MaryO

Interview Archive with Judy, mom to 2 Cushing’s Patients, and her daughter Jess

Interview with Judy, the mother of two Cushing’s patients, and her daughter, Jess, a high school student with Cushing’s. Robin (staticnrg) hosted.

Read more at https://cushieblogger.com/2019/04/03/archived-interview-with-judy-mom-to-two-cushings-patients-and-her-daughter-jess/

Day 3: Cushing’s Awareness Challenge 2019

If you believe you have Cushing's (or any other rare disease), learn what you can about it, connect with other patients, make a timeline of symptoms and photographs. Read, take notes, save all your doctors notes, keep your lab findings, get second/third/ten or more opinions.  Make a calendar showing which days you had what symptoms.  Google calendars are great for this.

Read more at https://cushieblogger.com/2019/04/03/day-3-cushings-awareness-challenge-2019/

Archived Interview: Symptoms and Diagnosis: Cushing’s Message Board Members

Robin Smith (staticnrg) hosted as Cushing’s message board members called in to talk about their fight for diagnosis and treatment. Robin opened the show with a brief explanation of what Cushing’s is and what the symptoms are.

Read more at https://cushieblogger.com/2019/04/02/archived-interview-symptoms-and-diagnosis-cushings-message-board-members/

...My family doctor and husband think I am lazy, fat and crazy when they ship me off to a mental ward. I know I am physically sick but can’t convince the psychiatrist. He writes in his reports that I am a hypochondriac. My controlling, narcissistic husband tries to gaslight me into believing I am mentally ill. After he admits his affair, I leave him and find out I have Cushing’s Disease with a pituitary tumor and uterine cancer. I have sucessfull surgery to remove the tumor and cancer...

In the comments area of https://cushieblogger.com/2019/04/02/day-2-cushings-awareness-challenge-2019/

Digging deep - Depression, anxiety and suicide.

...We lost a young woman with Cushing's to suicide in 2014. There are rumors now that another recent loss was suicide as well. In my mind, regardless of what the exact cause was, Cushing's is at fault.  Cushing's led them to their deaths just as surely as if it had struck the death blow itself. If that is hard for you to fathom, then please allow me to educate you briefly on this dastardly, 'most morbid of diseases' and why I feel the way I do....

Read more at https://cushieblogger.com/2019/04/02/digging-deep-depression-anxiety-and-suicie/

Archived Interview with Mary O’Connor aka MaryO, Cushings-Help.com founder

As part of this year’s Cushing’s Awareness Challenge, I’ve decided to share our Interview Series again since there was lots of great info in there...Interview with Mary O’Connor (MaryO), founder of Cushings-Help.com and 20-year pituitary Cushing’s Survivor.  

https://goo.gl/zbQdeZ

Kara E (Pollyanna Pitbull), Adrenal Bio

Kara is from Woodstock, Ga. She was recently diagnosed with Cushing's, Lupus, APS and Osteoporosis

Read her bio at https://cushingsbios.com/2019/04/01/kara-e-pollyanna-pitbull-adrenal-bio/

Video: How the Body Works: The Adrenal Cortex and Medulla

...Two different regions are distinguishable--the cortex, controlled by the pituitary hormone ACTH, produces hormones which maintain body chemistry, and the medulla, which secretes adrenaline and noradrenaline to increase body activity.

See the video at https://cushieblogger.com/2019/03/16/video-how-the-body-works-the-adrenal-cortex-and-medulla/

In the media: Sharmyn had pituitary Cushing's and is in remission.  This is a compilation of some of her interviews and videos.

Read more at https://cushingsbios.com/2019/03/16/sharmyn-in-the-media/

Even in Remission, Cushing’s Patients Have Excess Mortality

The outcomes of Cushing’s disease patients have improved with the introduction of several therapeutic approaches, such as minimally invasive surgery and cortisol-lowering therapies. However, mortality is still high, especially among those who do not achieve remission.

Read more at https://cushieblog.com/2019/03/11/even-in-remission-cushings-patients-have-excess-mortality/

Do You Use Mario Badescu Skin Care Products?

The plaintiffs were unaware of the steroids in Mario Badescu’s products and used the products on their faces, usually daily, for as long as fourteen years. Many of the plaintiffs allege that they unwittingly became addicted to the steroids such that even a day without use of the Products caused severe and painful withdrawal reactions. Moreover, many of the plaintiffs allege that they suffered from steroid-related ailments while using Control Cream or Healing Cream, including cataracts, glaucoma, mood disorders, heart issues, elevated cortisol levels, adrenal system suppression and Cushing’s Syndrome. Plaintiffs allege that because they did not know they were using steroids at the time, they were unable to inform their physicians about the true source of their injuries and were repeatedly misdiagnosed by their medical providers.

Read more at https://cushieblogger.com/2019/03/10/do-you-use-mario-badescu-skin-care-products/

Tim D (TimD), Undiagnosed Bio

Tim is from Middletown, Connecticut. He is glad he's finally getting tested since he's sure he has Cushing's.

