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~Chief Cushie~
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MaryO last won the day on June 17

MaryO had the most liked content!

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About MaryO

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    Website Founder
  • Birthday September 22

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    Northern Virginia
  • Interests
    My family, computers, music, reading, ice cream, handbells, the Internet, Chinese Food, chocolate, watching ice skating competitions, napping, piano duets, Kindle, iPad...in no particular order.

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  1. until
    Are Sleep Apnea and Snoring the causes of your Weight Gain and Fatigue? Dr. Theodore Friedman hosts Jay Khorsandi, DDS from Snore Experts for a fascinating webinar on the relationship between Sleep Apnea, Snoring, Weight Gain and Daytime Fatigue. Topics to be discussed include: • Why does poor sleep lead to weight gain and fatigue? • Why are home sleep monitors better than in lab monitors? • What are the treatments for Sleep Apnea and Snoring? • Will the treatments lead to weight loss and more energy? • Dr. Friedman will also add some comments about the endocrine effects of poor sleep. Sunday • June 24th • 6 PM PST Click to start webinar at https://axisconciergemeetings.webex.com/axisconcierg…/j.php… OR Join by phone: (855) 797-9485 Meeting Number (Access Code): 287 844 283 Your phone/computer will be muted on entry. There will be plenty of time for questions using the chat button. Meeting Password: dreams For more information, email Dr. Friedman at mail@goodhormonehealth.com
  2. Comment added to Guest Question:  Is Itching Common with Cushing’s Syndrome?

    Were your itching, flushing and elevated BP episodes (cyclic) or there all of the time?

    In the comments area of https://cushieblogger.com/2018/05/30/guest-question-is-itching-common-with-cushings-syndrome/

  3. What Do You Think?

    A “friend” pushed me and I hit my head on a radiator and broke it and a few months after a tumor grew. I’ve been having symptoms ever since. Could I go after here and get compensation for medical care I need now?

    in the comments area of http://cushieblog.com/2016/12/21/pituitary-dysfunction-as-a-result-of-traumatic-brain-injury

  4. USC's 7 Tesla MRI scanner first to identify Cushing's disease in US patient

    A noninvasive 7 Tesla MRI scanner at University of Southern California is the first 7T scanner to be used on a patient with Cushing's disease in the U.S., according to a USC news release.  

    When a brain tumor was found to be "MRI-negative" in a 28-year-old female patient, physicians at the USC's Pituitary Center were unsatisfied with the results. After deciding to use the Neuroimaging and Informatics Institute's (INI) new ultrahigh field 7 Tesla MRI scanner to localize the tumor, the patient was officially diagnosed with Cushing's disease and researchers were finally able to be see the tumor that would've otherwise appeared hidden in a standard MRI.  

    Read more at https://www.healthimaging.com/topics/neuroimaging/uscs-7-tesla-mri-scanner-first-identify-cushings-disease-us-patient

  5. Cushing’s disease patients who exhibit nodules or masses in their lungs should be thoroughly investigated to exclude fungal infection with Cryptococcus neoformans, a study from China suggests.

    While rare, the infection can be life-threatening, showing a particularly worse prognosis in patients with fluid infiltration in their lungs or with low white blood cell counts in their blood.

    Read more at https://cushieblog.com/2018/06/16/cushings-patients-at-risk-of-life-threatening-pulmonary-fungal-infection/

  6. To all my Cushie friends who are still dealing with this horrible disease, keep fighting, don’t ever give up, you will get better.  I told a very close friend of mine the other day, if I had the power I would heal everyone you today.  Cushing’s is a horrible disease, and unless you have been through it there is no way anyone could ever understand it. 

    Read more at https://cushieblogger.com/2017/11/14/letter-to-cushies/

  7. Ectopic ACTH-producing thymic carcinoid tumors are rare, but often behave aggressively with local invasion and distant metastasis. We herein report a case of ACTH-producing thymic typical carcinoid tumor with lymph node metastasis treated by surgery and postoperative radiation therapy.

    Read more at https://cushieblog.com/2018/06/13/cushings-syndrome-caused-by-acth-producing-thymic-typical-carcinoid-with-local-invasion-and-regional-lymph-node-metastasis-a-case-report/

  8. MaryO

    In Memory: Diana Crosley

    Diana Lynn Alexander Crosley, age 58, of Sidney, passed away peacefully on Wednesday, June 18, 2014, at 10:10 p.m. at her residence surrounded by her loving family. Read more at https://cushingsbios.com/2015/06/18/in-memory-diana-crosley-2/
  9. MaryO

    In Memory ~ Sarah Fraik

    Sarah had recently had surgery to remove a tumor from her pituitary gland in the hopes of treating her Cushing’s Disease. She died on June 13, 2011 after a brief illness at the age of 28. Read more at https://cushingsbios.com/2013/09/14/sarah-fraik/
  10. In Memory ~ Sarah Fraik

    Sarah had recently had surgery to remove a tumor from her pituitary gland in the hopes of treating her Cushing’s Disease.  She died on June 13, 2011 after a brief illness at the age of 28.

    Read more at https://cushingsbios.com/2013/09/14/sarah-fraik/

  11. Radiation to the Whole Pituitary Compartment Effective at Controlling Cushing’s

    Radiation therapy targeting the entire sella — the compartment where the pituitary gland resides at the base of the brain — is effective at controlling Cushing’s disease and should be considered for patients with suspected invasive adenoma tumors, a new study shows.

    Read more at https://cushieblog.com/2018/06/02/radiation-to-the-whole-pituitary-compartment-effective-at-controlling-cushings/

  12. Thanks, Gig! I also got this answer from another Cushie:
  13. Sharon, I'm not sure of the answer to this question, but I have occasional itching. Mine started in perimenopause and it was helped by first taking estrogen pills, then weaning off them and onto soy shakes. When I became menopausal, the itching seemed to have stopped but it's returned in recent years. Only occasionally, but about every month I get intense random itching. Benadryl helps. Because of the seemingly cyclical pattern to the itching, I asked my endo about it and he said I should get my liver tested. (I didn't. I just put up with the itching when it happens). So I don't know the answer to this question but know that you're not alone! Best of luck to you.
  14. MaryO

    Vision issues Post surgery!

    Steve, I might be in the same boat. My vision seems to come and go but I figured it was just me getting older. I'm post-op nearly 30 years.