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Everything posted by LilDickens

  1. http://www.simplestepsdental.com/SS/ihtSS/...35299/pr.3.html "When people with Cushing's syndrome or Cushing's disease have complex dental procedures, they may be at higher risk of infection. They also may be at risk of cardiovascular collapse, in which the heart stops pumping blood. If you have Cushing's syndrome, it is critical that you tell your dentist or oral surgeon about it before you have any procedures. They also need to know if you are taking a steroid medicine. Your dentist or oral surgeon probably will monitor your blood pressure during the procedure. You also may need to take more steroids than usual before certain dental procedures. The need for extra steroids depends on a variety of factors. This often is coordinated with the primary physician. People who take glucocorticoid supplements for a long time are more likely to develop fungal infections in the mouth. This occurs because the drug suppresses the immune system. They may have high blood pressure and have difficulty managing blood sugar levels. Your dentist may want to check for these problems before treatment. People with Cushing's syndrome may bruise easily and may bleed more than normal during dental procedures. Wound healing can be delayed by multiple factors. These may include suppression of the immune system and poor clotting of the blood. " Thank you SAL
  2. Symptoms due to excess growth hormone or IGF-I vary widely. Increase in ring size or tightness of rings (due to hand swelling, "sausage-like" fingers) Increase in shoe size (due to foot swelling) Increased sweating Coarsening or thickening of facial features, especially the nose Increased prominence of jaw and/or forehead Thickened skin, especially on palms of hands or soles of feet Oily skin or acne Swelling of tongue Thickening or swelling of the neck (due to goiter) Arthritis (pain, swelling, or stiffness in any joint) Difficulty breathing during sleep (sleep apnea), causing poor sleep and excessive sleepiness during the day Pain, numbness, tingling, or weakness in hands and wrists (carpal tunnel syndrome) New overbite, underbite, or spreading out of teeth Large numbers of skin tags Acromegaly that affects the heart or blood pressure or causes diabetes may have another set of symptoms. These do not occur in everyone with acromegaly. Irritability Fatigue Fainting Weakness Increased thirst or urination Shortness of breath Chest pain Palpitations or rapid heart beat Poor exercise tolerance
  3. How have you been? Miss seeing you. Hope your ok!

  4. ""My Cushings and paraneoplastic wastings syndrome were caused by a cancerous tumor in my left lung. Of course every doc I saw said that it was from poor diet and lack of excercise even after i told them I have the perfect diet and fitness plan and can gain 3 to 6lbs in one day. Docs did not believe almost everything I was explaining but I kept going to more docs and explaining everything all over again. When I finaly convinced a doc i had cushings several scans of my head were being done. brain surgery was cancelled 2x i was given aprox 2 months to live. then in the nic of time based on their research my sisters convinced the doctors to stop arguing over my brain and look in the lung using an octreotide scan. BAM tumor lit up like a light bulb. Had my lung removed. Deadly Ectopic Cushings runs in my family. I had MANY MANY numerous secondary illnesses ALL were caused by my Cushing's. I think I may be cured I'm praying. Almost all of my horrible conditions disapeared w/my cortisol. I dont want to say it out loud because i dont want to jinx it but i do want to help others and would like to discuss this further w/anyone who is interested. Good luck to all of you. If it was not for my sister finding help here I would not be here. When i have cushing's type symptoms they r calling it carcinoid syndrome. it may last forever because that is the name of the tumor i had (carcinoid) which kinda was a blessing because it is less aggressive than small or oat cell wich is more common and much more aggressive. They did not know until they opened me up that my cancer had spread throughout the entire upper left lobe and the lymph nodes closest to the primary tumor. just trying to put info out there for others who may be doing their own research..." I would post the posting but I dont know how to do it! from HOPE 8,750 THANK YOU SO MUCH!
  5. Thanks to one of our devoted members, we have this info at our hands!: Managing Adrenaline Insufficiency http://www.cc.nih.gov/ccc/patient_educatio...s/mngadrins.pdf
  6. Wow, can't believe how impatient I feel...It's so very hard when I am waiting on Dr Mc to reply back to Dr Holmes about my recent MRI. It just seems like I am getting sicker everyday. I am getting depressed! My hands are so full of troubles right now, mom living with us with Alz, my hubby broke his thumb and home for 6 weeks now, and so on. Cushings Help gives me so much hope and helps me to stay on track.
  7. Hi , thinking 'bout ya....hope your doing ok!

