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staticnrg

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staticnrg last won the day on November 8 2010

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About staticnrg

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    Robin
  • Birthday 10/22/1957

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    http://survivethejourney.blogspot.com/
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    SW Virginia
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    Technology, Sci Fi, computers, people, kids, and life

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  1. Do you want to keep the Cushing's Help message boards? Do you know that MaryO spends thousands out of her own pocket to keep it running? Do you want to wake up one day and find it gone? If the answer to the last one is "no", then take the time to donate what you can each month/quarter/year. I know I'm not here much anymore since my BLA, but I still care that others have this support. I would have never found a doctor to help me nor understood this disease if it hadn't been for this site. There are so many more out there who need them, too. If you are here, I suspect you do, too. If you look at the right side of the main page when you login, you will see the donation site and Donations: 801.61 USD || Goal Amount: 2906.00 USD. It shows we still need to donate at least $2104.39 for this year. So, skip that lunch out at McDonalds or Wendy's and donate the $5 or $6 dollars instead. PBJ will taste really good that day! If we all donate just a little bit every month, it will make a difference. Thank you, Robin
  2. ALERT DR. F PATIENTS: The Tuesday night, 9/18/12, clinic, has been moved to Wednesday, 9/19/12. The Tuesday night, 9/25/12, clinic, has been moved to Monday, 9/24/12. The Tuesday night, 10/2/12, clinic, has been moved to Wednesday, 10/3/12. The Tuesday night, 10/9/12, clinic, has been moved to Wednesday, 10/10/12. Deposits as always will be due at 5PM, the Friday before next week's clinic. No 10" drive-by phone appointments September 17, 18, 25, and 26. No 10" drive-by phone appointments October 1, 2, 8 and 9.
  3. Dr. Friedman Interviews

    I think we can take questions in the BTR chat, too, can't we, MaryO?
  4. Cushings-Help.com Announces The Availability Of An Investigational Drug ForSevere Cushings's Syndrome On a Compassionate Use Basis November, 2011 We would like to make patients aware that mifepristone, aninvestigational drug that blocks the action of cortisol and is being developedby Corcept Therapeutics Incorporated, is now available on a compassionate usebasis for eligible patients in the United States with Cushing’s syndrome whohave no other treatment options. Under this compassionate use program, the FDA allowsseriously ill patients who lack satisfactory alternative treatment options touse an investigational new drug that is still under development. Corcept has completed a Phase III trialinvestigating the safety and efficacy of mifepristone in patients withendogenous Cushing’s syndrome. Theinformation from that study has been submitted to the FDA for review of safetyand efficacy.. For information on thetrial results see http://www.corcept.com/cushings_clinical_trials. The company has submitted a New DrugApplication (NDA) seeking approval for this drug. Patients interested in using mifepristone should consultwith their endocrinologist. Theirendocrinologist, in turn, should contact Corcept for information about thecompassionate use program. Please notethat Corcept will provide information solely to physicians. Toll Free: 1-877-367-6550 Website: www.corcept.com/cushings_expanded_access E-mail: EAP@Corcept.com (Edited/changed at 8:54 PM EST by Dr. F's request. He sent another which changes the wording a tiny bit.) This post has been promoted to an article
  5. Cushings-Help.com Announces The Availability Of An Investigational Drug ForSevere Cushings's Syndrome On a Compassionate Use Basis November, 2011 We would like to make patients aware that mifepristone, aninvestigational drug that blocks the action of cortisol and is being developedby Corcept Therapeutics Incorporated, is now available on a compassionate usebasis for eligible patients in the United States with Cushing’s syndrome whohave no other treatment options. Under this compassionate use program, the FDA allowsseriously ill patients who lack satisfactory alternative treatment options touse an investigational new drug that is still under development. Corcept has completed a Phase III trialinvestigating the safety and efficacy of mifepristone in patients withendogenous Cushing’s syndrome. Theinformation from that study has been submitted to the FDA for review of safetyand efficacy.. For information on thetrial results see http://www.corcept.c...linical_trials. The company has submitted a New DrugApplication (NDA) seeking approval for this drug. Patients interested in using mifepristone should consultwith their endocrinologist. Theirendocrinologist, in turn, should contact Corcept for information about thecompassionate use program. Please notethat Corcept will provide information solely to physicians. Toll Free: 1-877-367-6550 Website: www.corcept.com/cushings_expanded_access E-mail: EAP@Corcept.com (Edited/changed at 8:54 PM EST by Dr. F's request. He sent another which changes the wording a tiny bit.)
  6. These look like great questions. If you haven't listened to the first two live interviews, you should do that. Some questions may be answered already in those. Robin
  7. Trying out the twitter connect on the newly updated Cushing's Help boards

    1. Moderator

      Moderator

      Looks like it worked :)

  8. So, what happens if I update here on the Cushing's board?

    1. Show previous comments  1 more
    2. staticnrg

      staticnrg

      How does it know who I am on twitter?

    3. Moderator

      Moderator

      Oh, I thought you had set that up already. I think that there are instructions on the "Everything Else" area but you set up your info in your profile under Twitter Connect

    4. staticnrg

      staticnrg

      LOL....I haven't explored that much. Love it!

       

      Now, how did you know I had commented on your comment to me?

  9. T-Shirts

    I hear you. Hugs, Robin
  10. T-Shirts

    MaryO, what if we did a Cafe Press site? You know some of the designs I've done for various things? I could fix those with "sayings" that folks want and put them on a cafe press site. I could price them for modest profit and the profit could go for the running of these boards and the C-H sites. I'm all for that! Hugs, Robin
  11. u inspire me. my daughters dance teacher told us recently that inspire means breath.thanks for breathing some life back into me. thanks 4 supporting all of us.

  12. ~I just want to thank you for your helpful feedback on my posts. They have really been so helpful and help me ease my mind :) You are great!!!!! THANKS again!

  13. CLick here to access the second interview. Robin
  14. The article Dr. F. mentioned: Dr. F is a hoot, isn't he? I enjoyed it, too. Hugs, Robin
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