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    • MaryO

      Boards Closing?   04/16/2018

      We've had some version of these boards for 18 years and there have always been other people posting than just me.   I am seriously considering taking them down if no one else is interested.   If you want to see these boards remain, please post something or send me a PM.   Thanks!  

MaryO

~Chief Cushie~
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MaryO last won the day on April 23

MaryO had the most liked content!

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About MaryO

  • Rank
    Website Founder
  • Birthday September 22

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  • Website URL
    https://cushingsbios.com
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Profile Information

  • Gender
    Female
  • Location
    Northern Virginia
  • Interests
    My family, computers, music, reading, ice cream, handbells, the Internet, Chinese Food, chocolate, watching ice skating competitions, napping, piano duets, Kindle, iPad...in no particular order.

Recent Profile Visitors

14,179 profile views
  1. Autumn, Pituitary Bio PLUS Cushing’s Awareness Stickers https://t.co/xMzjstGFCI

  2. Heather, pituitary surgery on January 18, 2006 after years of medical problems, June 5, 7:30PM 

    Listen at http://www.blogtalkradio.com/cushingshelp/2008/06/05/interview-with-heather-s-pituitary-cushings-survivor

  3. A long-time member of the Cushing’s Help message boards, AutumnOMA , gave me permission to share info about these wonderful Cushing’s Awareness Stickers she has made

    Read more at https://cushieblogger.com/2018/04/23/%F0%9F%A6%93-cushings-awareness-ribbon-stickers-are-here/

  4. Fact: In simple terms, Adrenal Insufficiency occurs when the body does not have enough cortisol in it. You see, cortisol is life sustaining and we actually do need cortisol to survive. You have probably seen the commercials about “getting rid of extra belly fat” by lowering your cortisol. These advertisements make it hard for people to actually understand the importance of the function of cortisol....

    Read more at  https://cushieblogger.com/2018/04/22/myths-and-facts-about-cushings-each-person-requires-the-same-dose-of-steroid-in-order-to-survive/

  5. Leslie had pituitary tumors removed twice at the University Of Michigan. After her second surgery she gave birth to her second baby. She has had another recurrence and has had Gamma Knife Radiation April 3, 2008.

    Listen at http://www.blogtalkradio.com/cushingshelp/2008/05/22/interview-with-jackie-samsmon-jordan (The URL appears incorrect due to last minute guest changes.)

  6. Jackie (samsmom) & Jordan: Cushing’s in young people, the fight to diagnose, the amazing gift of a GOOD endocrinologist. Jackie has appeared on Discovery Health discussing her fight for a cure for her younger daughter, as well. Later, the gene responsible for Sam’s illness was found. Her father carried the gene as did her two sisters. Jordan, Jackie’s oldest daughter, has recently had her adrenals removed.

    Listen at http://www.blogtalkradio.com/cushingshelp/2008/05/15/interview-with-jackie-samsmon-jordan

  7. This is a tough one.  Sometimes I’m in “why me” mode.  Why Cushing's?  Why cancer?  Unfortunately, there’s not a thing I can do about either.  Cushing's, who knows the risk factors?  For kidney cancer I found out the risk factors and nearly none apply to me. So why? But why not?  No particular reason why I should be exempt from anything.

    Read more at https://cushieblogger.com/2018/04/20/day-20-cushings-awareness-challenge-2018/

  8. Ferol started noticing irregular symptoms in her late 20’s, but more developed since 2001, and rapidly more chronic as time went by. Finally, at her March 2005 physical, she had enough symptoms listed for her GP to start getting the connection to Cushing’s.

    She was immediately referred to Dr. Adam Spitz, endocrinologist, with a battery of tests confirmed the initial diagnosis. Her pituitary surgery was performed 09-30-05. She has lost 30+ pounds after reaching a high of 190 prior to surgery.

    Listen at http://www.blogtalkradio.com/cushingshelp/2008/05/08/interview-with-ferolv-pituitary-survivor

  9. In case you haven’t guessed it, my cause seems to be Cushing's Awareness.  I never really decided to devote a good portion of my life to Cushing's, it just fell into my lap, so to speak – or my laptop..

    Read more at https://cushieblogger.com/2018/04/19/day-19-cushings-awareness-challenge-2018/

  10. This is a Myth! More current research has explored multiple etiologies of Cushing’s. It was once thought that heredity had no influence on the development of Cushing’s Syndrome/Disease and our knowledge was once limited in this sense.

    Read more at  https://cushieblogger.com/2018/04/18/myths-and-facts-about-cushings-men1-and-men2-are-the-only-genetic-causes-of-cushings/

  11. Listen as Monica (Monicaroni) talks about the challenges she’s faced maintaining her music career while in testing and treatment. Monica was diagnosed with Cyclical Cushing’s. She had pituitary surgery in November 2006. An 8mm encapsulated pituitary tumor was removed. Since there was no post-op crash, she also had a BLA in December 2006.

    Listen at http://www.blogtalkradio.com/cushingshelp/2008/05/02/interview-with-monica-pituitary-survivor

  12. I was diagnosed with ACTH independent cyclical cushings. It took 5 years to get a diagnosis...

    In the comments area of https://cushieblogger.com/2018/04/16/myths-and-facts-about-cushings-ufcs-are-the-gold-standard-for-cushings-testing/

  13. A long-time member of these boards, AutumnOMA , gave me permission to share info about these wonderful Cushing's Awareness Stickers she has made:
  14. kermit-mri.jpg

    I have seen this image several places online and it never ceases to crack me up. Sometimes, we really have strange things going on inside our bodies.

    Read more at https://cushieblogger.com/2018/04/23/day-23-cushings-awareness-challenge-2018/

  15. Cushie Crusader, that’s me…and many others.  I think we all have an opportunity to be Cushie Crusaders every time we tell others about our illness, share our story on or offline, post about our struggles – and triumphs – on the message boards, write blog posts in this Cushing’s Awareness Challenge…

    Read more at https://cushieblogger.com/2018/04/18/day-18-cushings-awareness-challenge-2018/

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