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Lisa-A

Over 2000 Posts
  • Content Count

    2,116
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About Lisa-A

  • Rank
    Over 2000 Posts
  • Birthday 06/18/1970

Contact Methods

  • ICQ
    0
  • Yahoo
    glorydoodle@yahoo.com

Profile Information

  • Location
    Neverland
  • Interests
    My main interest is to study about what is wrong with me & getting better. I am interested in getting involved in cushings awareness. I think there are so many sick people out there that are misdiagnosed. I would like to see everyone knowing about this disease just like breast cancer!
  1. I missed it, Mushy Brain-Itis! Ahhhhh! I will listen to it on our drive Saturday with Anthony. Thanks for doing this! Lisa
  2. Is it possible for a person who must take thyroid replacement hormone to sometimes be able to convert the T4 to T3 and sometimes not? What would cause this? What would make a persons TSH soar into the 140's and dump below 2 in less than a week? This person had a thyroidectomy 18 years ago and 3 known pituitary tumors and never has had level thyroid numbers last more than 2 months. What is the relationship between a high stress childhood, PTSD and a burned out endocrine system? Do we all have Adrenal Fatigue? If so what can we do for that? How do we get the understanding and respect we deserve from Dr.s?
  3. Yup that is me before steroid and now that it has been taken away. Ever since getting back from Ceders and the "cold turkey" steroid withdawl all I do is sleep. I have slept almost every hour of every day for the past 9 days. I sleep through everything. I wake up for an odd hour in the middle of the night or in the daytime. My DH and I were just talking about my sleep and how scary it is. XO Lisa
  4. Donna,

    You are a great friemd to all of us!!!! Thabk you for always being so supportive!!

    XO Lisa

  5. Calley & Penny you are both in my thoughts and prayers daily...I know you will get your cure and your Life back! XOLisa-A

  6. Robin & Mary-O, I am always amazed at all you guys do to keep up this site and always and looking for new ways to improve our lives and educate the Dr.s one by one. My Landlords have become the biggest researchers and they have so much knowledge form coming here, (this site) and the wife wound up diagnosing herself with some kind of endocrine problem, I sent her to my PCP and sure enough she has thyroid problems. They have also talked with 2 friends that they feel "looK Cushie" and they approached them and they are both dealing with symptoms so similiar and they are now researching. This is all from me googling my symptoms and finding this site way back when...One by one is how we get awareness. Thank You So Much!!! Love Lisa
  7. Thank you so much Lisa!!! I want to write you a longer email, so look out! It will be coming! Sadly, its time for another nap so I will write you later!!!! THANK YOU for your post to me!

  8. Poor thing, starting out with a diseased endocrine system. Lisa
  9. Lisa, good luck with your appt with Dr. F. I hope he finds everything and can help with everything. Can't wait to hear the results of what he says/finds. Good luck hun, you deserve the best!!

  10. I would like to add that I think endocrine disease is the most mis understood. Lisa
  11. Hey Lisa, How is your sister and her little baby boy? Did eveything go ok. I sure hope so, thinking of you and your sis.

  12. Hi Lisa! I hope you are feeling better since your surgery! Big Hugs!

    Malia

  13. Wow you guys this is great! Thanks to everyone who worked so hard to get this going, and to all of the brave souls that have been or are going to be interviewed! Way to go! Lisa-A
  14. I feel like making copies and handing them out to Dr.s, randomly as I travel this country looking for answers. I will start with my Awesome GP and my New Newer Endo (The one who sent me to Mayo). I looked up Apathy for those who are to apathetic to look it up. lol Apathy is a state of indifference ? where an individual has an absence of interest or concern to certain aspects of emotional, social, or physical life. Apathy can be object-specific ? toward a person, activity or environment. It is a common reaction to stress where it manifests as "learned helplessness" and is commonly associated with depression. Learned Helplessness--Yuck! I know I am apathetic when I am not coming to the boards or sending cards. That is when I know I have hit the wall. Lisa
  15. Thanks so much for putting this out there Brenda, it helps validate all that I have been through and gives me something to show the doubters who love to judge. Hugs! Lisa
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