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MaryO

~Chief Cushie~
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Status Updates posted by MaryO

  1. Transsphenoidal Surgery Leads to Remission in Children with Cushing’s Disease

    Transsphenoidal surgery — a minimally invasive surgery for removing pituitary tumors in Cushing’s disease patients — is also effective in children and adolescents with the condition, leading to remission with a low rate of complications, a study reports.

    The research, “Neurosurgical treatment of Cushing disease in pediatric patients: case series and review of literature,” was published in the journal Child’s Nervous System.

    Read more at https://cushieblog.com/2019/01/19/transsphenoidal-surgery-leads-to-remission-in-children-with-cushings-disease/

  2. Update on the Treatment of Pituitary Diseases:
    Emerging Therapies

    This course is suited for medical professionals, patients, and caregivers to improve patient care and outcomes through evidence-based discussion of clinical practice guidelines and emerging therapies in order to assess and update current practices to promote earlier diagnosis and treatment of pituitary diseases. 

    https://cushieblogger.com/2019/01/16/update-on-the-treatment-of-pituitary-diseases-emerging-therapies/

  3. New Cushie added to the Cushing's MemberMap.

     Holly W is from Harper, TX  She is not yet diagnosed with Cushing's.

    See the map at https://goo.gl/EKpyqr

  4. Another comment added to Stefanie, Pituitary Bio

    I was also diagnosed in 2012 and has surgery in 2013. I continue on meds and have many health issues still. I haven’t had a full recovery and dramatic weight loss or anything. I’m now starting to regret surgery as it has left me very limited in what I can do. I was far more mobile before. I miss my life. I’ve lost everything since having surgery!..

    Read more in the comments area of  https://cushingsbios.com/2019/01/11/stefanie-pituitary-bio/

  5. Comment added to Stefanie, Pituitary Bio

    I, too, was diagnosed with a pituitary tumor and subsequently had surgery to remove it. I still struggle day to day with many issues…word finding, comprehension, emotions. I also struggle with finding Cushings disease support groups in our area.

    In the comments at https://cushingsbios.com/2019/01/11/stefanie-pituitary-bio/

  6. Stefanie, Pituitary Bio

    Stefanie is from Michigan  She  was diagnosed in 2012 and had pituitary surgery done 2013. She is currently on medications.

    Read more at https://cushingsbios.com/2019/01/11/stefanie-pituitary-bio/

  7. Nicola C (Nikkikicks), Undiagnosed Bio

    Nicola is from Denver, Colorado  She was in a car accident in 7/17 and had prednisone.  That is when her symptoms started.

    Read more at https://cushingsbios.com/2019/01/09/nicola-c-nikkikicks-undiagnosed-bio/

  8. Comment added to Nicole, Undiagnosed Bio

    Your case is every similar to mine. I wasn’t a dancer but I did play multiple sports in high school and played college basketball. I saw doctor Yuen at Swedish as well and many more doctors as well. I have never got my case or my symptoms solved. Over 4 years of doctors and testing. They found I had a pituitary tumor and mildly high cortisol in my 24 hour Urine test with high levels of testostine...

    Read more in the comments at https://cushingsbios.com/2017/07/13/nicole-undiagnosed-bio/

  9. Comment added to Brian R, MENS Bio

    Thanks for sharing your story. In February it will be 6 years since I’ve had my pituitary surgery. My health is constantly up and down as well. I was just wondering if you’re treated for depression or anxiety at all? Also, have you found any exercises or physical therapy to be helpful? ...

    Read more at https://cushingsbios.com/2018/12/15/brian-r-mens-bio/

  10. In Memory: Lori Holt

    During the first few days of September 2007, Lori had surgery to remove her adrenal gland.
    She experienced extreme difficulty post surgery and never recovered.

    Read more at https://cushingsbios.com/2015/01/06/in-memory-lori-holt/

  11. In Memory: Jill's Father

    January 5, 2005

    Jill wrote: 'In December 2004 my dad who had addison's for over 30 years had a triple bypass surgery 6 days before Christmas. The surgery was an amazine success and it was predicted he would be home before Christmas. Day 2 following surgery the hospital neglected to give him his steriods for his Addison's for 22 hours, which they were completely aware that he had...'