  8. How ya doing? Hope all is well! KIM

  9. Good thing to keep handy...thanks! Daily Chart of Symptoms from Dr Laudlam http://www.snurgle.org/~polyhymn/ludlam.xls
  10. Borrowed from another poster...Article from Dr F on Iron "My endo, Dr F., puts his patients on an OTC product called, Iron Sorb. I have zero GI symptoms.!!!! Initially my ferritin was at 10 and is now reliably at 70-80. That's the level you want to keep it at. Here's the white paper he's written for his patients and docs to read. It will give you specific instructions on how many iron sorb pills to take a day depending on your current ferritin level. Also a link to the product and how frequently you should retest your level. It makes a huge difference when it gets to the right range!!!" http://www.goodhormonehealth.com/symptoms/...atigueaug06.pdf
  11. I am going to borrow this from one of our members. She hadn't slept for 2 years. To make a long story short, she found out that using Predisone instead of Cortef worked for her. It is stronger and from what I understand, longer lasting..... She is post op for 2 years. Hello All, Great news, I started taking a Prednisone at night before I go to bed, and wonder of wonders its working. I have slept, although I wake up a couple of times at night, for the last 4 nights. I had tried the Cortef before bed, as Dr. F suggested and it didn't work, but the Prednisone does. I guess with it being stronger, it does the trick. I am soo glad. It feels so much better to be able to sleep and feel like I have slept the next morning. Maybe this will help any body else who has the same problem. "removed for privacy"
  12. I showed concern in one of my post about having contracted MRSA and looking towards the future for having surgery.....Thought I would be turned down or something. Here's a really good answer I recieved: Yes, you can have surgery. The doctors will want to make sure you have pre-op antibiotic coverage. The best thing you can do to reduce the risk of a post-op infection is to wash with hibiclens (an anti-biotic soap) for a couple days before surgery. It reduces the bacteria on your skin and has been shown in british studies to reduce the risk of a post-op infection. Thank you, Happy41
  13. I am taking this off of another entry but I think it is really important to keep this address for alot of us Cushies..... Can have it done at Pitt......... Great source for free reading of MRI's, UPMC (University of Pittsburgh Medical Center) http://cushings.invisionzone.com/index.php?showtopic=41994 Direct website: Request Form: http://brainsurgery.upmc.com/patient-servi...rt-opinion.aspx Surgeons: http://brainsurgery.upmc.com/meet-the-surgeons/
  14. As I sat in the ER room waiting for a DX, a Dr was going over my health history, a short qiuck intro to my extended health issues. You could see the dismay in his eye that he had yet another case to deal with. My Family doctor didn't come to the hospital so I was adopted by the physicans on staff. I started to tell him about the high cortisols I've been showing and how I mighthave Cushings. Right away he jumped on me, and with his foriegn accent he said " no, no, why you say this?" I showed him my hump and he said "yes, and..." He said where's the straites? I showed him those. He still didn't believe me and started arguing that Cushings is very rare. We were distracted by a nursing coming in to start my IV and the argument was dropped. I was trying to make a point that I did not want ANY Steroids given to me. What an attitude we as patients get when we know a little bit more thatn the average "Joe." Just for the sake of it all, I copied and pasted my story here of what happened to me. It's not been easy. FOOT INFECTION Wow, where do I begin?I?ve went away last Weds, July 8th. It was going to be a nice trip?was. My daughter began labor the Monday before , but she never brought forth our grandson, so they induced her labor on Thursday, July 9th. Ok, that was all going smoothly. I gathered up my demented mother , our forteen yr old son and myself to travel 3 ? hrs away to be there for this grand event. The trip was to be uneventful; we arrived at our motel late but happy. In the morning, we got up, dressed