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Join us on Saturday, October 13, 2018

10th Annual Johns Hopkins Pituitary Patient Day
Saturday, October 13, 2018, 9:00 a.m. to 3:00 p.m.

Location:
Johns Hopkins Mt. Washington Conference Center
5801 Smith Avenue
Baltimore, MD 21209
map and directions

Attendance and parking are free, but seating is limited. Reserve your space now: Please R.S.V.P. by email (preferred) to PituitaryDay@jhmi.edu  or by calling 410-670-7259.

Agenda

9:00 - 9:25 a.m.: Registration

9:25 - 9:30 a.m.: Welcome and acknowledgments (Roberto Salvatori, M.D.)

9:30 - 10:00 a.m.: Symptoms of Pituitary Tumors: Acromegaly, Cushing, and Non-Functioning Masses (Roberto Salvatori, M.D.)

10:00 - 10:30 a.m.: Effects of Pituitary Tumors on Vision (Amanda Henderson, M.D.)

10:30 - 11:00 a.m.: A Patient's Story (to be announced) 

11:00 - 11:30 a.m.: The Nose: the Door to Access the Pituitary Gland (Murray Ramanathan, M.D.)

11:30 a.m. - 12:00 p.m.: Surgery for Pituitary Tumors: Images from the Operating Room (Gary Gallia, M.D., Ph.D.)

12:00 - 12:30 p.m.: Radiation Therapy for Cushing, Acromegaly and Non-Functioning Tumors: When Needed, A Good Option (Kristin Redmond, M.D.)

12:30 - 1:25 p.m.: Lunch

1:30 - 3:00 p.m. Round Table Discussions:

Acromegaly


Cushing Disease


Non-Functioning Adenomas


Craniopharyngiomas and Rathke's Cysts



 

 
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im new to this and really am scared so i thought i would reach out
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Presented By

Daniel Prevedello, MD

Professor, Department of Neurological Surgery
Director, Minimally Invasive Cranial Surgery Program
Co-Director, Comprehensive Skull Base Center at The James
Director, Pituitary Surgery Program
The Wexner Medical Center at The Ohio State University


After registering you will receive a confirmation email with details about joining the webinar.

Contact us at webinar@pituitary.org with any questions or suggestions.

Date: May 8, 2018

Time: 3:00 - 4:00 PM Pacific Daylight Time, 6:00 - 7:00 PM Eastern Daylight Time

Webinar Information:

Learning Objectives:

Understand the importance of gland function preservation during pituitary surgery.


Understand the importance of preserving nose function related to the approach.


Understand the importance of team work in pituitary surgery



Presenter Bio

Dr. Prevedello is a professor in the Department of Neurological Surgery, and the director for the Minimally Invasive Cranial Surgery Program. He is one of only a few neurosurgeons in the world who have performed more than 1,000 Endoscopic Endonasal Approach (EEA) cases. EEA is a minimally invasive surgery technique that gives surgeons access to the base of the skull, intracranial cavity and top of the spine by operating through the nose and paranasal sinuses. Dr. Prevedello was rated in the top 10 percent of physicians in the nation for patient satisfaction in 2016 and 2017.

Dr. Prevedello’s current research focus is on developing minimally invasive approaches to the brain and skull base that will result in the best surgical tumor resection possible with the least amount of disruption to normal tissue. Finding a patient treatment option that reduces the amount of long-term consequences for patients and their families is always his top priority.

Dr. Prevedello's medical journey began in Brazil, where he attended medical school and finished his residency in 2005. He completed fellowships in neuroendocrine and pituitary surgery at the University of Virginia, and another in skull base and cerebrovascular surgery at the University of Pittsburgh.
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The EPIC Foundation would like to recognize Mary Kelly O’Connor as a pioneer in the Cushing’s community as an advocate and life changer!Mary Kelly O’Connor is definitely someone you should know!
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In Memory: Kathryn McBride ‘Bridie’ Miller

Murdered May 1, 2007

'My name is Caroline and I dont post often but have met a few of you guys and read the board regularly, it has definitely been a godsend to cushies everywhere. The reason I am writing tonight is I have just received devastating information about a dear friend of mine, and a woman some of you may have met during testing. Her name is Kathryn Miller and she is a patient of Dr. Ludlam, that is how she and I met. She was diagnosed with cushings late last fall and had surgery in December and was doing pretty well afterwards...'

Read more at https://cushingsbios.com/2015/05/01/in-memory-kathryn-mcbride-bridie-miller/
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Hello!

I was diagnosed with Cushing's disease almost two years ago--it was the slow-developing variety and had been impacting me for years without my knowledge.  Luckily, as soon as we suspected, all of my tests showed exactly what they were supposed to, and I got my diagnosis quickly.  My tumor was removed in June 2016, but my recovery has been painfully slow.  My cortisol and ACTH levels continue to be low, and my endocrinologist has not even started backing me off of my Prednisone.  I had to quite my job and move back in with my parents for support.  After the last test, she said that maybe it would never come back.  I am wondering if anyone else has experienced that--a complete surgical CURE, but then no RECOVERY.  I am a teacher and just tried to returned to the classroom this semester, but I feel so fatigued I worry I may have to permanently change careers.

Sarah
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