Sofia
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Status Replies posted by Sofia
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I now lost 22 lbs and Growth Hormone is wonderful for me. I feel so much better.
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that is so wonderful, you are an inspiration!
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I got a letter in the mail today saying my low dex test came back normal. It also said that my endo doesnt think i have cushings if thats true, then why do i have alot of the symptoms, my endo doesnt know what he is talking about.
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Mine also came back normal..its very frustrating that this disease and its testing is in like a stone age era. I get so upset when they call me with test results and its normal meanwhile you have all the freakin symptoms!!
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i am honestly not really understanding this disease or syndrome basically because i dont see how these tests to catch soo many "high" test results just to get cleared to have something wrong with you when clearly we are showing symptoms. Of all the diseases and syndromes and cancers and infections that people get...this one has only a couple of tests to tell you when you can "finally get treatment"???? Someone please explain this madness!
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Im sorry about your daughter I can't even imagine being in high school right now with this I am embaressed to go to the store lately. I was reading about dr f but im all the way in new york...between flight cost and hotel I don't kno if I can even do that right now even tho I would love to see him cause he seems like he is the only one who knows what he's doing. Where did he see the area of concern for your daughter? Mri or the other tests? Good luck to you and your daughter..this...
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Cant stop thinking about how my life used to be and how healthy i was..makes my heart break and my soul tear in pieces...
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thank you so much..i will
its good to talk to someone who can understand..i feel bad for the people around me that have to watch me complain about being in so much pain...
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Should I get a second opinion on my brain mri results ? The Surgeon who said he didnt see anything also was the same person who said the images werent clear and didnt ask me to retake them. He is well known and has done dozens of pituitary surguries. Should i still get that second opinion??
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thank you for your advice! I will make an appointment to get the second opinion on my brain mri. The surgeon also said that the images were blurry making me think "well why dont i just retake them if you cant see it clearly!" Yet the surgeon is well known in nyc, and has done thousands of pituitary surgeries so I dont know what to believe anymore. But i will get a second opinion.
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Bad day today, just wishing things would look up.
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hope you feel better. I know I have been hearing the same line but it's so frustrating to be sick and not know what you exactly have but know that its there, and have people tell you to feel better when you really wish that could just happen but doesnt at times. But it will in time. This website seems to be helping the success stories and information help a lot.
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Anyone from NYC and know of any endocrinologists that are actually good and want to help find my diagnosis??!!
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thank you mary i will look check out that site. Any help I can get is greatly appreciated.
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its good to talk to someone who can understand..i feel bad for the people around me that have to watch me complain about being in so much pain... 