8 replies to this topic

[MaryO]

Join us at 7:30PM eastern time at http://www.blogtalkr...om/CushingsHelp

Mar's signature:

6/04 DVT Deep Vein Thrombosis -diagnosed with Antiphospholipid syndrome & Lupus Anticoagulant
6/05 Rhuemy told me I "most likelly" have Sjogren's Syndrome
7/06 All normal Endo tests, except for the Saliva which was lost but a low
IGF-1 at 77
4/9/07 Tests in Seattle 2 relatively high Midnight serums 7.2 & 8.8 IGF-1 86 + 7 x 6 mm tumor
4/07 to present Still testing
9/07 Phone consult with Dr. L semi-high saliva's 4.7, 4.9 and 36.1 !!! He said to continue testing selectively and will go to Camp Cushie 11/12/07
11/07 Camp Cushie
11/13 12:15 a.m. ACTH 10 Cortisol 11.1, 12:30 a.m. ACTH 10 Cortisol 8.5,
4:00 a.m. ACTH 45 Cortisol 22.2, 8:00 a.m. ACTH 8 Cortisol 9.3, 12:00 p.m. ACTH 11 Cortisol 13.3,
4:00 p.m. ACTH 8 Cortisol 5.8, 8:00 p.m. ACTH 11 Cortisol 6.9

11/14 12:15 a.m. ACTH 15 Cortisol 12.5, 12:30 a.m. ACTH 10 Cortisol 8.3, 4:00 a.m. ACTH 26 Cortisol 17.2, 8:00 a.m. ACTH 15 Cortisol 16.5
Random IGF-1 70 Final result of stim test: 71 L (101-267) Two midnight (11:59 p.m.) saliva's 7.4 & 4.9

My Blog:
Mar's cushie couch

[Lorri]

MaryO, on Aug 13 2008, 09:41 AM, said:

Join us at 7:30PM eastern time at http://www.blogtalkr...om/CushingsHelp

Mar's signature:

6/04 DVT Deep Vein Thrombosis -diagnosed with Antiphospholipid syndrome & Lupus Anticoagulant
6/05 Rhuemy told me I "most likelly" have Sjogren's Syndrome
7/06 All normal Endo tests, except for the Saliva which was lost but a low
IGF-1 at 77
4/9/07 Tests in Seattle 2 relatively high Midnight serums 7.2 & 8.8 IGF-1 86 + 7 x 6 mm tumor
4/07 to present Still testing
9/07 Phone consult with Dr. L semi-high saliva's 4.7, 4.9 and 36.1 !!! He said to continue testing selectively and will go to Camp Cushie 11/12/07
11/07 Camp Cushie
11/13 12:15 a.m. ACTH 10 Cortisol 11.1, 12:30 a.m. ACTH 10 Cortisol 8.5,
4:00 a.m. ACTH 45 Cortisol 22.2, 8:00 a.m. ACTH 8 Cortisol 9.3, 12:00 p.m. ACTH 11 Cortisol 13.3,
4:00 p.m. ACTH 8 Cortisol 5.8, 8:00 p.m. ACTH 11 Cortisol 6.9

11/14 12:15 a.m. ACTH 15 Cortisol 12.5, 12:30 a.m. ACTH 10 Cortisol 8.3, 4:00 a.m. ACTH 26 Cortisol 17.2, 8:00 a.m. ACTH 15 Cortisol 16.5
Random IGF-1 70 Final result of stim test: 71 L (101-267) Two midnight (11:59 p.m.) saliva's 7.4 & 4.9

My Blog:
Mar's cushie couch

Mar,
Oh girl!!! I am so excited for you!!! I wish you the best of luck with the show, I know you will be great!! I hate that I can never listen to it live or call in, but you know my heart is there with you!!

Luv you,
Lorri

[mrsb91986]

Thanks Lori! Mary thanks for the reminder, but is it tonight or tomorrow night. I've got your email with the 14th on it. I don't want to screw this up. Thanks!



Mar

[aautomo884]

Good Luck Mar, I will listen in live if I can!!!

[MaryO]

Oops - I messed up on the date. It's tonight August 14 at 7:30 PM eastern

[kvb927]

I'm there!

[mrsb91986]

Thanks Mary!

Hugs,
Mar

[MaryO]

Great job. Mar - thanks!

[kvb927]

Hey Mar,

I listened last night. Good interview!

I am so glad to hear that new doctor is working with you. Regarding maternity leave - DOH! - nobody is ever on our time schedule with these things!

Love,
Katie