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    • MaryO

      Boards Closing?   04/16/2018

      We've had some version of these boards for 18 years and there have always been other people posting than just me.   I am seriously considering taking them down if no one else is interested.   If you want to see these boards remain, please post something or send me a PM.   Thanks!  


~Chief Cushie~
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Everything posted by MaryO

  1. Autumn, Pituitary Bio PLUS Cushing’s Awareness Stickers https://t.co/xMzjstGFCI

  2. Heather, pituitary surgery on January 18, 2006 after years of medical problems, June 5, 7:30PM 

    Listen at http://www.blogtalkradio.com/cushingshelp/2008/06/05/interview-with-heather-s-pituitary-cushings-survivor

  3. A long-time member of the Cushing’s Help message boards, AutumnOMA , gave me permission to share info about these wonderful Cushing’s Awareness Stickers she has made

    Read more at https://cushieblogger.com/2018/04/23/%F0%9F%A6%93-cushings-awareness-ribbon-stickers-are-here/

  4. Fact: In simple terms, Adrenal Insufficiency occurs when the body does not have enough cortisol in it. You see, cortisol is life sustaining and we actually do need cortisol to survive. You have probably seen the commercials about “getting rid of extra belly fat” by lowering your cortisol. These advertisements make it hard for people to actually understand the importance of the function of cortisol....

    Read more at  https://cushieblogger.com/2018/04/22/myths-and-facts-about-cushings-each-person-requires-the-same-dose-of-steroid-in-order-to-survive/

  5. Leslie had pituitary tumors removed twice at the University Of Michigan. After her second surgery she gave birth to her second baby. She has had another recurrence and has had Gamma Knife Radiation April 3, 2008.

    Listen at http://www.blogtalkradio.com/cushingshelp/2008/05/22/interview-with-jackie-samsmon-jordan (The URL appears incorrect due to last minute guest changes.)

  6. Jackie (samsmom) & Jordan: Cushing’s in young people, the fight to diagnose, the amazing gift of a GOOD endocrinologist. Jackie has appeared on Discovery Health discussing her fight for a cure for her younger daughter, as well. Later, the gene responsible for Sam’s illness was found. Her father carried the gene as did her two sisters. Jordan, Jackie’s oldest daughter, has recently had her adrenals removed.

    Listen at http://www.blogtalkradio.com/cushingshelp/2008/05/15/interview-with-jackie-samsmon-jordan

  7. This is a tough one.  Sometimes I’m in “why me” mode.  Why Cushing's?  Why cancer?  Unfortunately, there’s not a thing I can do about either.  Cushing's, who knows the risk factors?  For kidney cancer I found out the risk factors and nearly none apply to me. So why? But why not?  No particular reason why I should be exempt from anything.

    Read more at https://cushieblogger.com/2018/04/20/day-20-cushings-awareness-challenge-2018/

  8. Ferol started noticing irregular symptoms in her late 20’s, but more developed since 2001, and rapidly more chronic as time went by. Finally, at her March 2005 physical, she had enough symptoms listed for her GP to start getting the connection to Cushing’s.

    She was immediately referred to Dr. Adam Spitz, endocrinologist, with a battery of tests confirmed the initial diagnosis. Her pituitary surgery was performed 09-30-05. She has lost 30+ pounds after reaching a high of 190 prior to surgery.

    Listen at http://www.blogtalkradio.com/cushingshelp/2008/05/08/interview-with-ferolv-pituitary-survivor

  9. In case you haven’t guessed it, my cause seems to be Cushing's Awareness.  I never really decided to devote a good portion of my life to Cushing's, it just fell into my lap, so to speak – or my laptop..

    Read more at https://cushieblogger.com/2018/04/19/day-19-cushings-awareness-challenge-2018/

  10. This is a Myth! More current research has explored multiple etiologies of Cushing’s. It was once thought that heredity had no influence on the development of Cushing’s Syndrome/Disease and our knowledge was once limited in this sense.

    Read more at  https://cushieblogger.com/2018/04/18/myths-and-facts-about-cushings-men1-and-men2-are-the-only-genetic-causes-of-cushings/

  11. Listen as Monica (Monicaroni) talks about the challenges she’s faced maintaining her music career while in testing and treatment. Monica was diagnosed with Cyclical Cushing’s. She had pituitary surgery in November 2006. An 8mm encapsulated pituitary tumor was removed. Since there was no post-op crash, she also had a BLA in December 2006.

