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Shaw

ChattyCushie
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Shaw last won the day on January 2

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28 Great Answers

About Shaw

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  1. Normal Random Cortisol

    Random cortisol is kind of a useless test to test for Cushing's and yes you can have a normal random cortisol result and still have Cushing's.
  2. Hi there ..Not sure if I wrote you .I am fairly new here and dont quite know where to go from here .. I am looking to talk to someone with cushings in my area .. I am 30 min fom ottawa .. I am sure you replied to one of my posts ..please try and contact me .. I am dying from this stupid cushings I am sure that is what I have .

    1. Show previous comments  3 more
    2. lise

      lise

      Hi Shaw .. I am very happy to say I got 24 hour cortisol back results are elevated and I have an appointement with an endo who specialises in cushings in montreal for the 23rd .. I am so happy .. I just feel so sick these days ..this is realy my last hope .. I cant take this much longer .. I went from working 10 to 12 hours a day 7 days a week to being in a wheelchair after back surgery an doing nothing for the past 7 years .. The last year has been hell muscle weakness and very lethargic ... I hope this hole ordeal will be over soon .

    3. Shaw

      Shaw

      Having a high 24 hour cortisol is the best news for testing. For most people it's the hardest test to come back high but for me my other tests were normal except my urine test. I did many 24 hour cortisol tests and all were elevated so they really helped me get to surgery. The muscle weakness is the worst part, I used to tell my doctors it feels I'm trying to walk in wet clothes. The muscle weakness was the first and quickest thing that improved for me so here's hoping you can move along to treatment soon!

       

    4. lise

      lise

      Thank you Shaw for the encouragement . I cant wait ..Feeling pretty down these days ... Thanks again .

  3. Here's a section on doctors that people have found helpful http://cushings.invisionzone.com/forum/26-doctors-hospitals-insurance-nih-and-disability I found good endos by reading their reviews on rate my doctor. I didn't find a Cushing's expert where I'm from but found a great doc who was open minded and helped.
  4. Is Cushings worth looking into?

    The dried urine isn't really going to be helpful for looking into Cushing's. You'd be better off doing a 24 hour urinary cortisol if your doctor will order one.
  5. Is Cushings worth looking into?

    You said you did a urine test; was that a 24 hour urine test? What can happen with Cushing's is you have high cortisol levels at night but very low ones during the morning/day and if you do a 24 hour urine sometimes these almost cancel each other out and your result is a completely normal urine test.
  6. How to search the boards?

    Top right hand corner there's a box that says "Search..." You can select where you want to go search (All Content, Topics, Members etc). I believe you have to register/create an account. before the search function is visible.
  7. Welcome to the boards! Sorry you have to be here but I hope you'll find answers to any questions you might have. There are a few of us who that still hang out just in case we can be of help and so much information in older posts that is still so relevant. Take care!
  8. I believe it's been posted about quite a bit. Try searching the forums using: Korlym (it's the name of the drug).
  9. Greetings to a fellow Canadian! Where in Can. are you from?

    Welcome to the boards!

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