Read more at https://cushingsbios.com/2019/03/09/tim-d-timd-undiagnosed-bio/

Sheryl, Pituitary Bio

Sheryl is from Florida. Her journey started about 7 years ago with severe insomnia, muscle and joint aches.  She was deteriorating so rapidly that I decided to go to LA and see Dr. Theodore Friedman (Dr. F)

Read more at https://cushingsbios.com/2019/03/06/sheryl-pituitary-bio/

Barbara S, Steroid-Induced Bio

Barbara is from Columbus, Ohio  She has been experiencing symptoms since the mid 1990s. Barbara spent almost four years on high doses of steroids for a brain tumor, snd had difficulty being weaned off.

Read more at https://cushingsbios.com/2019/03/06/barbara-s-steroid-use-bio/

In Memory: Erica Michelle “GaGa” Meno, March 6, 2015

Erica was a fellow Cushing’s Disease survivor. She had been through pituitary surgery, radiation, and a BLA in an effort to receive her cure.

Read more at https://cushingsbios.com/2015/03/11/in-memory-erica-michelle-gaga-meno/

Comment added to Nicole, Undiagnosed Bio
 

I saw your case on searching against dexamethasone yours and others sound so similar to the person who I care for who has been so affected by what we see as steroid induced cushings..

In the comments area of https://cushingsbios.com/2017/07/13/nicole-undiagnosed-bio

Comment added to Early Detection, Treatment Needed To Reduce Risk Of Death, Cardiovascular Disease In Cushing’s Disease Patients

...I don’t eat much but have fat deposits in the areas associated with Cushing’s. My skin tears easily, I bruise easily, I have digestive disturbances, my face is rounder, my hair is way thinner, I have aches and pain which is mail a very stiff and aching neck. I have other offers places of pain that seem to change locations. I have double vision that gets better and then worse....

In the comments area of https://cushieblog.com/2013/02/20/early-detection-treatment-needed-to-reduce-risk-of-death-cardiovascular-disease-in-cushings-disease-patients/

Sosei Group Corporation ("the Company"; TSE: 4565), announces that the first healthy subject has been dosed with a novel small molecule HTL0030310 in a Phase I clinical study, marking the start of a new in-house clinical program targeting endocrine disorders, including Cushing's disease...<br />
<br />
HTL0030310 has been designed to modulate the excess release of hormones from adenomas (benign tumors) of the pituitary gland. Highly elevated plasma levels of pituitary hormones result in a number of serious endocrine disorders, including Cushing's Disease. 

Read more at https://cushieblog.com/2019/02/20/sosei-heptares-starts-new-clinical-development-program/

Comment added to Nicole S (NicoleS), Adrenal Bio

"I too had a left side adrenalextomy. I had a difficult labor and severe high BP heading in to childbirth. Had high BP leading to other problems for years after until diagnosed..."

In the comments area of https://cushingsbios.com/2019/02/10/nicole-s-nicoles-adrenal-bio/

Comment added to Niamh (niamhiblog), Adrenal Bio

...I started having symptoms going back over 2 years now but to make a
Long story short I was diagnosed with Cushings Syndrome 8 days ago & am on tablet treatment since.
I am having good&bad days since.
I identify sooooo much with you & the way you described the ‘crash following reducing the cortisol....

Read more in the comments area of https://cushingsbios.com/2016/08/23/niamh-niamhiblog-adrenal-bio/

Comment added to Mak M, Pituitary Bio

...All my labs came back normal also when I had my pituitary microadenoma The only way they got a positive result was from an IPSS...

Read more in the comments area of https://cushingsbios.com/2018/11/26/mak-m-pituitary-bio/

Nicole is from Toronto, Canada  She is 37 years old and was diagnosed with Cushing's disease in May 2017 after suffering through a high risk pregnancy, early delivery and postpartum pain. She had a left adrenalectomy.

Read nore at https://cushingsbios.com/2019/02/10/nicole-s-nicoles-adrenal-bio/

A shorter duration of adrenal insufficiency — when the adrenal gland is not working properly — after surgical removal of a pituitary tumor may predict recurrence in Cushing’s disease patients, a new study suggests.

Read more at https://cushieblog.com/2019/02/09/faster-adrenal-recovery-may-predict-cushings-disease-recurrence/

Michele M (Michele), Pituitary Bio

Michele is from Buffalo, NY  She had her right adrenal gland and a pheochromocytoma removed. The Pathologist and endocrinologist diagnosed her with Cushings Disease.

Read more at https://cushingsbios.com/2019/01/26/michele-m-michele-adrenal-bio/

How to avoid pitfalls in interpretation of adrenal imaging

A clear understanding of the pitfalls in the performance and interpretation of adrenal CT can help prevent incorrect and inappropriate investigations, award-winning researchers from a top London facility have found. It's essential to keep aware of the full range of pseudolesions and mimics, they said.

"Evaluation of adrenal tumor function is limited on imaging, but may be inferred from imaging findings," noted Dr. Gurinder Nandra and colleagues from the department of radiology at St. George's University Hospitals NHS Foundation Trust in an e-poster presentation that received a cum laude award at RSNA 2018 in Chicago.

Read more at https://cushieblog.com/2019/01/21/how-to-avoid-pitfalls-in-interpretation-of-adrenal-imaging/