Carolyn1435

Hi Hollie, I don't think you will have any trouble loosing the weight things just seem to fit in to place once the surgery is done. Everything just goes back to normal instantly it is amazing. My diabeties cleared up I did't get one more bruise and the old ones finally went away. The skin on my hands was always breaking it was so thin just stopped and got better I was very weak but I think the tyroid had to do with that as well since you have thyroid problems as well make sure they are checking it. I went back to work straight away and everybody was wonderful there were days when I was a bit tuckered out and went home early but that was a job where I was on my feet serving people all day I think you will be fine if you are doing a desk job. Once your cortisol levels get up again you will feel incredible. Hopefully your pituitary gland will start to function quite quickly this is just something that you'll have to wait and see. Just remember It will not be very long and you will feel a million dollars. The weight lose thing is incredible I promise it will just fall off. Your body will start to function properly again. I know I was on a constant diet for years and still putting on weight now you will go back to normal and be able to loose it again.Your skin will feel and look better I had hair on my thighs etc. and it just vanished the camels hump at the base of my neck just gone. I went for a massage not long after the op and the guy commented on the lack of elesticity in my skin and lack of muscle tone he would not even rub me but put a towel over me first remember thou I had had it for at least 9 years and was at the stage where my muscles were weakening and I was breaking bones. This all gets better amazingly fast once the cortisol levels are back. As soon as I was on full replacement things just improved. I haven't felt this good for 10 years. You will be amazed at how things just fall into place. You should be very excited because this is probably the biggest thing to happen in your life I know I was getting to the stage where I thought If I was going to deteriorate at the rate I was I was not sure how long I would really like to be around. Now I tell you I intend to be here for a long time. And I will be enjoying every moment of it kind of makes you think about your priorities. Good luck I feel really excited for you because I know you are going to come through and be as amazed as I am at how good life can be.

Hi Hollie, My name is Carolyn I thought I had answered you but must have done something wrong I hope it works this time. I lhad your op almost two years ago now and am on top of the world. I had been looking for answers for nine years with doctors telling me to go home relax do some more exercise and lets face it your in your 40's so that's what you get. Well an old nurse got on the internet found some information about cushings and there I was at the endo and getting things moving. I had a 6 mm tumour on my pituitary gland I had it removed the operation itself if painless you have your nose packed for a couple of days which is a real sight but once again painless. They give you a shot of peth before they take them out and this is just a strange feeling more than painful. The hardest thing about the whole lot is that you can not allow yourself to sneese for a month. I got quite sick just after I got out of hospital and landed back there this was due to low sodium levels so if you do get ill please get them to check that out don't know what it was from. I can tell you things got better straight away. Your pituitary gland will be in shock for a while and you will need replacement cortisol They give you only a small amount and wait to see if the gland starts working again. Usually by around 6 - 9 months things will be back to normal levels. They damaged my gland a little and so I now have to be on full time replacement but there are no other side effects ( the hot flushes could be from that but I am 49 so they could be just there any way ) but this doesn't usually happen. I also had a tumour on my thyroid which made me quite ill and 6 months after the op I had neuclear treatment to fix that. It seems to be behaving itself quite well now. I now have a wonderful new job and people can not belive the difference. People who only met me during my cushings are completely blown away but everybody who knew me before just say no now we have the old Carolyn back. The first year was trying at times as I was very weak but it all just gets better and better each day. I would love to hear how you go. I would like to get to talk to somebody on cortisol replace ment as I don't really know how to manage different situations. All the best and I know things will be good for you Carolyn

Hi Carolyn here, I am on hydrocortisone tables my pituitary does not tell the adrenal to produce cortisol evan thou they can. After the op they tried to stress the pituitary to function and I was only on small amounts. But after 10 months my levels were actually going down and I was getting pretty weak. As soon as I started full replacement I felt sooo much better actually only took a few days of corse I just gradually got stronger and stronger. I do get hot flushes but that would probably be the only side effect I can think of. Thats a small price to pay for such a change in my life. A couple of years ago my outlook was not too bright. Hope you get something to suit your daughter soon. Best of luck

Hi Carolyn here I had a pituitary tumour removed 20 months ago and am now on cortisol replacement would love to here from somebody who is also doing this and how they manage it. Nobody around here has even heard of Cushings and the doctors are not a great deal of help either considering I had been to every doctor in our town over the 9 years from when I first started getting symptoms and they all palmed me off as a neurotic. I take 10mg in the morning 6 at lunch and 4 at around 6pm stressing with a 22 year old son at the moment and not doing too well do I take more do I take more if I do a really hard days work do I take more if I have a big night on the town any info will be appreciated. Thanks