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MaryO

~Chief Cushie~
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Everything posted by MaryO

  1. until
    Are Sleep Apnea and Snoring the causes of your Weight Gain and Fatigue? Dr. Theodore Friedman hosts Jay Khorsandi, DDS from Snore Experts for a fascinating webinar on the relationship between Sleep Apnea, Snoring, Weight Gain and Daytime Fatigue. Topics to be discussed include: • Why does poor sleep lead to weight gain and fatigue? • Why are home sleep monitors better than in lab monitors? • What are the treatments for Sleep Apnea and Snoring? • Will the treatments lead to weight loss and more energy? • Dr. Friedman will also add some comments about the endocrine effects of poor sleep. Sunday • June 24th • 6 PM PST Click to start webinar at https://axisconciergemeetings.webex.com/axisconcierg…/j.php… OR Join by phone: (855) 797-9485 Meeting Number (Access Code): 287 844 283 Your phone/computer will be muted on entry. There will be plenty of time for questions using the chat button. Meeting Password: dreams For more information, email Dr. Friedman at mail@goodhormonehealth.com
  2. Comment added to Guest Question:  Is Itching Common with Cushing’s Syndrome?

    Were your itching, flushing and elevated BP episodes (cyclic) or there all of the time?

    In the comments area of https://cushieblogger.com/2018/05/30/guest-question-is-itching-common-with-cushings-syndrome/

  3. What Do You Think?

    A “friend” pushed me and I hit my head on a radiator and broke it and a few months after a tumor grew. I’ve been having symptoms ever since. Could I go after here and get compensation for medical care I need now?

    in the comments area of http://cushieblog.com/2016/12/21/pituitary-dysfunction-as-a-result-of-traumatic-brain-injury

  4. USC's 7 Tesla MRI scanner first to identify Cushing's disease in US patient

    A noninvasive 7 Tesla MRI scanner at University of Southern California is the first 7T scanner to be used on a patient with Cushing's disease in the U.S., according to a USC news release.  

    When a brain tumor was found to be "MRI-negative" in a 28-year-old female patient, physicians at the USC's Pituitary Center were unsatisfied with the results. After deciding to use the Neuroimaging and Informatics Institute's (INI) new ultrahigh field 7 Tesla MRI scanner to localize the tumor, the patient was officially diagnosed with Cushing's disease and researchers were finally able to be see the tumor that would've otherwise appeared hidden in a standard MRI.  

    Read more at https://www.healthimaging.com/topics/neuroimaging/uscs-7-tesla-mri-scanner-first-identify-cushings-disease-us-patient

  5. Cushing’s disease patients who exhibit nodules or masses in their lungs should be thoroughly investigated to exclude fungal infection with Cryptococcus neoformans, a study from China suggests.

    While rare, the infection can be life-threatening, showing a particularly worse prognosis in patients with fluid infiltration in their lungs or with low white blood cell counts in their blood.

    Read more at https://cushieblog.com/2018/06/16/cushings-patients-at-risk-of-life-threatening-pulmonary-fungal-infection/

  6. To all my Cushie friends who are still dealing with this horrible disease, keep fighting, don’t ever give up, you will get better.  I told a very close friend of mine the other day, if I had the power I would heal everyone you today.  Cushing’s is a horrible disease, and unless you have been through it there is no way anyone could ever understand it. 

    Read more at https://cushieblogger.com/2017/11/14/letter-to-cushies/

  7. Ectopic ACTH-producing thymic carcinoid tumors are rare, but often behave aggressively with local invasion and distant metastasis. We herein report a case of ACTH-producing thymic typical carcinoid tumor with lymph node metastasis treated by surgery and postoperative radiation therapy.

    Read more at https://cushieblog.com/2018/06/13/cushings-syndrome-caused-by-acth-producing-thymic-typical-carcinoid-with-local-invasion-and-regional-lymph-node-metastasis-a-case-report/

  8. MaryO

    In Memory: Diana Crosley

    Diana Lynn Alexander Crosley, age 58, of Sidney, passed away peacefully on Wednesday, June 18, 2014, at 10:10 p.m. at her residence surrounded by her loving family. Read more at https://cushingsbios.com/2015/06/18/in-memory-diana-crosley-2/
  9. MaryO

    In Memory ~ Sarah Fraik

    Sarah had recently had surgery to remove a tumor from her pituitary gland in the hopes of treating her Cushing’s Disease. She died on June 13, 2011 after a brief illness at the age of 28. Read more at https://cushingsbios.com/2013/09/14/sarah-fraik/
  10. In Memory ~ Sarah Fraik

    Sarah had recently had surgery to remove a tumor from her pituitary gland in the hopes of treating her Cushing’s Disease.  She died on June 13, 2011 after a brief illness at the age of 28.

