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Everything posted by diane177432

  1. diane177432


    Just won a bid on E-bay for a bike. Hopefully will collect it at the weekend and I can start cycling to lose some pounds or build up the muscle. Steve and I have always fancied cycling at the weekends especially in the Summer as the countryside here is gorgeous. I am trying to bid for a bike for Harry as the one he has is too small. This is the first time I have bidded on e-bay - can get very addictive but I am making sure I have cut off points as I don't have alot of cash right now so trying to grab a bargain! Steve is off today so hopefully after I have sorted a few things out we can go to the garden centre. I have been trying to do Mum's garden and need some bedding plants to spruce it up a bit. She has about a dozen nice pots but nothing to put in them. Well, that's it fo rnow. It's 8:15am here and I need to get started...
  2. I had a telephone discussion with the course leader today and she advised me to withdraw from my nursing course and reapply to the other University once I have my test results through and all is OK. I personally think this is the most sensible course of action although I would have liked a simple transfer, it would be easier this way. I feel very sad about not being able to work with my new friends but I guess life has a different deck of cards for me. My cheeks are still burning red, I look very cushingoid today. I feel so tired and a little low. I thought I'd jump on the scales and see what I weigh - I know I should wait a wwk so sill to do so but I was shocked to see I had gained 3 LBS in 1 day. It's probably water retention but I do feel so crappy right now. I tired to be proactive yesterday and started doing some research on GP surgeries and Endocrine Clinics around the country. I've managed to list some Endocrine Clinics - Doctors surgeries are going to take some time as there are so many. This is going to be a mammoth task, but it is very exciting. I think I need something like this right now. I have tons of housework to catch up on and a pile of ironing to tackle, but no energy whatsoever. Just finished doing some work for Steve, writing up some stuff for him. My brain aches... I'm trying to buy some bikes from ebay right now in a bid to exercise more. Just lost a bid...onward with the search.
  3. Well, its been a proactive day in terms of my health and fitness. I started my new healthy eating regime today and did 20 minutes on the strider. It really tired me out. I am 8 weeks post-op tomorrow and I told myself that once my 8 weeks recovery is up, I will attempt to see if I can lose some weight. I am not that optimistic being on 30mg of hydro as it is bound to prevent weight loss, but even if a few pounds come off and I hit a plateau I will be happy. I don't like being this big and the last time I was this big was just before my 1st op and I had full-blown cushings then. I am getting anxious about whether I am in remission or not. I hope I am. My cheeks constantly burn and any cushingoid sign gives me cause to worry. I am usually perceptive about these things, much to my own annoyance!! I finally started doing some reseach on UK Endocrine clinics today. It will take some time to make a listing of GP surgeries as there are so many practices. I guess if I can tackle it one county at a time. The cost of a stamp isn't much to get word out there and if it helps just one person, it will be worth it. I have time on my hands until I go back to Uni. Hoping they'll agree to me defering to September. I need to call the course leader this week to discuss my options. If not, I guess I will have to re-apply and start over but I am willing to do that.
  4. Well, I went in for the blood draw on Tuesday and it took 5 attempts to find a vein that would co-operate - came away with all my arm swollen and bruised. It's very sore. yesterday, I was feeling so rough. I think its a combination of starting back on the hydrocortisone and changing insulin. Actrapid ceased production at the end of December and I had enough to see me through to now. I have been switched to Novotrapid which is a shorter acting insulin. I feel very rough. I was incredibly emotional yesterday evening. I just wanted to sit down and cry and just get it all out of my system - sometimes the best way, I suppose. A bit of a rollercoaster. Emailed the resolution to my endo as I thought it would be good to share the news over here of all your fantastic efforts and he emailed back a very supportive message. I really want to start doing more over here. Just a little to start off with until I know I am much better but I feel stronger day by day, just tired and the usual joint and muscle problems - a good sign, perhaps. I guess I am hitting the emotional rollercoaster wall right now, I just want to cry all of the time, I feel very all over the place right now. I ffel so emotional inside and have all this emotion welling p yet my head doesn't seem to want to co-operate and is not letting me get the wmotion out. Usually when I feel like this I can have a good cry and get it out of my system, but I can't even manage that and I have all this emotion and frustration building up inside. I am getting incredibly over sensitive right now as well, I just feel so tired. Maybe I should stay off the boards for a few days. Probably won't be able to offer much helpful advice to anyone right now. God, I hate feeling like this. I have to finish off the stack of housing applications. They all want extra information that I will have to scan and print, I just have no energy. I have been trying to get Steve to take Harry to his Mum's for Easter so I can have some time to myself but he doesn't want to. I think I could just do with some 'me' time right now. Mum has been talking about having a massive spring clean this weekend and Steve wants me to work on some paperwork with him. I just want a break from everyone. I thought I would borrow some books from the library to try and get me out of this mood and so got out a 'Colour Me Confident' book from the 'Colour me Beautiful' team - it gives some quite useful tips on what clothes and colours suit as well as make up and accessories. To be honest I have lost all sense of style (not that I had much anyway) or any perception of what looks good or not since my whole body shape changed and I coloured my hair darker. My complexion is more ruddy as well - I used to be just pastey!! So I might go through my wardrobe today and have a good old clearout. Not much fits me these days anyway and I find myself living in the same old clothes day in day out - can't be bothered to make an effort on anything else. Perhaps that is what I need to get myself out of this. Yes, I know it is probably all hormonal right now but I need some sort of boost. I ahte getting tearful at the drop of a hat. As I keep saying, I think I just keep forgetting what it's like post-op.
  5. Currently doing a 4-day Dex test. Started on Friday and will have a blood draw tomorrow (Tuesday) at 9am. Also doing 2 days of 24hr UFC collections. Felt really awful on the 1st day - awoke during the night shaking, couldn't regulate my body temperature, hot and cold extremes, sharp pains in a centralised area of the back of my head, feeling nauseous. Today I am feeling quite energised. I never know how to look at it, is this good, or is this a bad sign. Cushings can be so confusing whether you are pre or post-op. I am going to the hospital with Mum today. She is having an ultrasound as she found a lump near her ribs some time ago. The Consultant thinks it might just be a fatty lump but wants to confirm with the scan. She has also found two lumps on her head which they are going to have a look at. Mum is tired an awful lot - she works very hard in a factory but she sleeps all the time and I don't think that is right. She is always complaining about aches and pains and illnesses of some sort yet she never gets herself checked out. I have been suspecting my Mum suffers from some sort of hormonal imbalance for some time. She has Diabetes (Type II - diet only), but doesn't follow a diabetic diet then again I don't follow one strictly. I have made a decision to defer my nursing course to Spetember to give myself time to mend and adjust to any weaning. I want to be nearly 100% OK before I let myself loose on the wards. The Doctors said I should be OK to go on placement this month but I know what its like in recovery and I want to be confident that I won't suffer from over tiredness and I think I will find it hard to do 7 hour days right now. I am also going to try and change Universities as Steve and I are now applying for housing and we would like to live closer to Steves work. There is a University there and it was one I had considered originally but just wasn;t practical at the time. I am hoping the University will be understanding and allow me this opportunity - there is so much red tape you have to go through though. Makes me laugh as there is such a demand for nurses but they make things so difficult for you. Well, its a chilly but very sunny day here today. I better get on and get ready as Mum will be back soon and I need to get Harry ready too.
  6. I must admit if on my first diagnosis I had been told a pituitary tumour, I wouldn't have had a clue but a brain tumour is more clear cut. All I know is I want the buggar out...lol!!
  7. I've always been told that I have a 'benign brain tumour' by all of my consultants and my neurosurgeon...?!!
  8. I wish I knew a cure for it...its one of the things I hate the most and I have suffered since I was in my late teens. Thanks for posting this Mary.
  9. diane177432

