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Showing content with the highest reputation since 08/04/2010 in Status Updates

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    Still over weight but doing ok.... Can't control my sweating nor my weight. Very tired in the morning. Good to see everyone!
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    hi mary, i got a date for the IPPS procedure at the mayo clinic with Dr. Irina Bancos for July 2! I feel like Im halfway there to getting better...Im choosing to believe! Lili
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    MEKT1 Could Be a Potential New Therapy for Treating Cushing’s Disease PPAR-γ agonists — agents that activate PPAR-γ — include the medications rosiglitazone and pioglitazone, both of which are used to treat type 2 diabetes. Some studies have shown that rosiglitazone and pioglitazone have an effect on Pomc suppression, which would lead to lower levels of ACTH and help treat patients with Cushing’s disease. However, the benefits of PPAR-γ agonists in the treatment of Cushing’s disease are still controversial. Read more at https://cushieblog.com/2018/08/02/mekt1-could-be-a-potential-new-therapy-for-treating-cushings-disease/
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    Danielle had suddenly gained more than 20kg, found herself losing hair, constantly breaking bones and struggling to sleep. Making matters worse, the young mother became severely depressed and noticed an unusual-looking ‘hump’ on her back. Read more at https://cushingsbios.com/2018/07/28/danielle-g-pituitary-bio/
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    Transsphenoidal Surgery Is Safe and Effective Treatment for Cushing’s Disease Surgical removal of tumors in the pituitary gland of the brain remains the gold standard for Cushing’s disease treatment. Transsphenoidal surgery (TSS) usually leads to good remission rates ranging from 68-95%, depending on the location and type of tumor, the neurosurgeon’s expertise, follow-up period, and the definition of remission. Today, TSS consists of surgery directed through the nose to get to the bottom of the skull, where the pituitary gland is located. The tumor is reached via the nasal cavity with no need for incisions on the face. https://cushieblog.com/2018/07/28/transsphenoidal-surgery-is-safe-and-effective-treatment-for-cushings-disease/
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    New Testimonial From Melanie C I remember my first guest post in 2007, was overjoyed to find I wasn't the only medical anomaly lol! Congratulations to Cushing's Help for coming of age! ? Posted at https://cushieblogger.com/testimonial/melanie-c/
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    New Testimonial From Christina P I found it [Cushing's Help] 11 years ago quite by accident and it not only changed my life but saved my life! Thank you, Mary Kelly O'Connor! Read more at https://cushieblogger.com/testimonial/christina-p-5/
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    Cushings Help is almost 18! It's unbelievable but the idea for Cushing's Help and Support arrived 18 years ago tonight. Read more at https://cushieblogger.com/2018/07/20/were-almost-18/
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    In simple terms, Adrenal Insufficiency occurs when the body does not have enough cortisol in it. You see, cortisol is life sustaining and we actually do need cortisol to survive. You have probably seen the commercials about 'getting rid of extra belly fat' by lowering your cortisol. These advertisements make it hard for people to actually understand the importance of the function of cortisol.Read more at http://www.cushings-info.com/index.php?title=Adrenal_Insufficiency
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    Rare Disease Day Each and every day since 1987, I tell anyone who will listen about Cushing’s... Read more at https://cushieblogger.com/2018/02/28/rare-disease-day/
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    In Europe, nearly 20 percent of patients with Cushing’s syndrome receive some sort of medication for the disease before undergoing surgery, a new study shows. Six months after surgery, these patients had remission and mortality rates similar to those who received surgery as a first-line treatment, despite having worse disease manifestations when the study began. However, preoperative medication may limit doctors’ ability to determine the immediate success of surgery, researchers said. Read more at https://cushieblog.com/2018/02/26/benefits-of-medication-before-surgery-for-cushings-syndrome-still-unclear/
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    Benefits of Medication Before Surgery for Cushing’s Syndrome Still Unclear https://t.co/NPBQ9HJP20
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    I have not been on these boards in a few years. My status is stable and now on daily Cortef replacement due to stressful divorce, hypothyroid, hypopituitary....God Bless Dr F. who keeps me living my best quality of life. I never thought every day would be a new science experiment....but.....at least I'm 18 years post adrenalectomy / coma and 10 years post thyroidectomy and still enjoying life and family! Thank you Mary for these boards which back in 2000 were the only source of support and education there was for a patient like me. I joined them in 2000 and again in 2004. I will always be grateful for the sense of normalcy and belonging I found on this web site. I work from home now and have a great life! To all of you just starting the journey......DONT GIVE UP....LIFE IS WORTH LIVING AND YOU MATTER...With the right Drs on your team and these boards you can live your best life. Educate yourself and be proactive. Be strong and please don't be afraid to ask questions or ask for help......Blessings Lynn in Oregon
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    I'm very new to this site, but one of the first things I did was read through your story. It's inspiring to see how many people's lives you touched, and heartbreaking to read through what happened during your last few months. I hope you are at peace, and I wish you a very happy birthday!
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    RT @SenSanders: People do not deserve to die because they cannot afford health care. I cannot make it any clearer than that. Health care is…
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    In Memory of Kate Myers Kate (Fairley here on the Cushing’s Help message boards) was only 46 when she died on June 23, 2014. Read more at https://cushingsbios.com/2015/06/23/1623/
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    In Memory of Samantha Cohn June 20, 2015 Juilliard graduate Samantha Cohn, 34, crawled out a window in her 16th-floor apartment at West 71st Street and Broadway and jumped at 10:10 a.m. Her mother told investigators she had been diagnosed with Cushing’s syndrome, police sources said. Read more at https://cushingsbios.com/2015/06/20/in-memory-of-samantha-cohn/
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