    Read more at  https://cushingsbios.com/2016/04/29/in-memory-jills-father-january-5-2005/

  12. New Helpful Doctor added to New Jersey

    James K. Liu, MD
    Professor of Neurosurgery
    Director of Skull Base and Pituitary Surgery
    Rutgers University, New Jersey Medical School
    RWJ Barnabas Health

    Read more at https://cushieblogger.com/2019/01/05/helpful-doctors-new-jersey/

     

  13. Webinar:Treatment Strategies for Prolactinomas

    Learning Objectives:

    • To understand the medical therapies for prolactinomas
    • To understand the roles of surgery for prolactinomas
    • To understand the roles of radiation for prolactinomas

    Read more at https://cushieblogger.com/2019/01/04/webinartreatment-strategies-for-prolactinomas/

  14. A man with Cushing’s disease  - caused by an adrenocorticotrophic hormone (ACTH)-secreting pituitary adenoma - who later developed metastases in the central nervous system without Cushing’s recurrence, was successfully treated over eight years.. https://goo.gl/gmP8rS

  15. Caryl, Undiagnosed Bio

    Caryl is from Philippines.  She is not yet diagnosed with Cushing's but her OB-GYN told her she has PCOS.  She has several other Cushing's symptoms.

    Read more at https://cushingsbios.com/2018/12/31/caryl-undiagnosed-bio/

  16. Comment added to Rachel, Undiagnosed Bio

    Hi Rachel, I’m 27 and share very similar symptoms with you. I luckily have a great primary care doc who I can talk to about this during my next appt. I’d love to compare notes! Feel free to reach out.

    Read the original bio at https://cushingsbios.com/2017/04/03/rachel-undiagnosed-bio/

  17. Comment added to Diana M (dbear12003), Adrenal Bio

    This could be me! I need to talk to the person who wrote this. We have so much in common! We need to chat,

    Read the original bio at https://cushingsbios.com/2015/06/16/diana-m-dbear12003-adrenal-bio/

  18. Brian is from Pendleton, IN  He had thyroid surgery in October 2015 and a second in December 2015.  He also has had pituitary surgery.  In July 2018 blood tests confirmed his Cushing's is back.

    Read his bio at https://cushingsbios.com/2018/12/15/brian-r-mens-bio/

  19. Transsphenoidal surgery remains the mainstay therapy for CD in pediatric patients as well as adults. It is an effective treatment option with low rate of complications. Both endoscopic and microscopic approaches provide safe access to sella and satisfactory surgical results.

    Read more at https://cushieblog.com/2018/12/13/neurosurgical-treatment-of-cushing-disease-in-pediatric-patients-case-series-and-review-of-literature/

  20. Myth: “It is MY fault that I got Cushing’s. I did something wrong that caused me to be sick!

    Fact: This is a very controversial topic because we don’t like to talk about it. However, many people struggle with this myth.

    Read more at https://goo.gl/SPthiu

  21. New helpful endocrinologist specializing in Cushing's added to Pennsylvania. 

     https://cushieblogger.com/2018/12/12/helpful-doctors-pennsylvania/

  22. In Memory: Millie Niss Millie is the first Cushing’s patient that I know of to have died from complications from Swine Flu.  She was only 36.

    Millie developed a confirmed case of the H1N1 virus. She spent 29 days in the ICU of Millard Suburban Hospital before dying of complications of the flu, compounded by Behcet’s Disease and Cushings Disease.

    Read more at https://goo.gl/VEsjdt

  23. Mak is from California  She has been having a really rough couple years with a multitude of symptoms.  A  6mm microadenoma was found on her pituitary gland.

    Read her bio at https://cushingsbios.com/2018/11/26/mak-m-pituitary-bio/

  24. Louise from Washington   She has ACTH independent bilateral adrenal hyperplasia.

    Read her bio at https://cushingsbios.com/2018/11/23/louise-adrenal-bio/

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