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~Chief Cushie~
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Everything posted by MaryO

  1. Pituitary Tumors, Adrenal Tumors, and Other Cushing’s Syndrome Causes

    Read more at https://cushieblog.com/2016/10/02/causes-of-cushings-syndrome/

  2. Adventures with Human Growth Hormone: Travelling (Flying)

    ...I had the gel pack from the iCool frozen solid and put that in a small Rubbermaid lunch bag with 2 thin ice packs,  1 on top and 1 on the bottom.  If you don't want to read all the way to the end, this system kept the growth hormone cold for the 20 hours going and returning but the 2 thin blocks had completely thawed.  The inner iCool was mostly frozen and the growth hormone was still cool....

    Read more at https://maryomedical.com/2017/10/15/adventures-with-human-growth-hormone-travelling-flying/

  3. Janice (Not So Cushie), Upcoming Book, Installment 3 https://t.co/WEmRFf4jZT

  4. Myth: “All Cushing’s patients have the exact same symptoms...

    Fact: Everyone does NOT have the exact same symptoms. Not all Cushing’s patients are exactly the same. This is one mistake that non experts tend to make in terms of categorizing patients by whether they meet the exact same classic symptoms or not... 

    Read more at https://cushieblogger.com/2017/04/20/myth-all-cushings-patients-have-the-exact-same-symptoms/

  5. 9 Tips For Safe Travel With Diabetes (or other conditions) Many of these tips work for Cushing's patients on Growt… https://t.co/MDcjEUBpeS

  6. 9 Tips For Safe Travel With Diabetes (or other conditions)

    Many of these tips work for Cushing's patients on Growth Hormone, as well.

    Read more at https://maryomedical.com/2017/05/19/9-tips-for-safe-travel-with-diabetes/

  7. Yes, You Need a Medical Alert Bracelet!


    #3 DO NOT MAKE IT “PRETTY” OR “NOT SO OBVIOUS”. I can not stress this enough. Ladies I know that you want the cute ones that look like normal bracelets, and have pretty charms, etc on them… THE ENTIRE point of a medical alert bracelet is that someone needs to see it and know that they should look at it. If it looks like a regular bracelet or regular necklace and it isn’t obvious within the first 3 seconds once we get to you and look in the obvious places (neck/wrist). it will NOT get seen. I promise you, we are too busy trying to play the guessing game of why you are not responding, than to take a look at every single piece of regular jewelry and see if it might have a really small inscribing of what is wrong with you. Once again. Make it noticeable. We will see that we need to look at it. Once we do. The guessing game is more than likely OVER. and we can begin to treat you appropriately.

    Read more at https://cushieblog.com/2017/07/18/yes-you-need-a-medical-alert-bracelet/

    1. NotSoCushie


      So true Mary. I was in Germany when I went into adrenal crisis at the airport. The paramedics didn't speak English that well. I was close to syncope and had to mime my finger going into the crook of my elbow to make them understand I needed an IV immediately. I did have an obvious medic alert bracelet on, but found out later through the medic alert foundation that Germany isn't part of their program and therefore didn't recognize my bracelet. Not every country participates in the medic alert program.  I was told, I should have had a letter with the pertinent details of my medical condition on me and written in the language of the place I was traveling to. Good advice for future travel. Had that country been a part of the medic alert program it would have been so much easier for them to read the bracelet and proceed. Unless you are in that position you have no idea how terrifying it is when you can't convey the information you need. I was going into shock  and my mouth was drying out so bad, I couldn't speak. I didn't think they would figure it out in time. Time is everything in crisis. That's why an obvious medic alert bracelet is needed.  

    2. MaryO


      How scary!  I'll have to remember to take a letter with me if I go out of the country again.

      I also have a letter for my growth hormone to be able to travel with needles and such.  I should probably get that translated, as well.

      Thanks - I'm glad your situation worked out ok in the end!

  8. Late-night salivary cortisol often fluctuates widely in Cushing’s disease https://t.co/v3kTWgJipE

  9. The latest The Cushings Daily! https://t.co/0YULtiuM14 Thanks to @cnnhealth #nihhealthy2018 #hcsm

  10. What You Should Know About Pituitary Tumors

    Treatments may include surgery, radiation therapy or medication. Transsphenoidal surgery is surgery performed through the nose and sphenoid sinus (located in the very back part of the nose, just beneath the base of the brain) to remove a pituitary tumor. It can be performed with an endoscope, microscope or both and is a team effort between neurosurgeons and ear, nose and throat (otolaryngology/ENT) surgeons. Radiation therapy uses high-energy x-rays to kill the tumor cells and is recommended when surgery is not an option, if the pituitary tumor remains, or if the tumor causes symptoms that are not relieved by medicine.

