I apologize for the quick note and the assumption that people knew my history! Here is the short version of what's going on.
I had Cushing's before and had surgery in Los Angeles in 2003. I live in Canada, so I paid for the surgery myself, and then appealed against my government run healthcare system to recover the costs. I did not expect to win, but I was so sick that I felt I didn't have a choice in the matter. I ended up winning my appeal (YAY!) and had my costs reimbursed.
Fast forward 5.5 years and I've finally been re-diagnosed with a recurrence. I fully expect to have surgery here in Canada, but I am refused treatment here, again. I ended up going to the States again, having a BLA and am now in the process of appealling again.
I have a ton of very good backup and arguments, but thought I would do well sealing the deal with my pathology showing my adrenals were 2x normal and backing it up with documented evidence that this is often seen in people who have been dealing with Cushing's. There's not a ton out there, but I will now check out all of these links.
Thank you so much, it will be a long time before I hear anything, but you all will be some of the first to know how it goes.