't have any answers about my condition yet. But once I get squared away, I would love to share. love, melly in nv |
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Apr 27 2008, 08:25 PM
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#7
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ChattyCushie Group: Over 2000 Posts
Posts: 2,656 Joined: 11-October 03 From: Just outside Boston MA Member No.: 2,214 Gender: |
Ok Robin... Sign me up. :.) I usually am good at talking a lot--maybe too skilled at it... lol Just these days I forget where I'm at...lol... So I'm thinking you might get a little better interview in a couple of months. So if you get some more takers I'll def. let them go first. :.) |
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Apr 27 2008, 08:34 PM
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#8
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Member of the 1000 Post Group: Member of the 1000 Post Club
Posts: 1,785 Joined: 15-October 06 From: Praia de Copacabana Member No.: 6,331 Gender: |
I would do it, although I haven't had surgery yet. Is there a guideline on who can speak based on diagnosis/treatment?
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Apr 27 2008, 11:02 PM
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#9
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Over 2000 Posts Group: Over 2000 Posts
Posts: 4,011 Joined: 7-April 04 From: Hinesburg, Vermont Member No.: 1,180 Gender: |
I want to hear the Lisa's stories................It' easy and Mary and Ribin help you if you get Cushie mind and forget something.
I'll be listening |
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Apr 27 2008, 11:22 PM
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#10
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Chatty Cushie  Group: ChattyCushie
Posts: 790 Joined: 9-July 06 From: Charlotte NC USA Member No.: 5,650 Gender: |
We all have pretty much the same story, and still each is unique. Some have more trouble getting a diagnosis confirmed, others have no idea what to look for, just knowing something is wrong. Put me on a schedule, and send instructions! Mine gets a little graphic in the post surgical experience.
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Apr 27 2008, 11:44 PM
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#11
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Website Founder Group: ~Chief Cushie~
Posts: 12,031 Joined: 14-July 02 From: Fairfax, VA Member No.: 1,447 Gender: |
The instructions are here: http://www.cushings-info.com/forms/interview.htm (IMG:style_emoticons/default/smile.gif)
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 Apr 27 2008, 11:48 PM
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#12
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Past CUSH Representative Group: Over 2000 Posts
Posts: 3,470 Joined: 28-June 01 From: Pittsburgh, Pennsylvania Member No.: 24 Gender: |
MaryO and Robin,
I would call in (I havent heard the podcasts yet) but my case is very old. I had florid cushings and surgery April 19th, 2000. That was 8 years ago. All i could talk about is the lingering effects of having had post cushings and then having another illness - vertigo, and the complications of steroids that would arise. I think the only benefit in me talking would be to talk about why recovery can take longer than the best of doctors can predict. BUT, I DONT WANT TO DISCOURAGE anyone in the recovery process. I think there are many others who are more up-to-date in their knowledge and journey of cushings. I have done TV segments and did awareness interviews in 2000, so .....................if you want to do one on vertigo???? No really, I dont feel i am a good candidate. xo Judy xo ..........and keep up the good work. Maybe I could get my sister to do an interview...now that would be an interesting interview !!! ...........or my son ??? ......... ACTUALLY, I HAVE JUST TALKED WITH MY SISTER AND SHE IS VERY WILLING TO TALK FROM THE VIEWPOINT OF ....HAVING A SISTER WHO HAS COME DOWN WITH CUSHINGS AND HOW IT EFFECTED HER LIFE.........If this is something you are interested in I can let her know. She is sick with a bad cold right now so it would be a few weeks from now..... |
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Apr 28 2008, 02:47 AM
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#13
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Long-time Board Member  Group: Long-time Board Member
Posts: 406 Joined: 24-September 07 From: Boise, Idaho Member No.: 8,602 Gender: |
Tomorrow is my 6 month post-op MRI and doc visits. Depending on outcome of that I would be willing. If it goes well I will be telling everyone of my CURE!! Willing listeners or not:) Stacey
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Apr 28 2008, 05:14 PM
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#14
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Long-time Board Member Group: Long-time Board Member
Posts: 213 Joined: 8-March 08 From: UTAH!!! :D Member No.: 9,541 Gender: |
I would do it!!!! haha
but I have no answers....... My story is kinda boring too. but I'd be willing if you really needed someone to fill up time hehe |
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Apr 28 2008, 07:30 PM
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#15
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Long-time Board Member Group: Long-time Board Member
Posts: 277 Joined: 20-April 06 From: Scottdale, PA Member No.: 5,206 Gender: |
I can do it, although I would probably be best at just answering questions. I had surgery 2 years ago, but still trying to figure what is wrong with me now.
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Apr 28 2008, 11:46 PM
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#16
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Board Member Group: ChattyCushie
Posts: 641 Joined: 2-December 02 From: washington state Member No.: 1,884 Gender: |
I'll be happy to do it. Jordan said she would too. We could probably get Sam too; but she'd just talk about her horse.
Let me know Mary. Jackie |
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Apr 29 2008, 12:00 AM
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#17
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Website Founder Group: ~Chief Cushie~
Posts: 12,031 Joined: 14-July 02 From: Fairfax, VA Member No.: 1,447 Gender: |
Ok, the people who have said that they would do this (so far) are:
People who filled out the form at http://www.cushings-info.com/forms/interview.htm FerolV (I got her form first) HeatherS (second form) People sounded serious from this topic: Lisa (Ikho) Copacabana Judy's Sister Stacey LynziMarie Jackie Jordan For those other than Ferol and Heather, please PM me if you have a bio. If you don't have a bio up, please PM me a little about yourself so that there can be info put up about you on the Guest Speakers page at http://www.cushings-help.com/guest-speakers.htm If you have days / times that are better for you, I'd like to know that, too. I offered Ferol the May 8 date but I haven't heard back yet. I offered Heather May 15 (or 8, depending on what Ferol said) but I haven't heard back from her, either, so most all dates are available. Thanks! |
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Apr 30 2008, 12:06 PM
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#18
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Over 2000 Posts Group: Over 2000 Posts
Posts: 4,982 Joined: 6-February 06 From: Schodack, NY Member No.: 4,833 Gender: |
Mary,
I wouldn't mind volunteering either, however, I feel kind of funny since I am not dx'd yet. Mar |
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Jun 13 2008, 12:10 AM
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#19
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Website Founder Group: ~Chief Cushie~
Posts: 12,031 Joined: 14-July 02 From: Fairfax, VA Member No.: 1,447 Gender: |
As I recall, these people posted that they would be interested in doing an interview. Please let me know if you still are or not so we can plan for the future. As it is right now, after next Thursday's chat there is no one on the schedule.
A few people have submitted online forms to be interviewed but none has gotten back to me to arrange a time.
Thanks! |
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Jun 13 2008, 07:22 AM
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#20
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Over 2000 Posts Group: Over 2000 Posts
Posts: 3,471 Joined: 13-August 05 From: Edinburgh Member No.: 4,134  Gender: |
Hi Mary, I would in, about 3 weeks time (IMG:style_emoticons/default/rolleyes.gif) |
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