    Read more at https://cushieblog.com/2017/02/15/what-you-should-know-about-pituitary-tumors/

  11. The latest The Cushings Daily! https://t.co/i1k1F1WVpA Thanks to @aautomo884 #hcsm #googlealerts

  12. Greyfriar’s Bobby https://t.co/5RpxrrUvgB https://t.co/YO0T3uEzpI

  13. The latest The Cushings Daily! https://t.co/OhzkzMLJG5 Thanks to @LuvLibertyPeace @endocrineweb #hcsm #mhealth

  14. After Your Transsphenoidal (Pituitary) Surgery

    After your physicians have determined that it is reasonably safe to discharge you from the hospital following transsphenoidal pituitary surgery there are a number of important situations that may arise. Most people feel well after discharge. However, you should be aware of these possible problems, just in case. The following general guidelines are provided to promote your health and safety.

    Read more at http://www.cushings-info.com/index.php?title=Pituitary_Post-Op

  15. RT @MayoClinic: For the first time in American history, more women are enrolled in medical school than their male counterparts. https://t.c…

  16. Welcome to new message board  members! 

    1. Shelly1304 and
  17. Normal Random Cortisol

    Laura, Shaw is absolutely correct. Usually, to diagnose Cushing's, you need many tests, some at specific times of the day and some ALL day. If you can, get to an endocrinologist who is very familiar with Cushing's and Cushing's testing. Best of luck to you and please keep us posted.
  18. Listen as Robin Smith (staticnrg) and Mary O’Connor (MaryO) co-hosted Cushing’s message board members calling in to talk about their fight for diagnosis and treatment. The show will be opened with a brief explanation of what Cushing’s is and what the symptoms are.

    Listen at http://www.blogtalkradio.com/cushingshelp/2008/03/13/-cushings-diagnosis-and-symptoms-part-2

  19. RT @MayoClinic: Do you know the primary risk factors for #hypertension? Hint: drinking too much alcohol is one of them. See if you can gues…

  20. Malia died today, January 4, 2017 at the age of 40. She had been dealing with Cushing's Disease for the past 18 years or so.

    Read more at https://cushingsbios.com/2017/01/04/in-memory-of-malia-kenney-january-4-2017/

  21. Harvey Cushing, the pioneer and father of neurosurgery, was born on April 8, 1869 in Cleveland, Ohio. He graduated from Yale University in 1891, studied medicine at Harvard Medical School and received his medical degree in 1895. In 1896, he moved to Johns Hopkins Hospital where he trained to become a surgeon under the watchful eye of William S. Halstead, the father of American surgery. By 1899 Cushing became interested in surgery of the nervous system and began his career in neurosurgery. During his tenure at Johns Hopkins, there were countless discoveries in the field of neuroscience.

    In 1913, Cushing relocated to Harvard as the surgeon-in-chief at the new Peter Bent Brigham Hospital. Cushing continued to operate on several hundred patients a year with remarkable results.  In addition he was relentless in his recording of patient histories and continued his careful attention to the details and documentation of each surgery.

    Read more at https://cushieblog.com/2017/06/03/cataloging-cushings-patients/


    Tips for living with Cushing's - before, during and after treatment. Please feel free to add your own tips here!

    Cushing’s disease may sometimes make you feel that your life is out of your control. But there are some general things you can do to help take back control.

    For specific tips such as Getting Medical Attention for an Adrenal Crisis or how to make an Emergency Kit, please see Helpful Hints

    Read more at http://www.cushings-info.com/index.php?title=Help_Yourself,_Part_1

  23. My Alma Mater! UMass Minuteman Marching Band at the Rose Parade: New Year’s Day https://t.co/2a3LDHxOFN

  24. The worldwide prevalence of metabolic syndrome in obese people is estimated at about 10%. Conversely, the incidence of undiagnosed Cushing’s syndrome is about 75 cases per 1 million people.

    Cushing’s and metabolic syndrome share significant clinical similarities, including obesity, hypertension, and type 2 diabetes. Therefore, “making the diagnosis is the least certain aspect in the care of patients with [Cushing’s],” Dr. Lynn Loriaux wrote.

    Read more at https://cushieblog.com/2017/10/29/the-challenge-of-obesity-in-diagnosing-cushings-syndrome-and-strategies-to-improve-methods/

  25. The latest The Cushings Daily! https://t.co/A5wqXUWQaa Thanks to @drchrysopoulo @endocrinologist #hcsm #researchmatters