    Read more at https://cushingsbios.com/2013/09/14/sarah-fraik/

  11. Radiation to the Whole Pituitary Compartment Effective at Controlling Cushing’s

    Radiation therapy targeting the entire sella — the compartment where the pituitary gland resides at the base of the brain — is effective at controlling Cushing’s disease and should be considered for patients with suspected invasive adenoma tumors, a new study shows.

    Read more at https://cushieblog.com/2018/06/02/radiation-to-the-whole-pituitary-compartment-effective-at-controlling-cushings/

  12. Thanks, Gig! I also got this answer from another Cushie:
  13. Sharon, I'm not sure of the answer to this question, but I have occasional itching. Mine started in perimenopause and it was helped by first taking estrogen pills, then weaning off them and onto soy shakes. When I became menopausal, the itching seemed to have stopped but it's returned in recent years. Only occasionally, but about every month I get intense random itching. Benadryl helps. Because of the seemingly cyclical pattern to the itching, I asked my endo about it and he said I should get my liver tested. (I didn't. I just put up with the itching when it happens). So I don't know the answer to this question but know that you're not alone! Best of luck to you.
  14. MaryO

    Vision issues Post surgery!

    Steve, I might be in the same boat. My vision seems to come and go but I figured it was just me getting older. I'm post-op nearly 30 years.
  15. MaryO

    In Memory: Thomas F. Zachman

    Thomas “Tommy” F. Zachman, of Windsor, formerly of Toledo, Ohio, died suddenly and unexpectedly at University Hospital in Denver on June 3, 2010, complications of Cushing’s Syndrome. Read more at https://cushingsbios.com/2015/06/03/in-memory-thomas-f-zachman-1950-2010-2/
  16. until
    Thursday May 31, 2018 1:00 PM - 2:00 PM EDT Presented by Yuval Eisenberg, MD Assistant Professor of Medicine University of Illinois, at Chicago (UIC) Division of Endocrinology, Diabetes and Metabolism Webinar Description Learning Objectives: 1) Review the functions of oxytocin in humans 2) Describe areas of active research on oxytocin effects 3) Review the relevant oxytocin and hypopituitarism literature Presenter Bio Dr. Yuval Eisenberg is an endocrinologist at the University of Illinois, at Chicago (UIC). Dr. Eisenberg studied Medicine at Rush Medical College in Chicago and then did his internship, residency and fellowship at the University of Illinois at Chicago. He is certified in Internal Medicine and Endocrinology. Dr. Yuval Eisenberg strives to connect with his patients and provide top quality medical care. He believes strongly that a good patient/doctor relationship is the backbone for successful medical practice. His goal with each visit is to listen, inquire, and educate and to assist you with making important medical decisions. Although his main focus is General Endocrinology, Dr. Eisenberg has a specialized interest in pituitary and adrenal disorders. Dr. Eisenberg's research interest in in the hormone oxytocin and how it might affect patients with pituitary hormone deficiencies (hypopituitarism). Register at https://register.gotowebinar.com/register/8391851366080015362?utm_source=newsletter_271&utm_medium=email&utm_campaign=webinar-announcement-webinar-oxytocin-and-hypopituitarism-a-missing-forgotten-hormone
  17. Thursday May 31, 2018 1:00 PM - 2:00 PM EDT Presented by Yuval Eisenberg, MD Assistant Professor of Medicine University of Illinois, at Chicago (UIC) Division of Endocrinology, Diabetes and Metabolism Webinar Description Learning Objectives: 1) Review the functions of oxytocin in humans 2) Describe areas of active research on oxytocin effects 3) Review the relevant oxytocin and hypopituitarism literature Presenter Bio Dr. Yuval Eisenberg is an endocrinologist at the University of Illinois, at Chicago (UIC). Dr. Eisenberg studied Medicine at Rush Medical College in Chicago and then did his internship, residency and fellowship at the University of Illinois at Chicago. He is certified in Internal Medicine and Endocrinology. Dr. Yuval Eisenberg strives to connect with his patients and provide top quality medical care. He believes strongly that a good patient/doctor relationship is the backbone for successful medical practice. His goal with each visit is to listen, inquire, and educate and to assist you with making important medical decisions. Although his main focus is General Endocrinology, Dr. Eisenberg has a specialized interest in pituitary and adrenal disorders. Dr. Eisenberg's research interest in the hormone oxytocin and how it might affect patients with pituitary hormone deficiencies (hypopituitarism). Register at https://register.gotowebinar.com/register/8391851366080015362?utm_source=newsletter_271&utm_medium=email&utm_campaign=webinar-announcement-webinar-oxytocin-and-hypopituitarism-a-missing-forgotten-hormone
  18. When classifying patients by tumor size, however, researchers found that patients with macroadenomas — tumors larger than 10 mm — had higher rates of remission and lower recurrence rates after endoscopic surgery. Patients with microadenomas (tumors smaller than 10 mm) had comparable outcomes with either technique.