    Listen at http://www.blogtalkradio.com/cushingshelp/2008/05/02/interview-with-monica-pituitary-survivor

  12. I was diagnosed with ACTH independent cyclical cushings. It took 5 years to get a diagnosis...

    In the comments area of https://cushieblogger.com/2018/04/16/myths-and-facts-about-cushings-ufcs-are-the-gold-standard-for-cushings-testing/

  13. A long-time member of these boards, AutumnOMA , gave me permission to share info about these wonderful Cushing's Awareness Stickers she has made:
  14. kermit-mri.jpg

    I have seen this image several places online and it never ceases to crack me up. Sometimes, we really have strange things going on inside our bodies.

    Read more at https://cushieblogger.com/2018/04/23/day-23-cushings-awareness-challenge-2018/

  15. Cushie Crusader, that’s me…and many others.  I think we all have an opportunity to be Cushie Crusaders every time we tell others about our illness, share our story on or offline, post about our struggles – and triumphs – on the message boards, write blog posts in this Cushing’s Awareness Challenge…

    Read more at https://cushieblogger.com/2018/04/18/day-18-cushings-awareness-challenge-2018/

  16. Day 18: Cushing’s Awareness Challenge 2018 https://t.co/uESwFLn2Zs https://t.co/RdQOUyjZDJ

  17. In 1986 I was finally diagnosed with Cushing's after struggling with doctors and trying to get them to test for about 5 years. I was going to go into the NIH (National Institutes of Health) in Bethesda, MD for final testing and then-experimental pituitary surgery.
    I was terrified and sure that I wouldn’t survive the surgery...

    Read more at https://cushieblogger.com/2018/04/22/day-22-cushings-awareness-challenge-2018/

  18. I definitely know how you feel. My MRI confirmed a Pituitary Tumor 13x16mm (benign/macroadenoma). Just got officially diagnosed last week...

    In the comments area of https://cushingsbios.com/2018/04/02/roxanna-dawn-undiagnosed-bio/

  19. Talking about Cushing’s from the spouse/caretaker point of view He is also Monica’s producer/ manager.  For the two years during Monica’s diagnosis and surgeries he worked from home as a computer programmer so that he could take care of Monica. Monica and Kevin were married two years ago, just before Monica’s pituitary surgery...

    Read more at https://cushieblogger.com/2018/04/17/archived-interview-with-monicas-husband-kevin-about-caretakers/

  20. Archived Interview with Monica’s Husband Kevin, about Caretakers https://t.co/nPxvwvqtJf https://t.co/52WnXu6zwx

  21. So often during the diagnosis phase of Cushing's I felt like this picture – I was walking alone to an unknown place with an unknown future.

    My diagnosis was pre-Internet which meant that any information had to be gotten from libraries, bookstores, magazines…or doctors. In 1983 to 1986 I knew something was terribly wrong but there was no backup from doctors, family or friends. My first hope was from a magazine...

    Read more at https://cushieblogger.com/2018/04/17/day-17-cushings-awareness-challenge-2018/

  22. Steve was diagnosed with HyperBeta Adrenergic Syndrome in August, 2005. Doctors thought he might have a pheo, now they’re checking for ACC cancer. Steve also has a newspaper article written about him. Steve’s daughter may also have Cushing’s.

    Listen at http://www.blogtalkradio.com/cushingshelp/2008/04/10/interview-with-steve-owens

  23. Fact: UFC stands for Urinary Free Cortisol. In layman’s terms this test assesses cortisol by collecting urine for 24 hours. It was once thought that this was the gold standard and the end all and be all in terms of assessing Cushing’s in a patient. What we now know is that this is not necessarily true...

    Read more at https://cushieblogger.com/2018/04/16/myths-and-facts-about-cushings-ufcs-are-the-gold-standard-for-cushings-testing/

  24. Terry (Terry) is a long time pituitary Cushing’s survivor. Terry had a pituitary surgery (in LA) in October of 2003 which did not cure her Cushing’s Disease. Then, Dec 13th, 2003 she had her BLA in a Wisconsin hospital. She also had an infection in her sphenoid sinus. It originated at the site of her pituitary surgery from October 2003. She had to be on a lot of antibiotics and narcotic pain relievers. In Sept 2005 the surgeon remove the infection from one area, making another area clear…..

    Listen at https://cushieblogger.com/2018/04/16/archived-interview-with-terry-g-pituitary-patient/

  25. I used to carry a print out of this everywhere I go because I find it very soothing.  This print out was in a plastic page saver. On the other side there is a Psalm 116, part of the post from Day Fifteen of the 2018 Cushing's Challenge.  These days, both these readings are available on my phone.

    Read more at https://cushieblogger.com/2018/04/16/day-16-cushings-awareness-challenge-2018/