ourselves and timed it out that we?d be there at the hospital to celebrate the birth of Krystian Layne?. Needless to say we hopped in the car at the motel, and the car wouldn?t start. So disappointed, and after many attempts (someone even giving us a battery jump) I called the service hotline to see what they could do. Meanwhile, my daughter called, and with a wimper in her voice, she asked ?where are ya, ma? ? ? it hurts? Oh, my, my heart went out to her. Service came an hour later, and we were on our way. No, we weren?t. The car would not stay running. I had a clutch, and with some fancy foot work, I low geared, and charged the car up to the service dealer, stalling several times. So the dealer took the car in to check it out but they had absolutely no loaner cars, and even the transport car was gone. They had one lone driver but no vehicle. Hearing our delemia, he jumped at the chance to help us out?so he came around the corner in his own personal vehicle to get us to the hospital, hopefully on time? and we did!!!! . Kyrstian was born 7lbs 7oz 20 ?? long. Beautiful little boy; beautiful full head of dark hair. Mom is doing great, too. But this isn?t the end of my story. My foot started hurting that day, from a previous time that a ganglion cyst had developed and was being treated with injections by a local Podiatrist for the pain it gave me; His proticol called for 6 of these injections, 2 weeks apart. Make a note that the area turned red and itchy the next day, I called and the Doctor said this was normal. My foot hurt all week, but I felt that I was in treatment and needed to be paitent. The pain intensified by late evening, to a point that I decided to go to the local ER for some relief/treatment. I dragged out my momma, my son and I about midnight, only to be there for about three hours, not yet even seeing a doctor. I sat in the hall way of triage, and wouldn?t get any further. I signed myself out and called a local Foot Care Center in the morning. The good Dr. drained my now abcessed, infected foot, and prescribed an antibiotic and pain meds. I was so intensly sick . I layed over at the motel for another day, over extending our trip in time and finances, because I got so down. I had a fever, vomiting and my foot turned red, and I could?t drive home for the pain I was in. I called the local doc but he told me I needed to be on the antibiotic for 48 hours; to hang in there. Early Sunday morning I got off the hard narcotics and took Ibprofen every two hours so I could drive the 3 ? trip home. The car after a few no starts, ran good, but traffic was terrible on the turnpike for a Sunday night. As soon as I got home to Greencastle, PA, my husband took one look at me and said ?let?s go.? My foot, ankle and leg ( up to the knee ) had turned red; pus and blood ran out of the needle hole where the aspiration had taken place earlier. I was admitted, and had emergency surgery on my foot at 10:30pm, with general annistheia. I was immediately put on several antibiotics vie IV and as I was wheeled into the Operation Room, I reacted to one of the antibiotics and they had to immediately give me Benedryl.The new foot doctor made two incisions to drain and clean the wound and packed both. As I write I am in the hospital with IV antibiotics ( 2 different kinds), awaiting a report on the culture to see what kind of infection it was. I might have to stay until Weds. Weds= I am now home on Weds night with a staph/MRSA infection. Needless to say I?m not very happy.
  15. Checking in...sounds like your getting help!


  16. Hi read your posts..so sorry you are suffering. I dont believe in Fibro..I feel it is undert treated thyroid or adrenal. Im near Hagerstown.

  17. Hi sweeite. Finally getting some testing by local Endo .. MRI, etc...soon. Nice doc! Hope you'll find your way soon. I know your so sick ..Hugs!

  18. Hi , how ya doing? Im waiting on a saliva test I ordered myself..we'll see!

  19. Checking in on oyu to see how your doing? Hang in there ...

  20. I love your gatitude list...thank you!

  21. I hope you get some help soon. I see how sick you are. My prayers are with ya! Hang in there! Kim

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