    Read more at https://cushieblog.com/2018/05/26/endoscopic-surgery-should-be-standard-for-cushings-patients-with-large-tumors/

  19. Etomidate Found Effective in Severe Cushing’s Syndrome

    In April 2017, the patient arrived at the emergency room with sepsis — a potentially life-threatening complication of an infection — that originated in the gut.

    Because ketoconazole had failed to lower cortisol levels, the patient started receiving infused etomidate, an inhibitor of the enzyme 11‐beta‐hydroxylase that prevents cortisol synthesis.

    This treatment was stopped one day before the bilateral removal of the adrenal glands as a definitive treatment for the elevated production of cortisol.

    Read more at https://cushieblog.com/2018/05/18/etomidate-found-effective-in-severe-cushings-syndrome/

  20. Register now for the 10th Annual Johns Hopkins Pituitary Patient Day

    Saturday, October 13, 2018, 9:00 a.m. to 3:00 p.m.

    More info at https://cushieblogger.com/2018/05/18/tenth-annual-johns-hopkins-pituitary-patient-day/

     

     

     

  21. until
    Join us on Saturday, October 13, 2018 10th Annual Johns Hopkins Pituitary Patient Day Saturday, October 13, 2018, 9:00 a.m. to 3:00 p.m. Location: Johns Hopkins Mt. Washington Conference Center 5801 Smith Avenue Baltimore, MD 21209 map and directions Attendance and parking are free, but seating is limited. Reserve your space now: Please R.S.V.P. by email (preferred) to PituitaryDay@jhmi.edu or by calling 410-670-7259. Agenda 9:00 - 9:25 a.m.: Registration 9:25 - 9:30 a.m.: Welcome and acknowledgments (Roberto Salvatori, M.D.) 9:30 - 10:00 a.m.: Symptoms of Pituitary Tumors: Acromegaly, Cushing, and Non-Functioning Masses (Roberto Salvatori, M.D.) 10:00 - 10:30 a.m.: Effects of Pituitary Tumors on Vision (Amanda Henderson, M.D.) 10:30 - 11:00 a.m.: A Patient's Story (to be announced) 11:00 - 11:30 a.m.: The Nose: the Door to Access the Pituitary Gland (Murray Ramanathan, M.D.) 11:30 a.m. - 12:00 p.m.: Surgery for Pituitary Tumors: Images from the Operating Room (Gary Gallia, M.D., Ph.D.) 12:00 - 12:30 p.m.: Radiation Therapy for Cushing, Acromegaly and Non-Functioning Tumors: When Needed, A Good Option (Kristin Redmond, M.D.) 12:30 - 1:25 p.m.: Lunch 1:30 - 3:00 p.m. Round Table Discussions: Acromegaly Cushing Disease Non-Functioning Adenomas Craniopharyngiomas and Rathke's Cysts
  22. Based on long-term patient outcomes, researchers were able to identify six categories of common diagnostic and surgical failures. They include:

    • persistently high cortisol levels despite the successful removal of lesions
    • the failure of tumor resection
    • recurrence of disease
    • a failure to identify the source of ACTH secretion
    • the absence of identifiable lesions during exploratory surgery
    • concurrent tumors.

    Read more at https://cushieblog.com/2018/05/16/study-describes-6-common-surgical-failures-in-cushings-disease-treatment/

  23. MaryO

    PTSD and Cushings

    Since you asked this as a guest question, I posted it on one of the Cushing's blogs, too. Someone answered:
  24. Every ache or pain or out of the ordinary experience triggers anxiety. I am 7 years post op. I don’t have panic attacks per se, but I do get upset and frightened. These feelings also occur when the doctor sends me for routine testing just to make sure there is no relapse...

    In the comments area of https://cushieblogger.com/2018/05/11/guest-question-ptsd-and-cushings/

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