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NES

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  1. I wasn't meaning hosted support groups - re: facbebook groups, and other non .com sites as "support forums". Noted -- and yep, I pretty much know that.. and I've done about 3 hours worth of research to see if there was another human cushings' forum and they all link back to this one. Every other site was run by a marketing company, which cost to even join ~ ----- I just get somewhat upset with the addutide and over promotion if needing help with "Do you want to keep the Cushing's Help message boards? Do you know that MaryO spends thousands out of her own pocket to keep it running? Do you want to wake up one day and find it gone? " When in reality over $1,000 of it seems to be "wasted", and you wouldn't need to pull money out of your pocket to keep it that way. This year alone donations; Donations: 410.23 USD Goal Amount: 2906.00 USD In theory just the domain and sever it shouldn't cost more then $300 a year to run this board, so you aren't just wasting *yours*, but donations and resources people are donation for the past several years - and I am only getting snappy because of your tone, but if you want to get techonical, it has some issues here The wiki can be made public. Glad to hear - they are a scam. Correct but the domain cost money as well as the redirects. Yes -- way to many subforums are clustering and somewhat confusing (I have a short fuse as I am living off a head ache 24/7 with NO releif., but it's soo clustery here that I'm not sure how anyone finds posts).
  2. Don't get me wrong this is the ONLY cushings forum out on the interent and we have to work with what we got - however, a lot of us ARE disablied by Cushings and can't donate but feel bad and reviewing the list makes us feel bad we can't donate... if the cost was cut down I'm sure we'd be able to help with the goal a lot more.
  3. Here is my "donation" (as i'm disabled by cushing's and phyical health issues.. and can';t work -- so I really don't have much to give). My knownelge with computers and budging is something I am good with. I'd be a lot more willing to donate money and contrbute to this this forum if the board was setup at least in a way that isn't frustrating to scroll down and view every single subforum and promotive "link". I also think the adminstration could cut down there "cost" of the site in 3rds (after reading the google doctument) the money/ donations aren't just going to the forums but a bunch of dead domain names that aren't needed. Mary posted this google doc in several places - https://spreadsheets.google.com/spreadsheet/lv?key=0AnOQDzq6VTAedGwtcERMWGNsOUQ3dDFielJRRzJtTEE&hl=en_US&authkey=CNPqo8IC "advanced SiteLock" - What site are you going through? - Site lock's are a SCAM. The site doesn't have http or https. cushie.info advanced SiteLock- $200 - Really? If this is yearly there is a HUGE probem here. "Cafepress (tshirts, etc) $6.95 --- $83.4" - You have to pay Cafepress? there are free sites that wont charge you It seems that you are paying them so they wont take fees out of the royalties. I almost think the charge per royalty selling might be best in this case ~ "Virus scanner for cushie.info $32.01" --- there are free ones on the net that I have personally used for websites that work wonders. "Cushings Help (Network Solutions - Domain Name Registration) $37.99" " - You can get domains for $12 each, ALSO this is included with Domain Name Privacy (No charge). If I'm understanding this correctly total (just 2013) is $553.62/year for the domains. Under one domain = $12/year, all six = under $80/year. I also notice you have the following domains (more then the 6 you list) http://www.CUSH.org http://cushings-info.com http://www.cushings-help.com http://www.cushingsonline.com http://www.cushings-support.com www.cushie.info/ http://www.cushings-info.com http://cushingsbios.com/ http://www.addisons-help.com/ http://cushieblog.com .. IPB boards offer a plugin for the wiki - http://www.ipbwiki.com/ ^ That cuts $79 a year If this doc that you show is true.. you are wasting $100 of dollars on it yearly..
  4. 8am ... Why oh why am I still up? -.-

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