    blog blog blog

    I'm sorry Christy...I didn't forget you, honest ummmmmm...I just forgot you were redirected...
  10. It's lovely to see another blogger Kandy!! I hope we can give each other all the support we need...you need not feel alone here... Much love Diane xx
  11. diane177432

    blog blog blog

    Hi Jack, Its lovely to see someone else trying out the blogging...me and Adrienne were feeling very alone! You have a very beautiful family...you must be extremely proud. I think its fantastic that you are a stay at home Dad and are obviously providing a very stimulating environment for your children - that's the hardest thing I found, being in recovery, that I had little energy to take Harry out and participate in activities. he is 4yrs old and I just sometimes feel that I am hindering him. As time goes on and I feel better, we are doing more things though. I still haven't got him a place at pre-school so hope that will happen in the New Year. He will enter full-time education in September 2006. Steve, my husband and I take him to a beautiful forest we have locally which is part of our National Trust so he is very much in touch with nature and we do alot of creative things at home. I also got an allotment recently, which is a rented patch of land that the community can grow fruit and vegetables on, so he is having fun digging....keep up with the blog..its good fun! Take care, Diane
  12. I wear the white 'Make Poverty History' wrist band. Lot's of charities are using this as a way of promoting their causes - I think it's a fantastic idea. Diane
  13. I wear the white 'Make Poverty History' wrist band. Lot's of charities are using this as a way of promoting their causes - I think it's a fantastic idea. Diane
  14. Hi Mary, I can't praise you enough for this wonderful site and I sing your praises and those of other people on this site to most Doctors that I meet here in the UK. If there is anything I can do here then I will. Hopefully one day some of us UK cushies can meet you all. Until then I'll keep posting and you have certainly given me some other ideas on the list. I always said once I had the op and was cured I wouldn't turn my back on other people suffering and that promise still stands. Love to you all. Diane x
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